You're more than welcome to private message me, my email address is on my profile....
I tried Acupuncture too along with Chinese massage, neither of them helped in the slightest!...
Glad to hear that you're feeling a little better, hope you continue to improve....
I remember the picture sharing years ago! There was a moderator at the time named Dansky, and everyone was dying to know what he looked like. After a great deal of persuasion he eventually posted a...
Good to hear you are doing well justwrong, it's great that you felt well enough to go back to work just two weeks after surgery! Hope you get your j pouch. Quincy, I did not tell my friends about...
Hey Joanna, Really pleased to hear that you're feeling a bit better! Hope you continue to improve and manage to get out of that hospital soon! Joanna xxx...
Best wishes and hope you get well very soon Joanna! I was very against having surgery but had no choice in the end. I was terrified too, but it's now been over a year since my takedown and I feel...
I was given continuous IV cyclosporine in hospital after IV steroids failed to work. It was really slow to do anything and I was told by the Gastro team that I had to have my colon out. I was...
I was prescribed clipper back in 2010 just before I went on holiday to Florida. Unfortunately, it didn't prevent my flare from getting so bad that I was hospitalised for two weeks as soon as I...
Hi Sara, Sorry to hear you are going through this! I had complications after surgery and spent one month in hospital. One of the complications was a hole in my j pouch and I had to go back to theatre...
Just read your post fruitgirl, phew, that's a relief - started to get a bit worried there :)...
Well I don't have UC anymore as I had to have surgery. I've already had transfusions on three different occasions now so not much I can do but hope that everything was screened properly and nothing...
I tried LDN and also got it from Dickson's Chemist in Glasgow. Unfortunately it didn't save me from having to have surgery, I hope you have better results than I did....
Having just recently received four units of blood, I wish I hadn't read this thread, lol....
Thank you for replying :-) I dont know what my ferritin is as i wasn't told that. I haven't seen a haematologist, I have been referred back to the Gastroenterologist whom I will be seeing in June....
Hi ByeByeUC, It is almost a year since my takedown, and other than a bout of pouchitis not long after takedown (which soon cleared after a course of ciprofloxacine), things have been pretty good. Had...
Not all healthcare on the NHS is poor! I had very good care on the NHS throughout my twelve years of having UC before having to have a colectomy and j pouch creation. I also had a fantastic surgeon...
Very sorry to hear about your little cat Quincy, thinking of you. Joanna xxx...
Had takedown just over three weeks ago and am doing ok. It was so much easier than the previous surgery! The first few days I had lots of nausea and vomiting, but that soon stopped. I did wish that...
Thank you all for your well wishes, they are very much appreciated. This forum had been invaluable to me over the years - even though I haven't always posted, I learnt so much from the people on...
Hi all, it's been a while! Well I'm finally back to update on my surgery which I had last October! I would have posted before this, but I had been feeling so down about the surgery that my update...
Just a quick update as I'm on my phone & not supposed to be as I'm still in hospital & on a monitor. Well had my surgery & wow was it rough! I expected it to be tough but this took me by surprise!...
Thank you all for your well wishes, they are much appreciated! Suebear and Scrap Girl, I certainly hope I do as well as you both and Scrap Girl it will be great to say goodbye to all those "funsies"...
Hi everyone, Haven't been on here in a while, in fact not since I last got out of hospital after just managing to escape with my colon! Unfortunately, after feeling slightly better for about two...
...You walk the dog and it's looking at you strangely 'cos you're the one crouched in a bush!...
Hi everyone, thanks for all your replies - your thoughts are all very much appreciated! Well for now I still have my colon! On the Thursday, my blood results were better so the consultant said they...
Thank you so much everyone for your kind words of encouragement, it's nice to not feel so alone! Disneynut66, I live in England, UK. The surgeons here are talking about j pouch. Apparently at the...
I haven't been on here too much for a while as I've been feeling so ill I haven't even had the energy to post! Anyway, things came to a head and I was admitted to hospital 8 days ago for blood...
Hi Dizzy-Noodles I can understand your concerns regarding your job and being off sick, as I too have been signed off sick for the past two weeks. Last year I took two weeks holiday, got really sick...
I live in England but all my family are from Belfast. Was over there for Christmas.....nightmare having UC when there's no water and you can't flush the toilet!...
Thank you for your replies. At the moment I am being pumped full of IV steroids and antibiotics and also have a feeding tube through my nose into my stomach, as my nutrition was so bad when I got...
Had been so looking forward to my holiday in Sarasota, Florida, but unfortunately my UC had other ideas. Spent most of my time feeling horrendous in bed, unable to seek medical advice as my travel...
Over four years ago I stopped taking Azathioprine. I had achieved remission, however I was losing my hair and had no energy so I made the decision to stop taking it, against my Doctor's advise. I was...
Thanks imagardener2, it's good to hear that there was no sign of any oil on your boat trip and that the latest projections are that it will miss your coast. A boat trip in the Gulf sounds like...
Hi imagardener2, I remember from the post about where everyone is from that you live in Sarasota. I am due to fly from the Uk to Florida with my family on 11th June and we will be staying in Siesta...
Hi notsowell, I can relate to your situation as I am in the same predicament! I am currently flaring and have been unable to get it under control. I am also from the UK and due to fly to Florida in...
I live in Sandhurst, Berkshire :-)...
Hi lamkins, I have done Race for life in the past and you're right, it's great fun and a fantastic atmosphere! I won't be doing it this year as I am still flaring quite badly but if you email me a...
You always carry spare underwear and wipes!...
Berkshire, England...
I am definitely with Kazygirl on this one!! There is NO WAY I could pass wind in public while flaring without having an accident! If I feel the urge coming on I have to run to get to the bathroom...
I am 5'4" and currently weigh 105lbs, usually weigh 111lbs when not flaring....
I too can relate to this! I don't even attempt to eat anything at work anymore because of it and eating out is not an option now. My husband booked a table for two at a lovely restaurant on Sunday...
Good luck, hope all goes well - will remember you in my prayers. Joanna...
I was given ensure when I was in the hospital. I had malnutrition caused by my UC and found it difficult to eat anything - I think it definitely helped me at the time....
Malkavian, I'm not sure what an enteric steroid is so don't know if it's the same. Clipper is beclometasone dipropionate, I think it is only used as a treatment for UC in the UK. My consultant wanted...
Sue, thanks for the advice - I will phone the hospital in the morning. My last colonoscopy was in November and it showed that my UC was only on the left side up to the splenic flexure. I never knew...
Thanks so much for your replies! I haven't tried diet modification before, but am willing to try anything that might help so will definitely look into it. I didn't stay on maintenance medications...
The worst flare I had was five years ago and lasted for over a year. In that time I was hospitalised three times and almost lost my colon. I was practically housebound and had no quality of life. I...
For me the most possitive thing to come out of having UC is that I am now more appreciative of life in general. When in remission, I feel incredibly lucky to feel healthy and I enjoy everything much...