I am about six years post surgery and I would say I probably have 8 to 10 a day but I don't really keep track so I don't really know because I don't really have urgency and I'm able to do so much...
Hi everyone, I had j-pouch surgery about five years ago. A few years before that I had noticed ringing in my ears when my UC had started to get worse. I was also very stressed about my health and may...
Cup of tea, can you get rid of rectum and get a jpouch if you want?...
I also started this whole thing with proctitis that progressed up to uv so my rectum was the worst. I know after the surgery she said she left as little as possible because it was so bad. That being...
I know there are many different results out there, but I think considering the amount of fear an trepidation I had for at least two years before I did it, and all the questions I had, I would be...
Thanks everyone! I think some people go less but I'm ok with where I am at. Once an awhile the feeling comes on a little strong all the sudden, but I can easily hold it. Sometimes I forget or get...
I am 16 months post takedown and doing great. I have my life back as the saying goes, but really that's how it feels. I think I go about 7 times a day, usually sleep through night, eat whatever, the...
I had vision stuff too - I was worried but it went away - it was really weird though....
I would definitely try the loperamide, immodium again. Maybe it will be different since you are further along. I literally went from having to sit down all the time because I was so tired to feeling...
I have it, not bad though. My finger tips (the top 1/3rd or so) turn purewhite in the freezer aisle, holding onto the metal cart, or at random times. I think it happens to my toes too, but I just...
just wondering if you are taking immodium or loperamide? I was extremely fatigued until I started them....
Sorry that I took so long to update everyone, I tend to get really preoccupied, but thing are going pretty good. It has been a painful recovery, literally just in the anal canal, but things are...
It was nice, the cold even subsided for the day. The snow was a little tough though, pushed all around, tons of moguls which i'm not that great on....
i did in beginning, pouch and cuff were fine. my gas isnt painful unless it burns. think im getting better though. ill start another thread....
I am 6 months post take down, sorry I haven't been back. I wish I could say its because I've done so great.....the surgerys weren't bad. I didn't even have to take pain meds at home at all. I did get...
Silent - I am feeling the same - very frustrated - and in pain. I am 5 month out and I want my bag back too. I have an appt. soon so I hope I get some answers. basically once I start going around 3pm...
Sorry I have not updated. I have mostly been going on Jpouch.org. I hate to say it, but things are not good. I definitley think I have pouchitis of cuffitis. I will find out more on the tenth after...
ha ha, yep back to normal. Guess I have to get used to that. I feel alot better this morning too, than the other mornings since my surgery, and I slept through the whole night!...
Hope someone answers this, I am a little freaked. I think I only had two oreos. My output went from yellowish green brown, to basically exactly the color of an oreo, but it was a good amount, 100 cc....
Even after I explained the surgery to my mother and mother in law, a week before the surgery they were still asking me " exactly what I was having done. " It was very hard not to get frustrated. I...
I just had surgery three weeks ago although I had the jpouch formed. So far, though, I have had no big problems with bag at all. Its so nice to not be on the toilet as much, and after all the...
just tried the convatec 2 piece Natura surfit. I do not like the plastic flap coming off the end of the hard plastic pieces. I cannot keep it clean. any one else have that problem. I think it might...
well I am home and three weeks out of everything taken out and the pouch formed. Doing well and trying to stay positive and not dwell on every little feeling which apparently is hard for me.I...
So I had my follow up and its definitely UC. But I continued to not feel well so I have started lomotil even though my output was around 1100cc and I am trying to eat more and drink more. I pretty...
well I think I overdid things yesterday, walked to much. My daughter wanted to ride her bike to school and theres a portion without a sidewalk. I woke up feeling good so I said she could and I would...
wow, for a minute a I just panicked and had to call the floor I was on - but yes I had the pouch formed. She said she had to go really low on the rectal cuff, 1/2 cm. Picking the tape of the bag is...
I am Home and doing well. Surgery went smoothly, my pain was luckily not severe, and no problems with the bag so far. I am still really tired and whenever I do much my heart rate jumps up. I can feel...
Is that really true about your attending surgeon not doing the surgery? anyway - I am one week out of step one and doing good. My Surgeon actually gave me the names of patients I could call to see...
Thanks for the support, as far as eating I gave up trying to figure out what bothered me, so I just ate my usual, hope eventually I can still eat that. I actually want to get healthier, exercise...
Wish me luck! Going in for first step, of hopefully two. So nervous, it is finally hitting me. Of course the past two months I haven't been too bad, but I am chalking it up to a combo of Murphy's law...
Is am doing the same. 60 days though. I am excited too but nervous and probably already second guessed myself 3 of the 500 times....
Hope you are physically doing better and I am so sorry for your pain and loss....
I just found out I have this. As a female I did not know anything about this until It happened and I am wondering, once again, if this could have been prevented. It is when the the rectum is pushing...
I really think this issue is also a reflection of Doctor/Patient communication. I had a hard time taking medicine when I was first diagnosed with proctitis. I was young, had very young children, and...
thanks for your support, I know I have been hemming and hawing for a quite a while now. The other thing I really have now is never feeling empty, only maybe for a short while after I go. Basically I...
Hi everyone, A while ago I posted a question about oral manifestations. Well I found out I do in fact have Pyostomatis Vegetans. It's actually kind of interesting because it is an extremely rare oral...
Thanks, I have head thrush, not now though, I just reality hate making appts. So sick of it. Basically the inside if my mouth looks like my colon probably does....
Thanks, I think I kind of have constipation, feels like trapped gas, but I am fortunate in that I have no pain, just discomfort like bloating. With the amount of gas though you would think I would be...
Anyone ever told they have this and still have UC "I think"...
I have been told I have UC , now pan colitis,for 7 years now after 3years of ulcerative proctitis. My last colonoscopy showed ileum involvement, though it is only the second year of my ileum being...
I am having a lot of oral issues, not canker sores though. It is spreading and i think it might be a thing called pyostomatitis vegetans. I am just wondering if any one else has mouth problems. I...
Guessing she picked up something in her recent travels, do you really start crapping your pants that quickly, it took me years to get to that point....
Have fun, that sounds awesome. Has the comfort zone thing always been part of your personality. I have that now, but it is literally because I do have to run to the bathroom, have accidents, the...
Right now it sounds not too bad, more that you are worried it is goingbtomget bad. Uc definitely sucks, but why exactly do you feel you have to postpone a trip that is soon? I feel like we are always...
I also got thrush, not until the cipro flagyl though, was on pred before without it, even though though doc told me the pred causes thrush, it was the cipro, flagyl in my opinion, which did not help...
Thanks, I recently considered that, ...my mental state might make it difficult to handle the ups and down of surgery. I agree talk therapy would be good to start soon, before surgery, not that I will...
I think I am finally feeling the toll of this disease and am thinkinking about going ahead with the surgery. Just feeling like I can't take it anymore. I have other stresses too, but the uc keeps me...
I am on the verge of getting surgery too. I have had it 10 years, but I have pan colitis now, accidents all the time, blood always, it is really affecting me emotionally now. I also fear cancer, I...