Thanks...I've had this for 8 years now and there's so much I don't know. I wish you the best too!...
I am waiting (on funding) to start a new biologic - I think it's going to be Stelara. I asked my GI if I could just consume clear fluids as needed to calm down my bleeding. He thought it would be ok-...
Another thing that can cause a person to wake up in the night is low blood sugar. Have you tried a before bed snack?...
I watch these webinars from Crohns and Colitis Canada every week. They've been collaborating world wide to understand this virus from an IBD perspective. They provide information on what level of...
Thank you everyone for taking the time to reply. You've made me feel much easier in my mind about trying one of these systemic biologics. I wish everyone wellness and good health. My signature is...
Hi, I'm 55, have severe/moderate UC involving my whole colon. My GI says I did heal some with my 2+ years on Entyvio but all my tests, blood work and symptoms are saying it has stopped working. So...
Hi UCsmammy, I haven't been on the forum for some time but just happened to pop in tonight and I see your question. I've used a diva cup to manage my period for years (maybe 8 or 9). I was diagnosed...
OG, I read over my message after I hit send, then felt bad because my intention was to just tell you to hang in and don't give up, not to have YOU cha cha your pom poms for me *_* Thanks though, for...
Hang in there Octobergirl. My UC pretty much came on like a slap in the head and my whole colon is involved too. I've been in a flare for over two years and tried a few different ways of eating . I...
A bumper sticker after our hearts! http://www.amazon.com/SPEEDING-REALLY-Magnetic-Bumper-Sticker/dp/B000MG9TNQ/ref=sr_1_1?ie=UTF8&qid=1402017286&sr=8-1&keywords=speeding+poop+bumper+sticker :tongue:...
Just a couple of questions, Mark. Can you say which brands of oil you are using? I never followed the wild oregano oil thread(s). Is that just the product you buy at a health food store? I've seen...
I took CC Herbal for a few days with very good results. (less urgency, less blood, less frequency). I don't feel comfortable with the product and sadly, I've decided to put it off until I get some...
I'm assuming you're taking this CM? How much, how often?...
Is there any concern about washing out any good bacteria one has managed to repopulate their colon with? I've wondered this for awhile, for those of you who have improved (maybe moreso through...
These actually look like a decent 'treat'. Thanks for the heads up I'm going to keep an eye open for these....
The reason your yogurt is sour is because all of the milk sugar (lactose) is used up by the fermenting process. This makes SCD yogurt 'legal', and easier to digest. Regular (store bought) yogurt is...
Me too. I'm two years after diagnosis and my GI suggested another look to see what's going on. I haven't achieved remission yet though. My symptoms now are quite a bit worse than before my diagnosis....
Is anyone else wondering about this company? Is there anyway to find out if the contents of the bottle matches what is claimed to be in the bottle? I decided to try this stuff because of the results...
Thanks for your replies, my GI can't spend enough time with me to do a good job but there are no alternatives in my small city Canada. I guess I could move but that's not really feasible either. I...
Had a GI appointment yesterday. He was two hours behind - again. When you ask he apologizes but he continues to run his clinic this way. My shortest wait in two years was 40 minutes Anyways I asked...
Before my symptoms showed up full time, I had blood in my stool during my period for two cycles for sure and possibly 4. When I mentioned this to my GI, he played dumb like he'd never heard of such a...
I looked into this a bit when I was first diagnosed and pretty sure that a US trained DO (doctor of osteopathy) is just as qualified as an MD but they have different approaches to heal. There are...
That's really good news. It doesn't work when the cure is worse than the disease does it? So what's next for you?...
This sounds like good news and it will be just a short time and the technology to improve the images will follow. This seems less dangerous than a colonoscopy (perforation and contamination) plus...
This one is from Judy2, moderator on this forum, "I used to do that, but it gave me explosive bloody diarrhea." BRILLIANT!!!!!...
"I used to do that, but it gave me explosive bloody diarrhea." How great is that!!!! I need to add this to the favorite quote thread!!!!...
