I was on Pentasa and it was working well, once my pharmacist issued a different tablet and within a week my symptoms were raging. Again, six months later but this time my GI switched me to Salofalk...
Not sure what country you are in but I can get both Salofalk and Pentasa where I am based in Europe. Both are available in both tablet and granules. My doc says that one is designed for right sided...
Enema - Salofalk - Mesalamine Suspension - 4g - Nightly...
Pre UC my normal was twice a week !! Always been a constipated kind of girl, inherited that from my Dad. That definitely has had an impact on my UC, in my first full flare (pre diagnosis, pre drugs)...
I agree with the mashed potato & butter, chicken broth soup and eggs. I found these my 'go to' foods when I was first diagnosed and living within feet of the bathroom. I also try to chew plenty ... I...
Does Mesalazine always lose its effects over time? Or is it a 'almost always' situation....
garylousville: I've only been on the granules for a couple of weeks now and I have seen no change in my bowel patterns - hence my comment re no change. As for improvement : my initial colonoscopy...
Welcome to the forum, I'm also in the Irish system having moved back from Europe where I was diagnosed initially. Also had a horrendous first Christmas Day !! Apparently there is a great UC support...
I was on Pentasa 4mg/day from initial diagnosis last August (2 tabs x 4 times), down to 3mg/day in November until recently. I had a good reaction to it with no side effects and it stopped the...
I am also on Salofalk but the enema (4g) rather than the suppositories. I found it a great help. I was also on Pentasa (4g/day) and found the combination of meds stopped my bleeding immediately and...
Does that mean when you go into remission you can take the maintenance meds as a suppository only? That would be a great thing to look forward too. I hate taking oral meds for a long term, a daily...
I too am suffering from constipation and only going about every six or seven days. I'm taking nightly enemas but these are not helping the bm frequency (but have worked wonders on the bleeding &...
I'm currently living in Eastern Europe ... boy what I'd do for a Costco here !!...
I'd appreciate some advice : I am unable to obtain psyllium seed or husk powder where I live, all I can find is Natural Wealth (from NY) brand Psyllium Tablets in 500mg caps - recommended dose of 2...
I think excessive farting was a sign that I was sliding into my first flare. My husband said I farted like a trucker .... I miss farting :smilewinkgrin:...
Like you, I too have the constipation aspect of this illness and I suffer from pain above my belly button and also to the right of my belly button. I find a hot water bottle on the area a help. I...
Hi Sugarcrave. I've been using these for just 2.5 months so very new to them too. For the first week I was a little upset using them as I found them so alien to my normal bedtime 'routine'. However...
Hi J & Q, Thanks a million for your detailed responses. You've given me the information to go with confidence to talk with my GI about continuing on current meds. I really appreciate it. J are you UK...
Thanks Quincy. That was my gut reaction, I'd like to try to stay on 5ASA without stepping up. I think that that's what the US friend of friend GI doc was suggesting too. To stay on the 5ASA meds to...
I got an appointment with my GI, having been on the salofalk for six days. I had felt relatively symptom free up to that change of med brand. By the time I got to see the doc, I had urgency, gas,...
Thanks for all the responses. I had been seeing a OB/GYN as we have been trying to conceive for five years. She thought I was doing well and still had a few more years of trying - before this UC...
I'm on 2x500mg tablets, four times per day. I'm trying to get into my GI doc this week but having found this out, I'm a little concerned that I was put on the incorrect meds. Figured if I could go in...
I have now been told (by a US based nurse) that Pentasa is given for small intestine inflammation and that Salofalk is given for colon inflammation. Can anyone confirm this ? From my amateur...
Hilarious, I thought it was just me !!...
No, I haven't lost any weight. I never had the terrible D aspect of UC, I suffer from constipation so had no weight loss....
I hope someone can help me with this. I have had regular monthly menses, usually about 25 days, for many years. In April 2013 my cycle started to shorten and by July it was 14 days. I started seeing...
My prescription is for Pentasa brand tablets. The pharmacy always has to order them in for me. This weekend I went to a different pharmacy and they have given me Salofalk brand tablets instead. I...
I get joint pain in my fingers, my feet and one knee !! The finger pain is mostly in my right hand. The feet pain is early in the morning or if I've been sitting for a while and it's more in the foot...
There are no generic medicines here either. The pharmacist told me that there are not enough people taking these medicines in the country for the pharmacy suppliers to bring in generics....
Wow, I'm amazed at the price of those drugs. Without health insurance here in Europe (i.e. full list price) the cost of Pentasa here is €150/month ($200), and the enema version is just a couple of...
Ooh, very jealous of you North American folks ... I adore plantain chips and they do not exist in Eastern Europe :-( Enjoy !!...
@soystud : I'm trying to figure that out, it has happened twice this week already, I'm thinking it might be poor hydration at the moment. I'm a bad water drinker at the best of times but trying to...
Could anyone tell me, what is the downside or negative with ibuprofen ? Is it a no go with UC? I've always found it the only headache tablet to work for me and I get headaches weekly....
Really helpful post, thank you from one of the newbies. PS I did my first colonoscopy last week, am I the only one who found the prep a breeze ? I've suffered from constipation on and off for a...
Are there any guidelines on how to know if a probiotic is good enough for UC ? Does making your own yoghurt improve the quality / quantity of probiotic contents. Would love input. Back in the 80's I...
Hi Julie, I feel your loneliness with this one. Similar to your out of state, I'm currently out of country and dealing with a similar lack of local support (and a language barrier). I too have found...
Having read the NY TImes article, I am horrified at the prices of the US colonoscopies. I live in a southern European country with a good healthcare system. I do not have medical insurance and I am...
Thanks deltaforce, I got your post just before heading to the doctor's office and you gave me great confidence in my decision. I agree with all your points. The turns were definitely painful and I...
@ Pluot Thank you so much for your message - I hadn't thought of it that way. When I told the doc I wanted to do it without anaesthesia, the Xanax was then her suggestion. I'm currently living...
@Somedude .... would you do it again without sedation ?...
I have just been diagnosed with UC and had a sigmoidoscopy two weeks ago. I am scheduled for a colonoscopy tomorrow and I have elected to do it without anaesthesia. I have been told to take two Xanax...
Many thanks for your input, not sure how to change the thread title so I'll repost with a more accurate title....
I have just been diagnosed with UC and had a sigmoidoscopy two weeks ago. I am having a colonoscopy tomorrow and I have elected to do it without anaesthesia. I have been told to take two Xanax and...