embersglow1 Katie, My Nurse mailed me saying that the Dr thinks the benefits of adding azo outweighs the risk so I should think about it. Also I have not heard about Simponi, I will ask my Dr about...
So you guys think surgery isnt a better option then drugging your body so much ? Raj...
Thank you all for sharing your thoughts and experience on the subject. There is no family history of any cancer in the family so that is ruled out I am getting prepared to try Aza with Remicade and...
Bananagirl, I will give that a try and see if that helps. Raj...
I have tried un sweetened coco powder with warm soy milk and little honey. It tastes like Cappuccino. Coco powder helps increase hemoglobin. Raj Dx Pancolitis 2010 Currently Remicade, with 50%...
I am Dx with Pancolitis in 2010, so after all jacks and trades I finally decided to go on Remicade last year and it helped me little but not as I would want it to be. I still have about 5-7 BM with...
Did this stem cell trials helped anyone yet ? Any side effects ? I am in USA and want to speak to my GI about this but I need some more info about this guys if you can help. Is it available in US for...
mom of 3 Your story about diet and bringing disease in control is very impressive. I am 39 yrs old male with pancolitis, (dx in 2010 ) on Remicade finally after all the tips and tricks about diet and...
ByeByeUC, tell me, if you are on a liquid diet for one day, do you still have to empty the pouch same amount of time ? Bloom93, I have never thought of fecal transplant. Dont know if that is an...
ByeByeUC, Thank you. Today was my 5th Infusion and 1st dose of Methotrexate. I will see if that brings me into remission, otherwise I do not want to drag it long. I can live with approx 6 BM on J...
Scum1, Read your story, sorry to hear that you are going through so much. you are not alone. If you can tolerate yogurt, bump up while you are taking anti biotics, just a suggestion. Best way is to...
Somedude, I am male 38 Dx with Pancolitis and currently on remicade with little help, guess better then nothing. I need help with SCD, thinking to incorporate that with treatment to see if I can...
ipoop / Probiotic, thanks for your feed back. What you guys say makes a lot of sense as to what do I term as quality of life. I am aware that with J pouch I will have about 6 BM, which is OK, but...
ByeByeUC, I read your story and i am on similar line. I am 38 male Dx with Pancolitis. Cant decide if I should keep taking Remicade which is helping me only 50% OR should consider surgery. Tough...
UCwhat ? wonder when will I say that !!! Thank you for sharing your experience. Lot of people here seems to be happy with surgery. Its a hard call. I am trying to prepare myself mentally for it and...
Hi Garylouisville, Thats what my doc told me. He said pouchitis is worst then colitis. And once the colon is out there is no looking back. I just dont know what to do. All suggestions welcome....
Hello everyone. Heres my story of UC. Diagnosed with Pancolitis to begin with in Dec 2010. Tried Apriso, masacol, prednisone, azithioprine, enemas, diet, probiotics, hearbal and alternate therapies...
Machina 12, There is a drug called Mesacol 1.2g available in India for a fraction of cost compared to Asacol ( or any other mesalamine family ) If you think Mesalamine works for you, find a source to...