Thanks for that. I wish I would comprehend the science behind this more so your comment is helpful. I hardly get any gas at all. Not complaining about it, but maybe a clue, eh? I sorta stopped...
Would you guys just back up a bit and try to explain this in less technical terms, please? I've been taking Mesasal since being diagnosed two years ago. I was thinking about talking to my GI about a...
After reading all the positive stuff about these herbs, I've decided to try it too. I ordered CCHerbal a couple of days ago and just got an email that my order has shipped. I'm both excited and...
My favorite RS starch food by far is sushi. Love love love it. I feel so good after eating it. I also eat potato salad - my version is a German potato salad with an oil and vinegar dressing. Next is...
I think it's a good idea to modify any diet to suit your personal n=1 experiment. I eat a paleo diet modified with "safe starches" ala Perfect Health Diet. Chris Kresser's "Your Personal Paleo Code"...
Women are like tea bags The hotter the water they get into - The stronger they become...
I can't help you with your question I haven't tried that drug but I'm sorry to hear you're getting worse. I ended up in the hospital last year because of my UC and was pretty scared. I made a turn...
There sure is nothing dignified about this disease is there? Most bum holes are a bit puckery with some folds, I would think totally smooth is the exception. That being said, you know better than...
Thanks for the heads up, Mark, I'll likely try this. But, (isn't there always a but) those aren't the best ingredients so I hope I'd be able to just eat it once in a while. I'm craving a good ol' BLT...
Don't be mortified j2h, I've replaced my toilet seat 4 times in two years because of the disgusting stains. I used to treat myself to padded toilet seats in my pre UC life because I was up to pee...
I'm just starting to have no bleeding on some days. It's always an unpleasant surprise when the blood shows up again. I definitely attribute mine to food. The biggest culprit being dairy at the...
Back in the 30's and 40's mortality rates were around 20% for UC Now I think I've read it's 1%. No doubt steroids have played a big role in that. Lucky us!!!! Seriously....
Awesome, I hope you let us know what it's about. I live 8hrs from Toronto so it's a no go for me....
Yes, definitely start taking VitD3 in a flare! It's so important! My D levels went down to 18 when my UC symptoms showed up. I supplement 5000 units/ day now but I also get my levels checked every 6...
I'm a bit envious of the knowledge and control you have over your UC. I'm sure you make your Drs day interesting What blood work values do you track and what are you taking to support your adrenals?...
Hi Peety, That's so awesome that you're doing so well and found a treatment that works for you. I have to ask which futile approaches to treatment you mean? Are you referring to drugs like...
Yes I have, some kind of pure concentrate with no sugar added. I dilute it with water and it's a nice change from always drinking water It didn't make any profound difference to me but it's...
I'm going to give l-glutamine a try and I'm hoping to get suggestions. Can you tell me What form you take the dose you're taking (is it a good idea to ramp up? Or go big?) What time of day. Divided...
I'm so thankful for the care I got from my GI last year when I ended up in the hospital after Christmas, I was one sick chick and he helped get me back on my feet. What is absolutely indefensible, is...
I totally agree with you aguywithuc. Commercial milk is not even the real deal besides, it's heated up destroying important enzymes, all separated in some crazy way and put back together. These...
I'm assuming that cliff is auto correct for c-diff. :-) If your son is just recently out of hospital, he is likely eating soft foods, so theres not a lot to buy him food wise. You could possibly buy...
What a predicament but bottom line (no pun intended) is when you don't know, you don't know. Take a breath and an empathetic hug from everyone here. I'd hate for you to lose such a close friend just...
Is the effect of 5ASAs more or less immediate? If so then a journal would help for sure. I was under the impression that the effects of 5ASAs builds up over time. If it is an immediate effect ( like...
This was sent to me from another UC forum. I'm putting it here in case anyone is interested. Participate in a paid interview and help improve ulcerative colitis care! Self Care Catalysts, a health...