MarkwithIBDiPoop/Limey - I was sick. Really sick. Probably 15-20 BM's a day with blood, cramping and strong urgency. I couldn't leave the house sometimes because I had to keep going - especially in...
I've been doing a FT pill medical trial since the middle of June this year. Two FT pills a day. The change has been a 180 degree turn around. I'm impressed by how much things have improved and how...
Just completed my week of vancomycin and today started the FT/placebo pills. (It's clear that these are the FT pills). My stool is now normal color and small chunks compared to before. There was zero...
I just started a trial for UC. First drug administered is either Vancomycin OR Placebo and then I will be taking a fecal pill OR Placebo for 10 weeks. I'm not currently on any meds, am in an active...
Restaurants that have simple ingredients seem to work the best. That may be why Subway works for so many. You can see each ingredient as it goes on there. I wish they would offer GF bread....
Well, friends, I have almost successfully completed a run for a state house seat while actively having UC. For part of the time I was on Uceris, but after having some bad side effects, I decided to...
I know someone mentioned a hairpiece. I wear hair extensions. Salons/Hair supply stores have little pieces of real hair you can tape into your real hair to make it look fuller. There are also bands...
Congratulations! Only people with problems like ours can fully appreciate the positive impact this could have on our lives....
I seem to be cyclical in my flaring. Of course, it never goes away but the best time seems for me seems to be during the summer when I can get out and enjoy the sun and am just happier in general....
Thanks for sharing this info again. My daughter is almost 6 and I started flaring when I was 1 month into my pregnancy. She is my 2nd child and I did not have symptoms before this. The SCD truly...
Can you link the article? This is a law? What state? Thank you!...
You seem like a good friend. Be there for them and don't bring over a huge pizza or milkshake as a treat...
Ask your Dr. for Retinal A skin cream. This is the only thing that helped me clear up my skin....
Yes, I had that experience with Lialda. It worked for about a week or two then symptoms returned....
OP Thank you for your post. I try as hard as I can to avoid any kind of prescription drugs for UC because they are expensive, have detrimental side effects to me personally, and don't help me to get...
I didn't use any tests, but it was my spouse....
Just straight into the juicer and drinking it right away....
I've been drinking celery juice plain and seems like my symptoms have improved over the past week. I drink it at room temperature and do not mix it with anything. I am not on any meds right now. Has...
Mr. Anxiety, are you saying you want a colonoscopy? Go to a new GI and ask for one if you think that would help ease your concerns. Passing food that looks like what it did going in is a sign...
Ewok89 I echo the statement about well-meaning family and friends. I've been given books on stress and spiritual healing that didn't do anything to stop the urge to use the restroom. If only they...
Yes you are naysaying the side effects of Mesalamine drugs by trying to downplay the impact some of us experience. Cutting hair and observing natural hair loss with age doesn't make one a pharma...
Obviously, some people on this thread have not experienced hair loss from mesalamine or they would not be saying mesalamine doesn't cause hair loss. There is a huge difference between shedding a few...
I stop cold turkey and the symptoms come back almost right away. Dr said I need to look into Humera or Remicade-type drugs since Uceris is not a maintenance drug. However, it does help me feel better...
I'm on Uceris right now and it causes bloating, weight gain, moon face, and joint pain although less severe than if I'm on Prednisone. The moon face goes away and I lose weight almost immediately...
Your on Uceris foam - what about the pill? I'm on that right now and it works almost instantly....
Mesalamine drugs caused hair loss for me. The amount varies among users. Mine was severe....
iPoop. Regarding vanity, I hear what your saying to some degree but she's only 18 and hair is a big deal for many women. Men can shave their head if they start to lose hair and it looks fine, women...
That is devastating. Can you look into hair extensions? I have the tape in-kind after a ton of my hair fell out last year. Most people are shocked when I tell them because you cannot tell unless you...
Many people read the questions on this forum, but if they don't know the answer, they aren't going to waste your time replying....
I agree stress caused it since you were mostly fine before and now in a flare. I'm sure many people in HI are experience post traumatic stress symptoms right now. I hope you feel better soon....
Nothing weird from my perspective either....
To OP, I did it a few years back using my spouse. He is a clean eater, vegetarian. I did it in combination of taking Uceris and following the SCD diet. There are videos out there that show the...
That's fantastic. Are you on a modified diet as well or taking other meds?...
I hear what the OP is saying about having a GI who doesn't have time to properly treat you. I'm looking into a Concierge Doctor facility right now. I need to find a team who is willing to take the...
The pill is supposed to be the exact same. It looks the same and even has the same number. However, I started the generic after being told it was $50 less and went into a flair so I switched back....
I did SCD after taking Uceris and it kept me out of a flair for almost over a year before some stressful situations and bad eating put me back into a bad flair again. Am working towards doing it...
I had a bad reaction to the new generic. It is supposed to be exactly the same pill. I went back on to brand name Lialda and am still trying to get back to where I was before....
It should say regular Lialda since Sept. Generic since this monday. Back on Lialda today tho. Rectal several times a week....
Quincy - I'm on rectal meds. No break in-between meds either. ipoop - I agree either a bad batch OR not the same despite the claim......
Thanks for the responses. Apparently there was a 180 day opening for another company to create generic Lialda and that is called Zidas (sp?). I called them and they said they make their own in a...
Last night after taking the generic Lialda for 5 days and having increasingly worse symptom of dark, bloody diarrhea (which I've never seen before in this manner) gas, increased frequency to use the...
I would avoid the generic Lialda. I was fine on Lialda and the pharmacy said the generic was the same thing (it was $100 less) however, within 3 days my skin was breaking out and I had bloody D, and...
800 for generic Lialda which doesn't work! Rip off....
I suffered from hair loss too with Asacol and Lialda. Please update on the Colazal....
When I first started having symptions of UC 5 years ago, I had a colonoscopy done. The GI wasn't sure what was wrong but said it looked like UC so that is what she diagnosed me with. A few years...
I started taking Lialda (2 a day about 3 months) and it was actually working pretty well to the point I started feeling normal. Eating almost normal foods and enjoying it without running to the...
Are you renting a car to avoid having to wait for the buses or monorail? Agree wear pads/diapers bring a change of clothes. Don't try to overdo it....
What about a period pad instead? Those cost less and are different sizes...
Hope you find some relief soon. At least kids won't judge or probably even notice if you crap your pants. Warm baths made feel a little better during the waves of D....
I think a mini-van might be a better choice for those needing to poop in the car or maybe a full-size pick up with bench seating... Also, throwing your waste out the window is just wrong. Think of...