Just another thought - I noticed you said you're drinking coffee. I gave up caffeine and it seemed to help. Now I'm feeling a bit better I'm having tea with caffeine but still not ready for coffee....
I think for the canasa to really work it needs to be used regularly. If the cost is prohibitive you can try other rectal meds. I could no longer afford the canasa after a change of health insurance...
My diarrhea wasn't terrible at the time but I had to take a 5 hour car ride so I took two Immodium and they worked within maybe a half hour or so? I don't remember exactly but it was pretty quick....
Good luck on the MCATs - maybe you'll be the one to find a cure for this wretched disease! I've used Imodium with good results to get through the day but I agree with others that for something this...
I've been on 6mp for about 5 months now and have lost quite a bit of hair, too. I always had nice, thick hair and it's kind of jarring to be able to see my scalp where the part is. I keep telling...
When I'm flaring as soon as I start doing yoga, the treadmill, sometimes even standing for any length of time, I immediately get cramps and need to run to the bathroom....
I've had proctitis for 20 years or so. The canasa suppositories have always helped me and hopefully in time will help you as well. I don't think your diet caused your illness. No one seems to know...
Yes, you read that right. It seemed rather arbitrary and not the way they usually handle things. I agree I'm going to have to be more involved with my meds. My old plan generally covered what was...
My obamacare health plan won't cover canasa or procotzone foam so my pharmacist decided to give me proctozone cream because it's covered. My question is, will the cream get far enough inside my...
I just did a colonoscopy prep but it wasn't as intense as yours. It was clear liquids the day before, 2 ducolax the day before and mirolax the night before. My brother (who has a healthy colon) has a...
I had to change my PCP and saw this new dr today. As soon as I said I had UC he told me he could cure me by changing my diet. Oh - and he could cure my hashimoto's thyroid condition as well. Not put...
I've had UC for over 20 years and it's hard not to let it get to you but we have to learn how to deal with it. There are hopeless days but you have to focus on the good ones. All I can say is I feel...
Hi! I had the exact same dosage this past summer and am happy to say I had very few side effects. I didn't gain any weight - I actually lost weight, no moon face, acne etc. I did have trouble...
It sounds like you should def get the flu vaccine and I guess we both need to look into the others - from what Pluot is saying we may be too late for shingles and pneumonia now....
I'm on 6MP as well and my GP told me I should have gotten the pneumonia vaccine and shingles vaccine prior to starting the 6MP. I need to check with my gastro doc because I got the flu vaccine while...
I'm so sorry you have UC, but glad to hear you are in remission. I agree that if the meds are keeping you in remission and you are not suffering any harmful side effects you should stay on them. In...
About 10 years ago after having no luck with canasa or asacol I went off of the meds and went on a very strict low residue diet. After a few weeks my symptoms went away and I was in remission for...
I would do the prep that you're comfortable with and ignore the nurse. As long as you're cleaned out enough for them to do the scope what difference does it make? The ducolax and miralax are over the...
I used to have that kind of pain from a fissure and hemorrhoids. I've used calmol 4 suppositories with success. Straining when having a bm makes it worse but it's hard to avoid. You should probably...
I am so sorry you are in such a bad place right now. I agree with Red_34 that dealing with a chronic illness is difficult, and you are in a way mourning the loss of the life you envisioned for...
My son is 20 now but I still remember my first major flare right after he was born. I suffered from secondary infertility but would have given anything to have a second child - it just wasn't in the...
My doctor told me Levsin and Bentyl are in the same family of drugs, and as Red_34 said they are anti-spasmodics and may relieve some of the gas pain. I tried Bentyl but it made my dizzy so I use...
I took Dipentum probably 20 years ago and it caused horrible skin ulcerations. I heard it had been taken off the market awhile ago....
I would wait at least a few more days to be on the safe side. I'm going through the same thing with the pred. I tapered down to 0 but within 5 days had symptoms again and am back on 20mg. And I had...
I just recently finished a 4 week prednisone treatment. I started with 20mg for one week, then down by 5mg each week till done. I lost 8 pounds! The only side effects I had was sleeplessness for the...
When I get bleeding it's usually for a really long time so it's normal for me. It's also possible that you've developed a bleeding hemorrhoid since your last colonoscopy (sorry if you did). I hope...
I'm so sorry your uc is so bad. If it were me I'd call my doctor and have him get me on meds right away. I've never been hospitalized for my uc so I'm not sure when that is necessary. Good luck!...
I couldn't tolerate Bentyl at all - it made me dizzy and nauseous. I take Levsin instead and it's worked really well for me....
Hi - I'm pretty new to the forum, too, but find it really helpful and hopefully you will too! I've had UC for over 20 years and for me personally diet makes a difference. My doctor recommends going...
When I want something sweet I've been successful with biscuits - I can't spell my favorite but I think it Leibnotwitz? It's in a yellow package. Social Tea Biscuits are ok for me, too. Depending on...
I've tried Levsin and Bentyl. Levsin works better for me. To be honest I'm not really sure if it helps specifically with spasms but it calms down my cramping, pain and gas. Good Luck!...
I just wanted to wish you the best and hope that your health improves. I gave up alcohol when I was diagnosed with UC over 20 years ago. I started having an occasional drink a couple of years ago but...
I think pb4 is right - I always think of A StreetCar Named Desire - isn't that what Marlon Brando wears when he yells STELLA? If not, he should!...
Thank you both for the great advice! I just took my first dose and am very hopeful. I've warned my family that my behavior may be unpleasant for the next month - does that give me a pass to be cranky...
I don't know if anyone can help me with this but I could use advice! I was diagnosed with UC/proctitis over 20 years ago and much of that time has thankfully been in remission. I started to flare...
I am 54 and still cycle once or twice a year. I've had UC since I was in my early 30's but noticed it def gets worse when my hormones fluctuate. It was really bad right after I had my son. Now going...
I'm glad it went well. Family can kill you! Good luck with your colonoscopy....
My understanding is that stress does NOT cause UC but it is a trigger. You absolutely should not blame yourself for your illness - that's a big load to carry. Plenty of people with stress do not...
That's crazy! Thanks!...
My inlaws and I don't really get along and they constantly make fun of me so I feel your pain. I used to get physically ill when I had to see them but now I realize that their opinions don't define...
I've been taking delzicol since early May. After about 3 weeks I noticed a lot of gas and I started to get flareups again. I read on here somewhere that if you take the pill out of the capsule it...