Sara - I'm so hesitant. I have too much on my plate to be glued to the bathroom. I wish I knew if I could get covid without long-term issues. But, the consequences of being wrong on that bet, though...
I have not had covid that I know of. Had the Moderna vaccines in March/April this year (caused bad flare), but the antibodies are already gone. My intuition says to skip the booster due to flare...
What are the safest antibiotics (to minimize flare risk) to help get rid of a persistent upper respiratory illness? I've been sick for about a week now. No or low fevers. Feel absolutely rough. Its...
My GI doc and his nurse are mad at me. I was in a complete remission without UC meds for 6.5 years. The only meds were lomotil (IBS issues), Tramadol (long-term pain syndrome began when on Remicade),...
Hey TT - Pains: They've greatly diminished, but it's taken nine years. It's been hard to know what was real pain, what was withdrawal in-between Tramadol doses, and what was central-sensitization...
Hey Sara, I thought I was on the mend. Two weeks into using Uceris and Pentasa most all my colitis symptoms cleared up aside from slightly looser stools than in remission. At three weeks in I was...
Yes. Those came weeks after the vaccine and seeing blood in stools. Started to improve some around week four after first moderna shot but then got second one and it all spiraled from there. Lomotil...
Sara - Sorry for my very slow reply, but how are you doing now? I was going to ask if you tried Entyvio yet, but I saw on a signature of yours on another post that you did and it didn't work :-/. My...
Thanks everybody for the replies. I've been struggling lately didn't see the notice that there were more replies to the post. I got scoped about ten days ago. I have active UC in several spots in my...
It's been YEARS since I've been on this forum. I went through the full gamut of medicines and almost got j-pouch surgery. But, at the last second I went gluten-free in late 2014, and for the first...
Joey - Have you had any other recurring illnesses or anything to go off of? When my pains were starting I was getting sick often. I'd gotten an upper respiratory thing twice the month the pains...
Hey Joey - It's been a loooong time since I've been on this site. Sadly, I still have the chronic pains. I'll go into a little detail for you in case it helps at all. I did stop Remicade. My last...
Update here: Stopped my tramadol taper once I got down to 3 pills per day (50mg 3x daily). Was able to hold steady, but noticed significant sluggishness that didn't seem to go away, related to being...
Thanks to both of you for the responses. Dropping 1.5 tablets (a day) was way rougher than anything I'm experiencing with these .5 tablet drops, for sure. I think 3 tablets a day will be good, then...
Down to 3.5 Tramadol pills a day (from 6). Don't notice significantly more pain -- which is great news. Having more senses of feelings -- not sure that I'm depressed -- more that the things not right...
Thanks, Stray. Tramadol causes a lot of highs and lows for me in the 6 hours between doses, and if the pains I'm now experiencing are more related to withdrawing in-between doses then I'd like to see...
300mg daily -- (2) 50mg tablets three times daily along with tylenol at same time....
I should mention that I also get very sharp pain in some joints -- like elbows/knees if used heavily in strenuous activity. Otherwise the only joint issue is a "washing-over" pain that may show up...
Thanks Straydog. The pains are a diffuse ache that has felt like a mix between being poisoned and growing pains. One pain doctor said these pains do happen to some people taking meds like Remicade,...
Hey all -- I'm an infrequent poster here (for now) -- but have a couple questions. Questions: 1) Is it normal to have pains as you taper from Tramadol -- that are withdrawal related? 2) If I am...
Content -- if you ever come across a doctor who really knows their stuff about Remicade causing pains -- anything else you can find out and relay to me via the "Stopped Remicade, So Sad" post we had...
NSSG -- this makes me smile :-) I have been very busy in my life, and if I post on the site it's usually on the Chronic Pain forum. However, I stopped here today and I was surprised but glad to hear...
Hey Content, Stud... I did reply on the Chronic Pain forum. So, with my UC... I had a colonoscopy in late March this year, which is about 17 months after the last of the Remicade left my body. I have...
Content -- great to hear from you. :-) I have better and worse days still, in regards to pains and frustrations. I'm pursuing career things at present, which I need to do. It's been almost two years...
Don, sorry to hear that things haven't worked out even after trying things. That's the way things have mostly gone for me, but I was able to notice a difference with a teaspoon of the turmeric powder...
