I've been dealing with constipation with seven years, although not "normal" constipation, as I go 3-6 times a day but it is a solid 1 on the Bristol stool scale. My doctor has me try all kinds of...
This sounds somewhat like my experience with Remicade, especially the constant sinus infections. That is part of the reason I stopped Remicade in 2015 (and I was building up antibodies). With...
Hi all, Just wanted to share a quick update. I had surgery (lumpectomy) last month to remove the tumor plus five lymph nodes, one of which was positive. I'm still waiting to finalize my treatment...
Thanks all. I've been on this board for 14 years and have always valued your support so much. I have a MRI tomorrow and my "tumor board" meeting Thursday, so I should have details on the staging of...
Hi all, I was wondering if anyone had insights/resources related to whether/how cancer treatment affects IBD. I recently switched from Entyvio to Stelara (have only had my first infusion). This week...
My skin is frequently itching, but I get random rashes/bumps and I'm prone to bug bites. Thanks for sharing about saccharomyces boulardii; I'll look into that....
That's so weird. I have that sensation too with my hair, but I really think it's my hair most of the time (I also shed a lot). I get a lot of muscle spasms/tics as well, but it's annoying because my...
Hmm, I get a sore throat pretty frequently but I also have bad post nasal drip and I've attributed it to that. Any immunosuppresant increases your likelihood of getting sick, so maybe you're just...
That's awesome! I started getting the shots but it hasn't touched my fatigue. What did the creepy crawly feeling feel like?...
I've been on Entyvio for about 2.5 years. Just got results back from latest small bowel endoscopy and I am actively flaring. We talked about switching to Stelara but instead we're going to try adding...
If infusion day is Day 0, then your next infusion can be on Day 28. So you want a full 28 days between infusions. I agree with Lab, though, it probably doesn't make that much of a difference but...
Lab, what type of job/industry will you be looking for a job in? There's tons of variation across different types of work....
To echo the others, they should find a GI in the college's area (not at the university, as they typically only have primary care docs), at the very least for emergencies. The distance makes it a bit...
I've had similar struggles with multiple rheumy doctors. When I first started having joint issues in 2009, the rheumatologist I saw thought there was something going on and put me to methotrexate. I...
Pill cams can be very good at finding disease. This is how I was diagnosed in 2006 and I know there are others on this board who have also been diagnosed via it. My GI then confirmed with a...
I have had a similar experience to scifigal in that Lialda is similar to Pentasa for me--it doesn't seem to help at all. I don't remember negative side effects from it and if there were any, they...
Here's hoping for quick relief from the Entocort lamb! And is it just corn or anything that's high fiber? Corn seems to be especially pesky for Crohnies because it doesn't really break down *at all.*...
Remicade caused me to have pretty horrible constipation. I found that magnesium citrate worked much better than Miralax for me. I think the version I've used is this:...
I take Vitamin D, a 30B probiotic, turmeric (as it's an anti-inflammatory), B12 shots occasionally, butterbur (mainly for migraines), and magnesium (especially when leaning more toward constipation)....
Hi Minnie, I know you've been having a really rough time for a long time but you need to keep hanging in there, being an advocate for yourself and working to get better. This disease can really mess...
Thanks all. I realize I answered a somewhat impossible-to-answer question that if any of us knew the answer to, we'd be rich. Part of this is that my flare has been getting worse so the fatigue is...
Even when I'm not in a flare, I deal with significant fatigue that I control in part by taking Nuvigil (I've been taking it daily for 2.5 years now). Last year when I came out of a long flare, I was...
That sucks Bucko. The two times I've gone to the ER for severe abdominal pain, it was because of severe constipation. Both times, I was going multiple times a day so I was quite surprised. Daily...
This is a big reason why I started a low dose of antidepressants in 2014. I was dealing with a Crohn's complication that had everyone scratching their heads and passing me on to yet another...
