I need to do more. I just feel so exhausted when I'm in a flare. I'd imagine that is really based on how good you feel and what your body is telling you. If I can manage it, I try to do stretching at...
Either way coffee is so off my list. I've built an aversion to it now. Pb4...that is something I am definitely coming to terms with! I'm not sure why it took so long... Quincy, by the time I saw my...
Hi! I just wanted to tell you, the cramping feeling was the very last thing to go for me in that first big flare up I had. Suddenly one day, I realized it had been a few days. The psychological...
So after my last post my doc upped to 4 lialda a day and I'd been doing great. However after having no bm yesterday and picking at thanksgiving dinner, I felt so bloated and icky I opted to drink a...
I missed my period for the first time ever the month u started taking it not conting pregnancy. Man was I freaked out! But since then its been regular...and at the time I was so ill I was starving...
Yes I quit the lactose as of today and am watching my diet more carefully to try and put a halt to it. Not sure the max dose of lialda....will have to research... I've been on 2 a day. I think last...
Any luck?...
So after planning to not be one of those people who disappeared when she felt better I did just that. Went into a nice denial period because I did and ate whatever the heck I wanted and felt...
I got nausea frequently when I was on it...it did seem like each time I tapered there was a day or two. Unfortunately there was not much that helped in my book......
I looooooove your attitude so much! You are an amazing person! Glad you are doing well!!...
You have a lot of good advice here...especially the patience. I wanted to comment on how long the meds take. I was started on 20mg prednisone and 2 lialda daily for moderate colitis. It did not take...
Rice crackers were awesome for me....
Oh god, I never even considered a lack of toilet paper lol! I am so dang lucky I guess....learned to not be so complacent too haha! One of them knows, though I'm not sure she knows what it is....
It took a loooong time for me to hit remission (atleast I think thats where I am) with steroids...and I had started on a low dose so I understand frustration. It just gets a teeny bit better...
Yeah I joked about the outdoor bathroom then quickly changed the subject lol!...
I don't feel like I have much useful to say...I haven't even been diagnosed a year yet, and after a really bad start spending a month in bed, I'm living pretty normally. I just wanted to say a prayer...
So...months with manageable symptoms, not trouble with food. Not normal but not life intrusive symptoms. So I get a promotion...have to travel in the car with my bosses for a big meeting hours away....
Here's to feeling better!...
Ugg...I hate hearing that it has been so bad for her...but I hope this goes well for then and gets her back to feeling human and living life....
Capris as a happy medium?...
I've been out of the loop for months...what's going on with her? was so hoping to log in and see good things happening for her....She is so nice.... :sad:...
This happens to me too! I was at a businesses lunch the other day, went before we left then 15 minutes later standing a line in a store with no bathroom and thought I'd have an accident! Funny thing...
Yes!!!! Good news!!!...
Hey just wanted to say Don't despair! I was diagnosed in December, and many probably remember me as the big dramatic whiner....I was so freaked out and certain my life was ruined. I did spend a month...
Oh man! So sad to see you still struggling! I have no input at all on the subject unfortunately....just popped in and wanted to say I'm still rooting for you!!!...
Awesome!...
It IS really weird to realize that! Somehow I've so easily forgotten how miserable I was and I forgot to take my meds some days until I gotta go then I'm like oh yeah, I need my meds today. If I'm...
Oh no! I'm so sorry! Fur babies really are part of the family...some people just don't get that. It feels like they will be here forever and then they are gone.......
embers- Oh no!! I was so hoping to find you well! That sucks so bad! And that vanco is rough stuff! I hope it does something for you soon....it worked pretty quick for me. I'm sorry no one is helping...
That's so interesting to read. My mom thought she was sensitive to gluten but came to find out she could eat organic wheats and grains just fine without any trouble........ I need to get on that...we...
Hello, just checking in. I don't want to be the one who disappears when feeling better lol, I've just been insane busy...IEP season at work. Down to 10mg pred and doing....ok. A little crampy and...
I just wanted to say I can't imagine being in your shoes. You are so strong! You are getting through it and doing what you gotta do! I wish you had someone who could be there for you.......
So....prednisone...can make you completely skip a period yes? I know last month it lasted like 12 hours...but I was in the hospital and pretty darn malnourished. I'm fairly healthy right now but a...
Well you motivated me...I did a short body rock this morning...and let me tell you its very modified and not pretty...between being so out of shape and the kids wrecking havoc it was short and...
Oh no. I had this image of some persons lil outhouse..the cute lil decorative ones you see sometimes....and you just run up, poop and make a mad getaway lol!...
Hey! I'm naturally apple too...it's always sucked because my frame can be super thin and then I have a round belly even on my best days. So, I haven't started on the pred weight yet BUT what helped...
Omg my days are off lol....today was NOT Monday lol...I shall say I hope it goes OK, and you just had an off day! And you get useful news!...
Ugg. I hope everything went OK!...
So they stopped the prednidone while you were still bleeding and having urgency? Or am I missing something from being gone. I kind of wish I was tapering that fast...but its going to be flow even...
Lol! Never a fan of watching but boy was I always a fan of the goodies! If we had participated this year there would be no resistance!...
Toomuch- honestly I'm so tired right now after work and kids I just crash in a mindless puddle lol! I think about popping on but then I'm just asleep! Will probably see a resurgance of me here as I...
Aw man...I came looking to see how you were doing and am sad to see its not so good! Ugg! Hugs!...
Yay! I'm so nervous though lol....I've been feeling so good except for fatigue and some butterfly sensations. Been working normally and eating mostly what I want too. I'm trying to be...
Yeah that freaks me out and confuses me....because things got worse when I first went on Lialda...better when I went to Asacol HD...and now worse on Lialda. Drugs are stupid....sucks that we need...
In the worst part of my current flare that was me. I started taking zofran before my bad time of night, but it didn't really improve until my symptoms improved. Half the time it was so bad I'd just...
Give him some of those sugar free gummi bears on amazon in a pretty little container as a gift muhahaha!...
Well that's interesting to know. I haven't used it in forever since it seems its hard to trust what you are getting and its hard right now to afford the organic. Its a little over my head though....
I have the same thing going on...not salty but kind of bitter and makes everything taste really bland. I used to love apples...now they have this crazy taste. Its driving me crazy because it makes me...
Ugg....I'm on my phone and I see I'm typoing like crazy...sorry about that....
I just got a call and apparently my appointment is tomorrow morning...so I will see him tomorrow in person. Which is good cuz I just thought I had to go but just had a bunch of bloody discharge....