With all due respect i disagree. I have been with them for many years and have seen many corners cut then in the past. Thanks for your input though....
Yes i have a hmo. Several years ago they tried to switch my name brand seizure meds to a generic. Did not work and had to go back to my name brand seizure brand. I guess it's all about money and not...
It's my medical provider. They are not giving us a choice. Seems like a money decision only....
My medical provider is switching all remicade users to Inflectra. Is anyone using Inflectra? If yes, how effective? Not happy with the switch....
I got an e-mail from my Gi today regarding my remicade failure. I asked to be put on Simponi and my GI does not want to put me on simponi and is pushing me to take humira. I have heard humira does...
I'm going to talk to my Dr. this week about Simponi. I would like to find out what dosage most people take???? Appreciate any info. Greg...
embersglow1, I have 3 different areas of Basel cell carcinoma. These areas seemed to grow quite quickly while on remicade. I have two options with my insurance company. Radiation or surgery. I'm...
After only 10 months Remicade has stopped working for me. I have built up antibodies already. It worked great for the 10 months. I'm looking to try simponi next. Has anyone gone from Remicade to...
I had Guillain-Barre syndrome in 1995 and it took me 1 year before i could work again. No meds have worked for me so i had to make a hard decision of going on remicade. So far remicade has been a...
That sounds like me. I'm on remicade but there are still a couple nights a week where just mucus comes out. The next day I'm usually ok. Stay with your treatment. Greg...
A long time, years. I had banding done twice. Very painful for me. never again. never worked, i had so much pain and bleeding. I finally found a GI surgeon who did the surgery. It was inpatient...
Are you having to give yourself shots? I'm having to to daily finger pricks(INR) to check my blood clotting. Are you having to do that? My level is taking a long time to go up. Greg...
I know your not big on surgery. However, I've been there more than once. I have had banding and surgery. My advice is surgery. I really did not want surgery, but when it was done and I healed up I...
How long have you been on Humira? is it working at all for you? After this clot my GI wants to take me off remicade and put me on humira. I want to stay on remicade. I see you have been on both....
Scum1, I found out last week I have DVT and now getting shots in my stomach and taking warfarin. Can you tell me what you experienced? I have been told all these meds will not get rid of my clot just...
Don't want to make you nervous but I've had banding done twice and i will never have that done again. Most painful procedure i have ever had. I finally had inpatient surgery to remove them and a...
Because of a blood clot in my arm after a recent infusion my GI now wants to switch me to Humira. I really don't want to switch. Remicade has been helping me. Can i get some input from people who...
I had my third a little over a week ago. I too have the ribbon like bloody stool. However, for me that is slowly going away to a more formed stool. I just developed a blood clot and was put on blood...
I'm hoping I can still stay on schedule with my remicade treatments. It's the only thing helping me. anyone with clots still taking remicade? Greg...
Well, 5 days after my last remicade infusion my arm started to swell and hurt. I tried using heat and it only got worse. Told my Gi and she ordered a scan. They found a deep clot and now I'm on blood...
I'm sorry to hear about your husband. I know it's tough. I have a seizure disorder and take dilantin. Dilantin is an old drug and some people don't like it but it has worked for me without many...
Thanks for the replies. Arm still pretty swollen. I think I will have the nurses try the other arm next time. I felt like a pin cushion last time. Hopefully better luck with the other arm. Greg...
Not a big bruise. The pain is more around my second infusion site which seems strange. This is where the nurse had a hard time and told me there was a lot of scar tissue and that why why she was...
I had my third remicade infusion monday. I woke up today and my arm is very sore around the second and third infusion sites. On my second infusion the nurse had a hard time finding a vein and it took...
I wanted to say congrats on the 8 years of remission. I saw one of your posts a while ago and saw the remicade and years of remission. I just had my third infusion today and hope I have the same...
This is not immediate help. However if you find it is not healing ask to have botox shots down there to help it heal. I had a fissure that would not heal and a GI surgeon gave me two botox shots down...
UC, asthma, Guillain-Barre syndrome...
When I had my first "accident" at work I almost freaked out. I thought I needed surgery right then and there. Getting on here and finding out I was not alone helped me so much. As much as it a...
I can tell you it never worked for me. I spent a lot of money on it but no results. Everyone is different though. I hope it works for you. I've heard people say the best time to take it is at night....
Only you know if your ready for surgery. From what I'm reading it sounds like your not ready. Has the remicade helped at all? If yes, have you asked to up the dose and have infusions sooner? That...
dakotaL, You did not mention if your taking seizure meds. If your not your running a high risk of more seizures. I have had two and I am on dilantin. If your not please consider it. You don't want to...
YES,YES,YES, Put as much attention on them as possible. I would contact every major news network as possible. The insurance and drug companies hate all the attention. Greg...
I have tried it twice. The first time I used for about one year. I thought it worked just ok. The second time I thought it made my bleeding worse so i stopped. Doubt I will ever use it again. Greg...
AngMichelle, Just checking to see if you were able to keep your license? Hope your appeal went well. I had to get retested twice and was able to keep my license. So stay positive. Greg...
I take extended capsules of dilantin. I have for 8 years. It works well for me. i plan on staying on it. Greg...
How do your muscles feel? Are you sore all over? I'm asking because I have had 2 grand mal seizures and your body really hurts after. At least mine did. I think you really need to see your doctor and...
Personally, I would take her to the hospital. I see she is on prednisone. They probably will have to up her pred dose to get her stable. I have always hated being on pred but several times I had to...
MaraJ94, I'm glad you responded back. Tell him I went through something similar and was scared but I ignored it hoping the episodes would go away. Judy was right when she said it can only get worse....
Judy2, Thanks, I wanted to let you know I had my first remicade infusion 9 days ago for my uc. I saw your 7 years of remission a while ago and decided it was time to try it. I hope to have the same...
YES, that is very serious. I believe he could be having petite seizures. I had similar issues before I had my first grand mal seizure. he needs to go see his doctor ASAP. Greg...
Lr21, I'm in the same boat as you. We both had our first infusion on the same day. I had a great first 4 days. Since, I have slipped and have had a lot of blood. I'm also looking forward to the next...
MikeSoCal, I can relate. I was doing great following my first remicade treatment and was so hopeful. Then today, several times in the bathroom and alot of blood each time. This disease is so...
All I can say is WOW. Greg...
I had my first infusion this last Monday. Since then I have been having migraines and trouble sleeping. Anyone else with with the same problems and how long did they last? Greg...
Every State is different. I'm a retired police officer who has a seizure disorder. My first one happened on the job. I had to get retested twice. First thing you need to do if you can afford it is...
I love cashews also. However, I learned cashews no longer like me. My symptoms get worse if I try. Greg...
Yes, I think it's tragic that 5 pepole died. I don't think it was this medicine that killed them. If I was asked to be in this study I would not hesistate. I really hope people respond to this...
Dude 35, Good luck. I hope we both find relief with remicade. Let us know if you find relief and I will do the same. Greg...
Thanks for the link. Great news. I just saw my GI recently and we talked at length about meds and she put me on Remicade. I wish she had told me this was coming soon. Next time I see her I will ask...
rguyer, What happened with your remicide? Did you build up antibodies to it? Did your doc give you anything like 6mp to help stop the build up of antibodies? I'm asking because I just started...