To revive an old thread... Delta, have you started a butterbur regimen? I am just starting one and was curious if you experienced any GI side effects, especially since you're a fellow IBDer....
I really wish there was an easy fix to this. I would love to take NSAIDs but am pretty confident they were a main culprit in starting my 2012-2015 flare. Tylenol is worthless to me. I stretch, use...
One thing to make sure is that you've had your TPMT level checked. A small subset of the population (myself included) have a low level, which makes you way more sensitive to the enzymes in Imuran,...
I think I misstated my questions NCOT. I was wondering if the reason my CRP has stayed the same/gone up slightly after 5-6 months of Entocort is because the Entocort only acts in the small bowel. So...
I support any cause that involves chocolate consumption....
It's also good to remember (especially when new people first start reading and posting in the forum) that people who choose to be active in an online health forum like healingwell are much more...
When I had my latest colonoscopy in August, it found evidence of acute and chronic disease, mainly in the TI. My new GI (she replaced my old one who left the practice) decided to start me on Entocort...
Respiratory issues were a big part of why I stopped Remicade. I had constant upper/lower infections for the entire first winter I was on Remicade (from October-March) and had pretty constant sinus...
When my Vitamin D levels hit 20, I started taking 35,000iu/week. You might also want to see about getting B12 shots or at least taking a sublingual supplement if you're not already....
I'm exhausted all the time and also have a sedentary job. I totally agree with Habs about moving around. Any kind of protein snacks you can eat are good to space out throughout the work day to give...
If I had to stop birth control, I would seriously consider this. I take continuous birth control and haven't had a period in more than four years because it worsens my GI symptoms and causes horrible...
I just had to withdrawal from running a marathon relay (four-person team runs the marathon so it's about a 10k per person) this weekend because of my health. While this is not nearly as crappy as...
I knew there was a reason I liked stouts! :)...
I feel like beer probably causes the most GI problems for people generally (outside of doing one too many liquor shots). I generally avoid mixed drinks as most of them are high in sugar. I do...
I consistently pass mucus, even when in remission. I've only had minor issues with blood in my stool over the years, but I almost always have some mucus. I don't worry about it too much unless it's a...
He shouldn't get traveler's diarrhea if he takes the necessary precautions. The most important is to not consume any tap water. This includes things like brushing your teeth and ice in drinks. Use...
I'm reviving this post to see if anyone else has experiences with the Daith piercing. I just got one done and am hoping it'll provide some relief because the Botox shots no longer seem to be helping...
I quit Remicade after two years because I saw minimal benefit, lots of side effects, and was starting to build up antibodies. My GI would have wanted me to keep going a few more infusions to see if...
The guy I was dating when I was diagnosed broke up with me 6-8 months later, in large part because of how the disease was changing my life (looking back 10+ years, I can cut him some slack as he was...
I'm not sure how many doses of Miralax you took but I know myself and several others who have had constipation issues took it every day for months (1-3 doses) to try to ease constipation. Miralax is...
I saw this making the rounds yesterday: Bills lineman Seantrel Henderson cites Crohn’s disease for marijuana use in suspension appeal...
I'd also give it at least one more chance. My post-infusion symptoms got worse over time and I generally felt crappy the day after an infusion so I always tried to schedule them on Friday so I didn't...
Generally, I would have expected to see some improvement by now, definitely by two weeks in. One suggestions is to keep a symptom journal to more accurately track symptoms day to day. This would give...
After the first couple infusions, I had to take Benadryl because I would quickly start feeling sick. It's been a couple years so I don't remember if my joint pains got worse on Remicade (I started...
Crohn's is tricky in that it can manifest anywhere in the GI tract (mouth to anus) so there's a lot of space to cover. It also has a lot of extra-intestinal manifestations like arthritis and eye...
I agree with scifigal but I also encourage you not to freak out about this yet because it could just be a blip. One day is not enough to know if there's something serious going on. That said, if you...