Hey Don -- while we wait to see Candy's response I was just going to ask a couple things. Have you ever tried Turmeric Root Powder? And, have you ever tried eating Gluten-Free? I have a different...
Candy, I read your reply a couple days ago and really enjoyed/appreciated it. It sounds like you've been through a lot of challenges in your life. It seems like you're the type of person to keep on...
Hey there, I'm replying to this a week or so late. I very much appreciated all of the replies. StopthePain, I'm 31 years old. I've been through a lot of rough times in the past few years. I was...
My father-in-law has this issue (burning mouth syndrome). He went to Mayo for it even. I can't recall exactly what they said, but something is telling me they suggested treating it with hot sauce. If...
Platinum, good to hear your perspective. I haven't pursued any type of work accommodation. I'm aiming for business ownership again, due to its flexibility. I was able to work hard at my last...
Thanks for your thoughts 1 day. I think I like just hearing that I'm not the only one needing some more balance just to get by. I do desire life balance also, but my body demands it whether I want it...
How many hours per week can you guys handle working? I've been looking at companies to buy that allow time off and flexibility when feeling unwell. Had a job offer yesterday -- but it was 50+ hours...
Thanks for the replies, they're much appreciated. I do need to find a way of getting a majority of what I'm aiming for without overwhelming myself... perfectionism and chronic pain don't mix well it...
Sometimes as I try to succeed in my life with work and personal relationships, I reach a point of feeling like I'll never be good enough. I'm really smart, but as my body limits me I have times of...
Thanks for the listening ear. :) I'm finding that some balance, as well as strategic honesty... helps. I'm trying to choose only so much to handle any given day, and then be honest that I may not...
Hey all. I've just started networking to build a team of advisers -- getting ready to look for a new company to buy. Let me tell you; these lunches and coffee meetings are hard on the days I'm really...
Hey all, thanks for the messages recently on this thread. I'll consider all your suggestions. I'm kind of leaning towards just taking pain meds (tramadol) this year while I get a new business bought...
I knew you'd point the obvious out... but can you explain why exactly I should see a PT? I don't have any broken bones, or torn/bruised/stretched etc... areas. As far as I can tell my issue is...
Hey js, thought you disliked me after I stood up for gary on the other forum once back a while. Didn't hear from you after that. Did you ever read that it turns out my dad likely has either...
Hey guys/gals. Thanks for the replies. I seem to be faring okay on LDN; not a crazy good improvement yet, but hanging in there. I appreciate hearing of your different experiences. Right now, I'll let...
Skeye, thanks for the reply. Question: How did things progress for you after starting? Were results quick, or gradual? I also wonder about taking a small bit of tramadol 12 hours after taking LDN,...
LDN -- is a pain management strategy for me -- in the short-term, at least. Really it's more of a "see if this will kick my body into helping heal itself" plan. My pain doctor prescribes it for fibro...
Hey all. I'll keep this short: -I was on Tramadol for 3+ years to help with chronic diffuse body pain -- pain that was likely triggered by an infusion drug. -I have come completely off Tramadol -- at...
Thanks, Stray. 1. I AM super sensitive to meds. Not all, but a lot. I did homeopathy once, where critics argue that the "remedies" you take consist of nothing. Well, one of them threw me into bad...
Hey, thank you to both of you. I guess I missed putting a subject in initially -- so I just did that. Pitmom, I actually am taking tylenol... :-/ . Mayo really wanted me off of it. Locally, the...
I should note, that Mayo told me that the pains could have been triggered by Remicade... there is just no way of knowing....
Hey all -- I know I'm not regular enough to know you guys well. I've been struggling and just trying to take care of responsibilities. -I have chronic mystery pain (my diagnosis -- after seeing 11...
NSSG, lomotil is essentially a strong form of immodium. I don't understand it exactly, but it has an opioid part to it (small). To be on LDN I have to be off any medicine that has anything to do with...
Thanks. Yes, I am talking about the local pains associated with my colon -- that I'm used to during a flare-up....
I'm on a gluten-free diet, and have been without any meds since stopping Remicade over a year ago. I was taking 6 lomotil daily to deal with IBS issues before I found some diet changes that helped...