Thanks! I do think I'm having the more vivid dreams but mine have always been rather wild, and I'm still able to fall asleep right away if I wake. I'm looking out for any slight changes, I hope it...
Thanks. What's the brand? I was checking out some turmeric / curcumin yesterday but wanted to see if this works alone first and ask doc. I already take so many supplements I barely keep track of...
Hey guys, I found a very old post on here about the joint pain associated with UC, and wanted to see what people have experienced recently. Mine just started a month ago after I started getting WAY...
Did anyone get to try this yet? Seems like it is so new even if you were on it, may not have seen results yet...but I'd be interested to hear about the experience so far....
Thanks, I will look into the Entyvio and Simponi and see what the gastro doc says about them too. Have any of you tried those? Cimzia is in my head only because it's what the gastro I had last year...
I never really had to tell people before when it was controlled, I might offhand say what it was if a friend or boyfriend saw how many meds I took at the time. However in the last year I pretty much...
Hello, For those who have tried Cimzia, did it work for you and how long did you try it? Any significant side effects or problems with infection? How is the self-injection process? I tried Humira and...
I previously had years of remission and only a few short-lived flares (1 month each) controlled by adjusting meds. Back then I was on Colazol (later replaced by Lialda) and Rowasa enemas (later...
I am dying at the portapotty, that's great though. My co-worker used to joke I should tow one behind me but I always say the entire road could be lined with them and it still wouldn't be fast enough...
I've had my pills come out whole before (Lialda), I think when I was on a flare a few years ago....
I thought that Remicade made my hair fall out because it started when I was taking it - actually never took the next (4th) dose after that started happening (for multiple reasons). However I think it...
I love coasters and never had any thoughts about not going on them when in remission and doing fine -- actually the last time I did go, I was ending a flare (have fat-face from steroids in the pics,...
Yup, hormone thing I believe. I'm actually doing progesterone testing in a couple weeks based on my cycle to see how my levels are and if adjusting them (if low) could help the UC. Had to wait til I...
Interested in other people taking progesterone to help. I am having my levels tested in a few weeks now that my cycle has normalized after getting off birth control. On the pill (trinessa,...
I'm off Remicade now and still not sure if that's why I lost the hair, but it's definitely started growing back all my lost volume (3-4" now!). I'm on supplements and my doc attributes growth to iron....
"I know drs say diet doesn't play a role but anyone out there have success when nothing else worked? " Diet ABSOLUTELY makes a difference although there's no "one" diet for everyone. I really hate...
Remicade did not work at all for me, I did 3 and decided not to try the 4th as I was relocating half a state away and decided I did not want to continue with it even if it magically did work a 4th...
Hello all, I searched the forums on this topic but they all seemed to be 2-4 years old. General consensus that acupuncture didn't help UC directly but good for anxiety/tension. That may be all I get...
Congrats! I too have had some poop improvements the last few days, & I was wondering if it was turkey and mashed potatoes and pumpkin that was doing it lol. There are such a variety of factors that...
Thanks Amamda I'll check that out. The update here... since Friday, I have been feeling pretty good during the day without using any OTC imodium. My symptoms have not come on until about 8 p.m., I...
Welcome! Immunosuppressants help to be for a few years. This year I've been trying biologics and nothing is working. I am interested in naturopathic and integrative medicine before going the surgical...
I had my 3rd about six weeks ago and I'm contemplating whether to get the 4th one done in about two and a half weeks. I have a different thread about it but basically I felt like I have been WAY...
Ha! mine are not farts, but I have noticed when I lay down or change position or roll over or anything I tend to have to get up and go and as soon as I come back to bed have to get up and go again!...
I was on birth control for 8 years (just recently came off it) and when I was in remission during this time I would notice I had looser stools during my period...but definitely not like a full on...
I'm in between 3rd and 4th now, trying to decide if I should continue. It hasn't made much difference for me at all, I'm glad it seemed to work for you at least for awhile! So I can't really say...
Nope, no increases. One doc started me at that dose (and didn't even prescribe it correctly for loading doses), the second and current just kept me on it. My previous longterm doc back home said he...
No Imuran, I was on it for two years prior with Lialda and Canasa and doing ok until most recent flare. the doctor I started seeing here took me off everything and put me right on a 60mg dose of...
Oh funny! I've got a couple sweet potatoes in the fridge, will have to try that cooking style out....
Thanks Joanna I will check that out...wow one poop no blood or urge, sounds like heaven, or my life 9 months ago...lol....
that would be scary and I did hear that too. I checked with my longtime doctor back at home before getting treatment out here, (moved recently before flaring) and he agreed with the new doctor...
Silenus I would recommend trying the drugs before surgery as well. I was a little scared of them but thinking about how many side effects every drug has and how rare the really bad ones are, I think...
Hi all, I've been debating whether to get my 4th dose of Remicade in a month and would like opinions. I tried Humira two months July/August - did not do much for me at all, at some points I felt like...
What would be the risks to using nicotine patches? I have never smoked a cigarette in my life and would never want to, but I did have someone mention this to me and have seen it come up on the forum...
this is my first one with an active flare, and also first one completely isolated from my family since I moved across country. I got a couple invites from local friends and I think I will just go to...
I'd be interested as well, my cousin just mentioned colloidal silver to me yesterday! all she said was it kills 99% percent of virus and bacteria, not sure if that would be affecting good bacteria as...
I used to get migraines in high school before I had UC and off and on through the years. I had a couple of ocular migraines a few years ago, and once threw up from one. I wouldn't say my migraine...
I have heard that it is healthiest to go several times a day and usually following a meal. Good guts if that's going on. For me normal was usually one movement a day, most recently it was always an...
I've never had a colonoscopy to tell me I was in remission, I would generally get one if I was having problems and then be on new meds and once I felt normal again that was considered remission. For...
Haha I'm in a similar boat working with mentally ill clients, a few of them know exactly what I'm going through and some just know I am sick or have stomach problems. We get some jokes out if it but...
I agree that this disease can cause anxiety and depression! I had both that were treated year or two before I was diagnosed and I've been fine with them since then except maybe for this year in my...
I would go ahead and try the drug options and definitely recommend diet changes. I wish I had I known that at the time I was diagnosed at 19, rather than just take a pill and it will help, I think...
I have not noticed headaches although I did get them on Humira. Currently have three doses of Remicade and contemplating whether or not to do the fourth in a month. I just noticed this week I'm...
I have had three doses of Remicade and will have the fourth in about a month I just noticed this past week that I'm losing a lot more hair than I usually do. It is thick and I'm used to a lot coming...
Good luck on the Humira! it was fairly easy to administer, for me I had to hold it down for 10 to 30 seconds and it seemed to leak a little bit the first few times I tried it. Oh man side of the road...
have you found any protective underwear that is made for these types of accidents? it seems like they are all made for bladder. The one I have is uncomfortable to walk around in but okay if I'm...
Thanks all! well the imodium seemed to get me through yesterday afternoon at work and then today with a 12 hour day 2/3 of it on the road. Started wearing off toward the tail end. It doesn't seem to...
Thanks! Mine are usually liquid or mudlike...very few small formed on occasion so it may be ok. Hate that full bloated feeling though, too!...
Ugh that's terrible for that long! it's not too bad when I'm at the office, as long as no one else is in there since it is a one person deal. too bad teleportation doesn't exist to get to work...
Does the Imodium stop urgency short term? A client asked me if I used it but it was never recommended...I'll check with doc tomorrow....
Hi all, I am wondering how have you handled work during a (very long) flare? In previous years I've had two shorter flares controlled with meds within a month's time. I do recall having to run back...