Attended my first ostomy support group last night and now I have tons of questions. It was great for me to go and I'll definitely be attending next months meeting. But in the mean time here are my...
Thank you so much for your response AdventureUC and somedude- different perspectives help, especially perspectives from those that don't agree :)- I have actually been having symptoms since Aug/Sept...
Pluot and ByeByeU, Thank you so much for your replies. I think my family and friends don't fully understand what its like to live with this disease day to day. I think they want to understand and...
So I am finally seriously considering having surgery at the end of the month and for some reason I feel like I am giving up- throwing in the towel. I think because my friends and family wanted me to...
Bannagirl-I am also having joint pain and brain fogginess. My doc says the stupid prednisone is causing all my other symptoms (headaches, joint pain, face swelling, fatigue, shakiness, decrease in...
Garylousville-So I my hospitalizations started in may. I was hospitalized for2 weeks in June where they started me on 60mg of prednisone and remicade. In July they decided remicade wasnt working, I...
Now that I am somewhat sable, my doctor wants to put me on Imuran. we are also trying to taper me off my prednisone. Right now I am at 40 mg because at 30 mg I started having symptoms again. So now...
I experienced the same symptoms off and on. I am down the 30mg this week and have noticed a decrease in headaches but the dizziness comes and goes every now and again. :(...
I was on 60 mg since the end of may and recently started tapering. So I had been on a super high dosage for about 2 1/2 months. I started tapering two weeks ago and am now at 30mg. We were initially...
I have felt a lot better about my options and my decisions on which route to take after consulting with my surgeon. We have had two long conversations and he has had his office send me a box from...
So I have been on a couple of supplements for about 2-3 weeks now and a super restrictive diet (RepairVite Diet) have noticed an incredible improvements in how I feel and how frequently (well...
Oh my, I totally feel your pain. I like to think that before my diagnosis I was a young vibrant soul and now I just feel so lost and depressed at times because I've been forced to say home and 'rest'...
So I need to get these thoughts out and at the end of it all I am open to your opinion or advice as I feel stuck in this decision making process. As you all are aware, I have been dealing with this...
What was your experience?I am starting tomorrow....
Thanks for the info Pluot!I am in the process of working with a holistic md to try naturally but I've been in a severe flare since may. While I'm not going 8 times a day anymore (right now) I still...
Surgery for me is still a likely option. But internet searches don't tell you the after math truths. My surgeon mentioned things like never having a formed normal stool again and possibly problems...
hello all! I just got my diagnosis confirmation of UC (not crohns)! woo hoo! I started working with a holistic doctor that has started me on the following supplements: -RepairVite -GastroULC I start...
What is a realistic time to expect to recover after the j pouch 2 part surgery? And what's life like after? No normal stools? Any other problems people wouldn't normally disclose? I am in the same...
I just did my second round this past Friday and the only difference I have really noticed is a slight decrease in pain. I have gone from 3-4 pain pills a day to 2-3 a day. I continue to have blood in...
Interesting thread to read. :) I am actually in a similar boat NCOT, as my doctors are talking about surgery, but as the absolute final option. We are waiting to see if Humira is working. I am only...
Faithmac, Thank you for your reply. What symptoms did you notice went away first?...
Right now I am doing sort of a SCD/GAPS soup diet but im trying to slowly introduce new foods because I can only eat so much soup. Oh and eggs and turkey meat are the other two things. Other than...
Joanna, My GI dept has been talking about my case since I went back into the hospital in July. They said they are puzzled because I respond to IV steroids overnight but when I get discharged I start...
Thanks for the reply. I had two treatments of remicade and they said it wasn't working. Plus I had a bad reaction to it. Was in bed for three days! Yeah I went from minor symptoms to hospitalization...
Hello all! I was diagnosed with UC in May. doctor's now think it might be Crohns because they recently saw some inflammation in my small bowel. That aside, I was taking off of Remicade at the start...
Hello,I am new to this forum and am hoping it will be a good source of information and support. My background: -Symptoms started August 2012. I pushed off going to the dr until May 2013 -Had sigmoid...