I was curious if methylprednisolone could act as a methyl donor to the cycle? My son just switched from IV methylprednisolone to oral prednisone. The two days he was fine. The third day (today) he...
Cool. Good to know. I'm all for hanging on to any hope of things being better. :)...
Thank you for the replies. DH and I are just too unsure about the Imuran and the Remicade at this point. But I will look at that link you posted from CCF. And I read a bit about LDN, I will...
Just curious if that kind of healing can occur or are thickened bowel walls akin to scar tissue and will be there for the long haul?...
My DS (14 this week) has a pretty angry pancolitis flare currently. He was admitted to the hospital last night for weight loss, dehydration, bleeding D, mild abdominal pain; on 40mg IV steroids and...
Does anyone have experience with iron supplementation? I know heme is better absorbed than nonheme. Is there a heme supplement that has been found to be particularly effective?...
It went well, feeling very hopeful. Thank you....
Thank you so much. I really appreciate the support offered by you all. So guess who just now woke up after eating a pint of Hagen Daz vanilla ice cream last night? He's agreeing to a dairy free...
I did not know that about the milk taking a month to clear. Good to know. I am aware it's inflammatory (when this first started and he wouldn't eat ANYTHING, raw COW milk was all he'd ingest. When...
Thank you for reinstating that this is a pediatric case. It does seem that my doc is unknowledgeable on the supplement side of things, but he did give me two weeks worth of VSL3. :wink: But to be...
I am new to the GI scene, do don't know what is characteristic of most GIs. But I have had several substantial conversations with this guy regarding my son's intolerance to histamine and therefore...
I just called them, total vitamin D was 10 (n-25-70), but d2=<4 (normal) and d3=10 (normal)...how could the D level be low and the D2 and D3 be normal??? Vitamin b was not ordered, nor was calcium....
So apparently they did check his vitamin D and B levels previously and they were low. He said we could supplement, it wouldn't hurt, but didn't seem convinced it was necessary or would help. Doctors...
There are benzoates in those. My son is sensitive to benzoates in food. I'm concerned about even trying these types of meds, obviously being a higher concentration....
Thanks. Honestly, I don't know what prednisone has done, other than give side effects. He is ready to be done with those. ;) I heard it can take a while to get in the system, but I didn't seem to see...
I started him on Claritin and DAO combined with a Low chemical diet and the past four days his calorie intake is UP between 1600-2260, he has a much better MOOD and his poops are...
My son has his two week follow up appointment (after diagnosis and hospital discharge) with the GI doctor tomorrow. I was planning on asking for a VSL prescription along with having his vitamin D...
Wow, thank you so much for all the information. I would love to talk with you and get your perspective on things. Am I reading your signature right, that you have this too!?...
Yes, I am familiar with mast cell action/histamine production in the gut. He does not have a MCAD dx, but I have thought about it since this all started. We are in the US and I have no idea where to...
I have not tried camel milk. If I didn't mention, we are on raw goat milk currently, thinking that would be less inflammatory but still providing nutrients. Thanks. I will look at LDN and email you...
Thanks, I'd be interested to hear what they have to say. I think I'll do a search on here. We are near Grand Rapids, MI....
Thank you for all the info. I feel the same way about the medical system and their answers, from my experiences. I had ordered Bullet Proof Upgraded Whey 2.0 and have been trying to incorporate...
InSoFla, I will respond over here , don't want to hijack this thread. :wink:...
Thank you. The Vitamin C I was mostly giving him to help with the histamine issues; it is a natural anti-histamine. Is it counter-productive to take it from the UC side? Or were you saying not to...
Yes. Is that not good?...
Yes, I read something you wrote in another post about the folic acid. Thank you for mentioning it here again. We have not eaten cheese in months; in March we started "Failsafe" diet to determine the...
I thought I was clogging the Antihistamine thread with non antihistamine related details. ;) I am the mother of a 13 year old boy diagnosed in July with Severe Ulcerative Pancolits, after two months...
Thanks for all the information Old Hat! Good to know on the steroids; I will relax my "prescriptions are toxic and useless" grip. ;) I have put him on near bed rest so he just reads, watches movies...
Oh my word! This is SO interesting. Me and ALL of my eight children have histamine/salicylate intolerance and a few of them have awful behavioral issues, probably on the ADHD spectrum. And then my...
Thanks soystud. He's super moody and irritable right now, probably from low blood sugar...and the prednisone...and the histamine level...and the condition of his body. :( I can't get him to eat...
Yes, I was just reading about a fella where Claritin helped him stay in remission (every spring/fall allergy season) for a few years and then it stopped working. Frustrated and hopeful all at the...
Old Hat, what is it that minimizes your insect/pollen reactions? Yes, we've only used antihistamines for "emergencies", knowing that in the long run antihistamines can actually lead your body to...
Right on soystud. I agree that I would rather restrict our diets to aid healing and live without the pill monkey on my back. DAO doesn't block anything though; it's an enzyme that the body *is...
garylouisville, if you DON'T take the DAO, do you find the histamines affect your UC? Excited to talk with someone with similar circumstances? I agree DAOsin is wonderful. I suppose it would depend...
Hi, I'm new here, obviously. I have been searching out info to help my son, 13, diagnosed severe pancolitis few weeks ago. Anyway, I only wanted to post because reading through this thread I was...