Hi there, I too am 25 and tomorrow I have my meeting with the surgeons. The constant flare ups and the relentless meds are too much for me. I am just trying to think of some questions to ask the...
Hi hateuc, Thanks for your advise and suggestions. Canker Rid website looks interesting. I will definitely consider it if the GP cannot help. Apparently if I want it in 1 to 2 weeks it is an extra...
Remicade works great for me. It is the only thing that gets me out of a flare up. Sadly I am only allowed the first 3 starter doses as it is not prescribed for UC in my area until severe due to lack...
Hi there, I am taking folic acid 5 days a week to try and counteract the methotrexate side effects. I would like to take a multivitamin but they all contain folic acid which I cannot take on the day...
The first time I had a scope it was with sedation and it was great. I went in feeling scared and nervous and fell asleep and woke up in the hopsital bed post investigation. Since then I have changed...
Hi Conquer, Reading your posts I can relate in so many ways. My family is also pretty wraught with mental illness and I worry that all these meds will have a negative affect on my brain which will...
Thanks Andrina, I was hoping it was the Steroids but I am sure I didn't feel this wacky when I was on the Pred......
Hi there, I had my third hospitalised flare in July. I was put on Budesonide and Methotrexate. I am coming off the steroids now. Since then I have been extremely irritable, short tempered, angry,...
Thanks for the update, I was keeping a look out to see how it went for you. Fingers crossed it goes well if surgery is required....
Honey. It is sweet and good for you. Try getting something natural and not full of preservatives and fake carbs....
It definitely means it is working. Be aware that your stool will not be completely back to normal when you go next. Do not let it get you down though. It will change. Also be aware that if you have...
I have some words of advise regarding travelling with a flare up. I was about 1 week in to a flare up where things aren't too bad and there is a bit of mucus and some urgency. I went to Bulgaria for...
Do you have trouble sleeping due to the UC or is it something else? I used to have some crazy sleep troubles but I changed my mindset and now I sleep incredibly every night......
Nervousness is good. Embrace it and do not be afraid....
I left mine at the post office for one week. Some of the powder was a bit lumpy and it was a bit yellow. I still continued to use them as I had paid over £50 for them. When I got my latest pack I...
As soon as I had it I could tell things had changed. The first time I had it in one afternoon and after that I didn't go to the toilet until the next day. This is after being hospitalized and going...
You know you have UC when you are extremely happy to have your first post hospital flare up fart......
I recommend not taking it as a maintenance drug. However, if the positives outweigh the negatives for you then you might want to consider it. However, some issues you won't know until it is too late...
Coconut water has uncountable benefits, whilst also being a tasty treat....
I mix it in with some coconut are twice a day. Once when I wake up and once right before bed. The taste is not too bad. It helps to refresh the pallet after the aloe Vera liquid which tastes like...
I was told that the more bacteria the better. I take vsl 3. Something like 450 billion bacteria. They seem quire widely recommended....
My doctor told me not to take indigestion remedies whilst taking Budesonide. I have also read on the pack that it advise against it. Are the following herbal remedies classed as indigestion remedies...
I completely agree with you Gary. It is an extremely frustrating situation to know what helps but to not be ill enough to get it. I imagine that if I give it a few weeks then I will be hospitalised...
I was under the impression that hardening the stools with an inflamed colon can just increase the chances of ripping your insides apart. My doctor told me this during my first flare up but I am...
I found that after 6 months Asacol gave me some crazy rashes and itching. I started using Ipocol and it stopped immediately. It could be an option. Not sure of it's availability in Canada though....
Hi there, thanks for the welcome. I have spent many months reading on here but this is my first post. So you had to be in the severely ill category to get the remicade treatment too. That does seem...
Hi all, This is my first post on here and I come to you in the hope that you can offer some advice. I have had 2 flare ups (Winter of 2009 and Summer of 2012) and am now about 1 month in to my latest...