I read about this new study/therapy recently.. https://www.crohnscolitisfoundation.org/blog/clinical-trial-findings-show-promising-results-potential-new-uc-treatment...
The joint pain started almost immediately but I didn't make a connection right away. I would say it took about a month and a half for the symptoms to start creeping back in....
I tried to go down to 5mgs 2 X a day and my symptoms started coming back . I also noticed the joint pain on the lower dosage. I went back up to 10 Mgs 2 X a day and my symptoms subsided. For me the...
I was under the impression that this "ongoing clinical trial" was for Patients that have Rheumatoid Arthritis...?...
I have the same issues as you.. whereas I have thrown up all of the preps. One of my gastroenterologists prescribed Osmoprep ( pills) you can drink with water.. in combination with anti nausea...
I have had success with Xeljanz after failing both Humira and Simponi! Let's hope it stays that way.....
I have been using the psyllium seed capsules ( purchased on amazon) and they have helped me a lot, however I cannot have a lot of raw vegetables ( lettuce etc), so I am unsure why they work but it is...
I have been on Xeljanz since Thanksgiving. Like you this was the "last resort" before surgery. I can tell you that initially I responded very well to Xeljanz. The only side effects for me is...
I too have had better success with Xeljanz than any other medication. Same as you, Pancolitis was in a flare since July... tried to taper pred while on appeal with BCBS.. threw me into another flare...
It took me 3 months to get approved for Xeljanz and it was a nightmare process. I finally did get approved about 2 weeks ago and have been taking it ever since ( 20 mgs a day). I had failed both...
I have already failed ( or they didnt work well enough) 2 other biologics... Humira & Simponi... I have had to be on prednisone since August and stay on it because I can't get Xeljanz. The doctors...
Has anyone else had a ridiculous time getting Xeljanz approved by insurance? I have been trying since September 1st and what I have experienced is actually comical at this point. I was denied at...
Has anyone used this before? Apparently I used these pills when I did a colonoscopy 3years ago.. everything else makes me vomit ( I also had Zofran). My prev Gastro gave me specific instructions (...
Thanks everyone for your input. I am having a lot of anxiety about the colonoscopy in general, and obviously I don't want a perforated colon. Personality wise I will probably like her better than the...
Hi- I was called by my gastro nurse today in regards to my colonoscopy ( which I have been dreading) next Monday. The doctor that was suppose to do it was in a ski accident over the weekend and had...
I started taking Fiber Con ( Calcium polycarbophil) last year and it helped with the frequency of BMs ( I probably have IBS and IBD). Well I am currently in a flare and I want to add some kind of...
I am in another flare ( or maybe the same one and the symptoms were masked by prednisone). I hate to even discuss this with friends or family because they always have the same response... What did...
Hi-I am mostly a lurker here... but recently my gastro was diagnosed with Melanoma and had to abruptly close his practice. He sent me to someone else and it wasn't a good fit for me. Does anyone on...
I have been in a flare for about a year now. Started Humira in August. Got off prednisone in October but never "really" felt better. Lots of bandaiding with Imodium, trazodone ( for sleep and it...
I have the same issue as most of the posters.. for a couple of days ahead of the flare I get the sulphurous smelling gas... it is disgusting and does smell like something died. My flares are now so...
Hi- I ended up in the ER on Saturday because i just started a huge flare. The inflammation is much higher this time on the right side. I have bounced between Pred & Mesalamines and Enemas to control...
This is a topic that is very relevant to me. I met with a new Gastro that does FMT for CDiff. I chose him as I thought he may have some new theories etc. He gave me an hour in his office to consult....
I used this antispasmodic called Clindimidium.. works great. I also had the upper abdominal pain when I started Uceris the first time but I don't notice it now, its definitely lower. I am stopping...
YES!!! I have been totally noticing the belly cramping. Does it almost feel like peroid cramps? I have had it for the past week. Not sure what to do about it....
what is the WOO?...
