So, starting Imuran, continuing 20mg prednisone, getting a sigmoidoscopy next week Friday. I hope this gets me somewhere....
*hugs* The best way to get the medicine you need is for them to see how much of the bowel is infected. Colonoscopies are horridly wretched, but it is better than over-medicating, IMO. When will you...
I am not on the enemas, I tried them for 3 weeks+ every night (Septemberish), and they actually made me worse. I tried cortifoam once (two weeks) and twice daily (one week) and got no relief. This...
So I see the doctor as a followup to my phone-in script for oral prednisone three weeks ago (after rectal wasn't working). He started me on 30mg which helped for like, 3 days and then I was back to...
I told my husband about the Prednisone, and I was so excited. He was confused, because Pred is so horrible. I said to him to take it as a mark of how sick I feel that I am excited to take something...
Houston, we have Prednisone! And a follow up! YAY!...
So with timing being a bit on the touchy side (have family coming to stay with us in a week) I need to get this flare under control ASAP. Patience isn't a virtue of mine at the best of times, and the...
I have to say while I don't know the whole story with Thoreau specifically, I am really taken aback at the attitude in this post towards Fibro and CFS. For me, I was diagnosed by a rheumatologist...
I actually went to a special Psychologist for dealing with chronic conditions and depression, because I live with multiple chronic illnesses. What I took away from it, and the biggest thing I always...
There is a connection of psoriasis with bowel problems (as evident by the fact that Humira is used to treat both). Though I would hope if it was psoriasis, your derm would have caught it....
So, I have noticed a disturbing trend with my medication. I get these moderate-severe flares, and the doctor will give me meds to control them. Sometimes if the normal meds don't work, they recommend...
I will likely be put on a Cymbalta regimen in the near future to treat major depressive disorder and fibromyalgia. If it helps with my UC... I will be a happy camper....
As someone who lives with chronic fatigue and fibro, I don't want to discourage you... but every single book claims to have the "one cure". I have read a lot of them and tried a lot of things, and I...
I had some hair loss for a while, and I chopped mine super short (like, pixie short). I also stopped blowdrying it when I could, stopped coloring it for a long time, used a really nutrient rich...
Gah. I hope everyone had a lovely holiday. I am still flaring. Been using the Cortifoam once a day and NO improvement at all. Both of my doctors are on holidays until the new year (the 6th or so) and...
True, Quincy. I guess part of it is I am more embarrassed about the enemas than the symptoms. I was also hopeful to induce remission without steroids, but it isn't happening. Thoreau - Thank you so...
So, I had put off starting the enemas because I really hate enemas, they just disturb my life a lot. I wanted to give the Asacol time to work, my doctor's words. I had been taking Percocet for the...
My mom is doing Pico Salax, but not until about the same time as you. I have only done citro mag, and I hate it. Not much to drink, but the cramps were horrid and the taste is wretched....
As I am Canadian, our Thanksgiving was actually in October, so I can't identify anything specific about Thursday that might have triggered my Colitis to flare, except that we made beer bread with...
So you're saying that I could have relapsed by now, even though it has only been a few months since they declared me in complete remission. I was afraid of that. I know that UC is a lifetime illness,...
I'm back! Yay. Or not... So I had my scope on Oct 1. On Oct 13, I was in Urgent Care with severe bowel bleeding (clots and at least a 1/2 cup of bright red blood in the toilet) but no pain and no...
My GI favors Citro-mag, which tastes horrible but is only 300ml. Liquid diet the day before, Citro-mag at 5/6pm and then nothing to eat the morning of. This is my life right now >.<...
I asked the doc about scoping while I am flaring. He said he wasn't concerned, but that I only had to drink about half the laxative. I can't afford the biologics, so it is Imuran/Remicade or nothing....
So, had my appointment today. GI would like to put me back on low dose pred for three weeks, at which time I will have another scope done (yay prep?). Then, based on the scope findings and the blood...
Farina is definitely one of the more appetizing things I have in my house right now. Along with cucumbers, but those are generally a WAY BAD IDEA because of the seeds. Shame, I love cucumbers. But, I...
I just gave my parents heck for not living closer to Toronto, because that would be AWESOME. I see stories of people going to like, Mayo in the states for consults. I wonder if there is anything like...
Odd, I don't know why my signature didn't post in the first post. I have gone back to oral Asacol for the weekend, just to have SOMETHING in my system. I really don't know about blood tests. My GP...
I don't even really know why I am posting this. Part of it is to rant, and part of it is to seek advice for this upcoming appointment. I am in Canada, and as such, a specialist appointment can take...
ledaebel, the book didn't go into detail about how they are connected, and there isn't much info out there about sacroiliitis on the web (much more about its big brother, Ankylosing Spondylitis) My...
Has anyone been diagnosed in connection with your IBD? I have been reading a book about IBD and it mentions this lower-back arthritis, and a lot of the issues sound so familiar....
Went ahead and did the enema again last night. Lots of cramping and nausea, but managed to retain all night. (I am currently doing the enemas every single night) I have seen a GI, and I am supposed...
Because the Pentasa is 4g/100ml, and I was at the the max dose orally - 4800mg (so 4.8g), my GP didn't want me to be overdosing on Asacol. I don't know what kind of a risk that actually is, but like...
I am fairly new here, and I just started Pentasa enemas last week. So far, they have been OK. Minimal discomfort, no real urge to pass them, etc. Until last night. With my current bowel situation, I...
... I don't know who they are talking to with arthritis, but these enemas are NOT friendly for my manual dexterity. I haven't been able to empty a full one yet, and it is not because of discomfort....
So, the first night of enemas went alright. I did warm it up in my hands like everyone said. The worst part was trying to get the darn nozzle open. It just wouldn't open! I kept turning and turning...
For me: Laying on my side means less cramping. Laying on my back means less gas. Laying on my stomach is pretty much a bad idea. I have a heated mattress pad, and it is a GODSEND if I am having bad...
When I was first diagnosed, I was on max dose Asacol, so 4800mg (I think?). That is also what I go to when I flare. It was actually a mistake, as the doctor noted it funky on the paper, but he was...
Good Morning HealingWell, I have used this forum for a reference in the past, but I have never posted. I figured the time has come, and made an account. I was diagnosed with UC in January 2010. I was...