Benzoin Compound sounds scary... where do I find this? I need to try Salts yet otherwise I have tried EVERY other wafer possible. I am not having an allergic reaction to the tape collar of the...
So in April 2015 I started to develop a rash under my wafer. I used ConvaTec moldable convex since August 2014. By May I couldnt keep a bag on my skin for longer than 12 hours as my skin under the...
keep us posted NCOT! xoxoxoxo *hugs*...
Since having my colon removed and then ileostomy made permanent and having rectum out (sewn up, Barbie Butt) my UC is obviously gone.... my extra-intestinal symptoms of UC are mostly gone too... they...
Sunny - My gastro called me two days and the day before my Surgery Consult cuz he knew I'd call and cancel - bahahaha - smart man!! I almost did the second day before - REALLY almost did... As for...
My surgeon was Madison. Head of colorectal at UW. Honestly just look at their profiles and pick someone with experience. Ask how man stoma's they have made. Ask how many pouches they have done. Just...
Chrissy - Pretty sure you know my story but I'll give a little overview of it again. End of June 2013 started symptoms (after quitting smoking.) July 12 2013 diagnoses UC. November 2013 quit...
1.) Best person to get advice from about sores under your wafer/around stoma is a WOCN nurse, or stoma nurse. Someone who can show you how to use products and suggest different ideas. It's hard to...
Yeah my friend gave me a bag and one of the convex Hollister rings - so I could try it. Her filter seems to be working awesome - for days. Though I've also had suggested to try the "Diamonds" packets...
Northeast Wisconsin, USA. GI in Appleton, WI. Sundeep Sohdi - great teammate against IBD! Surgery at University of Wisconsin - Madison Ileostomy and Colectomy: Head of Colo-rectal Dr Harms...
just a quick note from me after reading 75% of your post and some of the responses - - I just got back from an intense workout class at the gym - wow, really kicked my butt! I'm 9 months out from...
CRAFT FOAM!! YESS!!! Thats EXACTLY how I felt about the closure. I have a friend who is a newbie and loves her Mio that she tried about a month out from surgery. I have tried Coloplast and didnt like...
narcotic pain killers can slow everything down too :( hope things get better soon!!!...
Just throwing it out there that I love not having a colon ;) Good to see you are still around and feeling okay Thoreau!! I've obviously missed something as you are now off Remicade and all the pain...
Didnt read all the responses... but did want to add: during the worst of my flare my husband had a theory that eating absolute crap would not bother my guts (I was having mostly broths and mashed...
After I had my colon removed and ileostomy created.... no food was going through my remaining parts. I had a little bit of colon and my full rectum and anus intact. Within 2-3 weeks all of my...
Even with my anemia mostly in check - I napped constantly while flaring! Exhaustion is something I still deal with now but I blame depression....
LOVE it!!! YOU ROCK!...
My longest flare was June 24th 2013 to July 7th 2014. I never went into remission once my symptoms started. I got my colon out! :D...
I didn't get to read all the responses... but have you tried wearing an ostomy belt at night? For me it holds the wafer very very snug to my skin. no chance of poop creeping underneath and blowing...
hope to hear more soon!! Hope she is having a good recovery day today :)...
You're bag covers will meet you at home! I just kinda picked a few and sent them off! Want you to have something to come home from surgery to. :) I'm off work Thursday and Friday if you want me to...
hope we get an update from you!...
Some people never have issues with their rectum after having their colon removed. A lot of the time when people have surgery they are too sick to get the whole thing done at once. I had a subtotal...
Honestly you don't need to bring much. Almost everything is provided for you. I brought: zip-up sweatshirt (doing laps around the hospital gets cold!!) fuzzy thrown blanket two stuffed animals cell...
NSSG - omfg I love you! You have gotten so knowledgable.... LOVE IT!! As for the OP - I agree that you should be suspicious if you found a surgeon willing to do a partial removal for UC. It's rarely...
Oh goodness. You're GI care sounds as terrible as mine was at first. If you are flaring you need to see a doctor until someone helps. I was diagnosed by a colorectal surgeon after having a...
also: if you know certain foods are aggravating your symptoms... stay away from them!! lol. It sounds like a no brainer... but... coffee is soooo delicious and wonderful. When I was flaring, if I...
wow - lots going on in this post and replies. :D I just wanted to add my two sense... hehe. As for how to survive through the New Year - I believe alcohol was one of the triggers for my Ulcerative...
I just started a tricyclic antidepressant. I was on Effexor when I got my bag... not good, since it was extended release and ending up in my poop bag and not in my brain! Ahhh! That was not a fun way...
With everything else seemingly under control, I agree that it doesn't sound too serious. In my not expert opinion, I say hemorrhoids. And don't stress out too much about it, don't want to get thrown...
Awwww - LOVE IT!! I have discovered there are many readers who aren't even members... I know that before I joined I read everything and anything on here for a few weeks before I was ready to start...
I have Guttate Psoriasis. I was covered from my breasts to the tops of my feet by December 2008 after I was diagnosed in the summer of 2008. I tried Taclonex ointment and had samples of a steroid...
I chose the same, to keep my bag and close up the butt! Barbie 4 Life! Bag Lady 4 Life! wooo!...
I've been sleeping naked for the last few months... and I'm a tummy sleeper! I LOVE sleeping naked. No issues for me thus far. I wear a two piece convatec for ileostomy and sleepy naked, on my tummy,...
Hmmm... With your disease I can't imagine you'll have too much trouble with just an anus. But I believe you will need regular anus-scopes once you get older... just like anyone else would need...
Barbie Butt is actually APR surgery - Abdominoperineal resection Proctocolectomy takes out the procto and col - bye bye colon and rectum! So Excited For You!! I'm going to have to come down and...
NSSG - you know I got pix if you want to see! lol I have pics of EVERYTHING! lol. I have a really cool shot of my uterus/ovaries from my last surgery. And a CT scan from after that you can see the...
yes - I'm absolutely amazed at my healing :D amazed = surprised as heck...
I'm 6 weeks post op today. And my butt wound is basically completely healed. :shocked: How is this even possible?! I do drink nutrition shakes and even added protein powder to my coffee. I used gauze...
I have no idea what a barium enema is like through the stoma - but I can tell you a severely inflamed colon filled with barium is the most painful thing I think I have every experienced in my life....
yayy!! Good good good! Always important to have educated people helping you :)...
I've had my ileostomy for 5 months. On November 5th I went in and had my remaining colon/rectum/anus removed. I was having major Ulcerative Colitis symptoms in my remaining parts. There IS a risk for...
I didn't read the long responses, but seeing who they were from, I bet they were excellent. Also important to see NCOT's post because she does have the opposite feeling of a lot of us, and you NEED...
Hey guys, posted a video about Support Groups and personal support and our (usually) accidental tendancy to want to "one-up" eachothers diseases. An actually informative and helpful video from me -...
My butt is all stitched up. so I just have gauze to catch the yellowish stuff. my husband has been taking pictures of it for me every couple days. I see my surgeon for follow up on Thursday. Im...
My bed goes into Zero Gravity position... oooh. I'll have to try that......
Few questions for those who've had the APR surgery. I know some have had it at the same time as colectomy so our situations are a little different, but these are pretty general questions. 1.) How did...
They didn't set me up with home care at all! I even asked for it. I had it last time. No discharge. I keep gauze on it. And have a padded thing in my under pants and change the gauze when I pee. I...
Hey guys been having a couple bad days Yesterday I "napped" for eight hours. Missed two pain pill doses. And did not eat for the day. It was not a pretty sight and my husband was expected home for 40...