Hi Quincy- Thanks for responding. I don't know how to change my signature ( I went into profile) and it is incorrect. I use the rectal meds on an " as needed" basis. I am going to call today to get...
I can't stop thinking about my UC. I started a flare in December after a colonoscopy. Before that I was in remission for about years. I will wake up in the morning and see how I am feeling and then...
Hi- Haven't posted in a while because I have been feeling really good.. except for the past 2 months. Had a colonoscopy which caused me to go into a flare ( have not had a flare in over a year) then...
I am not taking any maintenance drugs because I did not need them.I did start taking calcium which helped start the remission. I am also Perimenopausel so I think that is what helped as well....
Had a colonoscopy in Tuesday with the viviscal prep ( pills). Everything looked good. A few mild spots.I have been flare free for a year. Next day..searing stomach pains after eating..now bloody...
I just had a colonoscopy this past Thursday. I had been avoiding it for so long as my last two attempts ( with only one could I have a colonoscopy) were miserable during the prep. This time the nurse...
Hi Ellen- I had low functioning adrenal glands after I came off prednisone last year. I went to a naturopath who prescribed licorice extract. I would definitely try it as it seemed to work for me....
Hi everyone. I haven't posted or lurked in a while because I haven't had to. I have been in remission for about 7 months and it felt great! I was just down to taking 1 Lialda a day. However Spring is...
Thanks for your responses. The doctor decided to up the Lialda to 4 a day as sort of a last ditch effort before going on Imuran. I thought I could stop doing the rectal meds but I guess I will keep...
Hi everyone.... I think that I am finally coming out of the flare that I have been in ( as i say this I will probably jinx myself). I am taking 4 Lialda a day and have been feeling better for the...
I tried Colazal during a really bad flare. I kept puking up orange powder so I think that turned me off. Is there anything else you don't have to take 9 pills a day that will reach your lower colon?...
Thank you so much for all of your responses! I just got back from the Dr and he said to double the Lialda for the next 10 days to see how that goes and then it will be either 6 MP or Imuran ( he...
I feel like I am in a constant flare and have been for probably the past year. I have a couple days of week where I feel better and them wham, I am running to the bathroom and laying on the couch. I...
I had this done in the past couple of weeks. I have been in a really bad flare since going off prednisone about a month ago. I was willing to try anything. I ended up going to a Naturopath dr who is...
Hi- I never really post here but do enjoy reading everyone elses posts. I finally tapered down prednisone after being on it since January. I was feeling great while on the prednisone and thought...
When I took prednisone the first time, it worked very fast like you said! Just be glad that you are feeling better!...
Hi Elaine- Recently I was in a really bad flare and finally agreed to take prednisone. I was kicking myself for not trying it sooner. I also take Asacol and do either Canasa suppositories or Rowasa...
I have also gone back and forth about prednisone, trying Asacol, Enemas and suppositories. Suffering on and off the whole time. I got a crazy stomach virus back at the beginning of January which...
Its kind of unbelievable how hungry I am. Yesterday I think I just kept eating everything. This is my first time I have been on prednisone and I do feel a lot better. I did just lose like 12lbs with...
I tried going Gluten free for a while, Gluten seems to pop up in so many foods. I was kind of into this blog( you can google "Gluten Free Girl") which had great recipes and ideas etc. You may want to...
I am having a bad flare right now but do need to leave the house now and again to do errands, pick up kids etc? Does anyone wear adult diapers? Pads? Sometimes I keep my sons diapers handy ( he is 20...
I actually feel better when taking birth control pills. I went off of them and before I was to get my period each month the "D" was bad because of all of the cramping etc. . I also think my hormone...
OP -Here. I guess you were right to whoever said I probably should have been on Asacol the whole time but the gastro says that my colitis is in the last 8 inches of my colon so he is not so sure that...
I am new to the board ( well I have been lurking for a while). I was diagnosed with left sided and proctitis about[b] 4 years ago. My doctor calls my case "mild". I asked him if it is so mild then...