Hi everyone, It's been a good year that I have been off this forum, but I have returned to ask about a nagging issue that's been going on with me. Here is a little back story about me: I was on...
Found it! Just ordered it. Here is the link for anyone else curious: http://www.theibdlife.com/access/...
The first option wont work for me as I'm in Canada, they only have US options. I joined the CCFA and have not seen anything about a card? I typed it in their search bar too, nothing came up....
I've seen people posting about a Medical Alert Card that explains the need/rush for bathroom access. Anyone know where to get one? I know a few people that have them as well but they don't remember...
Great, thanks for the info! I will definitely be mentioning those things....
Has anyone here ever had laser eye surgery while on Entyvio? I'm getting the procedure done in early July. Haven't discussed things with my Doctor yet, but was hoping to hear from people who might...
Hey everyone, I just wanted to share with you a Vlog that a friend of mine has recently started called "Party Pooper". She talks about her struggle with Ulcerative Colitis, gives tips, shares...
I emailed the person above, and gave her the contact info. While it didn't help me, I still keep in touch with a few other people who have UC and they swear by this treatment....
Thank you! Great advice!...
That's for the tips guys! Look's like Costa Rica or Panama will be my go to spot. I'll be bringing protein bars, and sunflower butter with me to snack on in between hot meals. Along with bottled...
I'm looking to go on a trip, and want to go to a place where it would be a safe diet, most of the people speak english, and isn't too far of a flight! I'm from Canada. I was thinking Panama, Costa...
Quick question about remission. I know everyones different, but those of you who are, can you eat anything you want? Have no gas or anything? I'm trying to figure out if I'm in remission or not. I'm...
Hi everyone, I'm currently on 4 grams a day of Pentasa. Going to the bathroom about 3-4 times a day and it's usually looking pretty good (especially recently since I started taking turmeric). Just...
Canada Mark - I'm in Canada as well, thanks. I'll have to go grab some!...
Canada Mark - Curious as to which brand of Cod liver oil you took that has a vitamin A source that high? Do you have a link?...
I think it's helped me. Took about a month or so. There were other things that I changed so it's hard to know if it definitely was the GSE, but I'm pretty sure it was....
Interested to hear your results! I had the Ubiome test done as well and my bacteria was off so I started GSE about 2 weeks ago, can't say I've noticed any improvements thus far. It may be a little...
Thanks everyone :) I'll grab some peanut butter and almond butter this weekend! I picked up some pumpkin seed butter the other day. Anyone try that one?...
I was just curious as to what you guys eat for nut/seed butters that are easy on the gut? I was eating cashew butter for a while, but I became allergic and was told to switch to sesame seed butter. I...
Great, thanks for your advice :) I looked up some old posts and I ordered the same Grape Seed Extract, it should arrive tomorrow!...
Well I got my UC from antibiotics (Accutane actually, I'm in the lawsuit against them) - so I doubt it's from eating healthy! Here's the veggie shake I eat:...
People with UC tend to have high Firmicutes and lower Bacteroidetes. I don't really think it's from diet. While I generally have a pretty strict diet, that's only 70% of the time. I still have cheat...
It's what sits with me. I'm an athlete so I try to get around 3000 calories a day with lots of protein, and thats the best way to do it. Veggies don't sit with me. I can't eat quinoa of potatoes...
Thanks guys. I did some searching on the forums and I saw garylouisville had some experience with this an fixed it with Grape Seed Extract. Gary, hopefully you see this post and can chime in on what...
Just got my Ubiome results back. Can anyone tell me what I could do to make these levels normal? Not really sure what it all means, any info/tips are greatly appreciated :) Firmicutes - 83.45%...
I have another question about the dreaded acne I'm dealing with. I was on prednisone for 10 weeks, and have been off it for 10 weeks. The acne was really bad on the back of my neck and face, but has...
It took 3 months to get yours back? Mine has been 8 weeks and they still haven't received it in the lab. I emailed them and they sent me another which I just sent in, I assume the other got lost in...
I was on it for 10 weeks and I've been off it for 9 weeks now. I feel okay overall, but the acne is still awful. I think it can generally take up to 4-6 months to return to normal....
Awesome, thanks for your help everyone! I got sunflower seed butter and tried it last night and this morning. No issues, and tastes just fine :) thanks!...
So for the longest time I was eating Cashew butter 2x a day. Sat well with me, and gave me those calories I needed during a flare. A few months ago I started randomly getting symptoms of food...
Does anyone else have issues with having a connection with someone? All my relationships seem to only last about 3 months. Once the initial exciting conversation dies down, the excitement of a new...
The only protein bars that sit with me are the fermented bars made my Genuine Health. The fermented protein they make is also the only kind of protein powder that sits with me. I usually just eat...
Great, thanks for your help!...
Yes, I said in the original post I'm taking 4G's per day (2 pills in the AM, 2 pills in the PM). They are 1G each. So I guess that's the correct dose! Any idea on how long they generally take to...
What's the dose everyone takes when in a flare? My doc has me taking 4G's a day (2 pills in the AM, 2 pills in the PM). How long does it generally take to work?...
Anyone ever used this stuff? I've got some bad prednisone acne so I mainly got it for that purpose. But it's high in Omega 3's, Vit A and Vit D. It should benefit the colitis as well, just wondering...
One thing that I could suggest that may help you, and that's made things a little better for me (mine isn't nearly as bad as it's been in the past) is taking Vit A drops (10,000 IU/day) and putting...
I was just about to post a similar question. Figure I might as well add it on here since it's pretty similar. I've going threw the same thing, except I've been off prednisone for 2.5 weeks, and still...
Didn't do anything for me...
So I'll be going on Pentasa later this week, just had some questions on what to expect. I've been in a long, bad flare for about 3 years now. Currently going about 10x a day. I'm on a study drug...
Hmmm interesting! I've heard of Colazal but I didn't know that it didn't have the coating. I don't think it's available in Canada though, from what I can find online. Anyone in Canada have any...
So I've been on both Mezavont and Asacol before. Both made me break out in horrible acne. I may give Pentasa a try and see what that does. Has anyone noticed a difference in side effects between...
A few years ago, I had the same results when I took Imodium. Made me much worse, no idea why. But I've recently started taking it again and it helps a lot. I only take it a couple times a week when I...
I'm going through the same thing right now. I was going about 9x a day, semi formed. Started prednisone and it went to 12x a day, with blood, all liquid, mucus, and pain. I stayed on 40mg for 2.5...
Well I was on it for 8 months prior to starting prednisone. I went from 20+ BM's a day, crapping my pants, not being able to leave the house, to 9 BMs a day, no accidents, having somewhat of a life...
I'm currently in a study. The drug is similar to entyvio, and I've been on it for 8 months. Like I said, I was feeling a lot better than I have been prior to the study so I figured I just needed a...
I got C-diff tested 2 weeks ago before I started prednisone, came back negative....
I've been in a stubborn flare for a few years now. I got it to a manageable level of 9 BM's a day, semi formed. Was able to go out occasionally and have a bit of a life. I haven't been on prednisone...
Just thought I'd add this in and hopefully someone can chime in. I've been in the same boat as you before, at a high dose of prednisone I seem to see little improvements, and then it plateaus after a...
I feel like I've been asking a question on here almost everyday this month! Sorry, but here comes another. I'll be going on prednisone shortly, and it's the first time being on it in a year and 7...