I'll get it in 3-5 years if, by that time, it shows a good safety record. Technology can do a lot of things but it can't simulate how actual real world time passes by. Hopefully by then it's as...
Interesting! Thank you for the suggestion and I will see if that could be my issue....
The congestion/smell/taste issues started around 7 days after I did my first 50mg taper (150mg to 100mg daily). The symptoms have not gotten any worse going from 100mg to 50mg daily though....
UC diagnosis 2011. Imuran started in 2012, 150mg/day. Kept UC in remission all this time. This year, GI doc advised I should try to wean off Imuran (due to long term lymphoma risk) and see how I...
Great point.. but the coffee is also what makes the morning BM happen. No way I can leave the house until I've emptied out the colon. Guess I'm stuck with the overactive bladder then?...
Is this a side effect of UC? It always happens in the morning as I'm getting ready to leave the house, and usually after I've had 1 or 2 BMs. So even though I have urinated during the BMs and my...
Has anyone experienced this? For probably the last 10 years I've had a distinct odor in my right nostril that becomes more apparent after heavy physical activity. I do not know if other people can...
For as long as I can remember (even before my UC diagnosis), being stressed out always seems to occur in my gut the most. (an uneasy tension in the bowel area, which starts to cause other issues...
How many times in the past has your son been on the prednisone? In my experience, each subsequent time I am prescribed prednisone, it kicks in later and later. The last 7(?) day course I took, I only...
I hate that both of you are dealing with it also, but it's a relief that this could be a thing (for the inflammation to manifest elsewhere). And here I was thinking that UC was only about fighting...
Having had numerous scopes myself, I would say sure you should get one for your kid since that's really the only way a GI doc can know. But I can't imagine being that young and having to go through...
Title pretty much sums it up. I've been in remission for 3 years now (knock on wood for good luck!) and I can't recall the last time I had any swelling in my lower colon. But I swear it seems like...
Asking here to see if anyone has experienced this. My UC has been well managed for some time now, but a few months back I got what felt like a sinus infection but it was very different than the...
(knock on wood because I don't want to jinx myself) For the past few months I have been keeping my body in a state of ketosis since I needed to drop some weight. My consumption of carbs dropped...
I'm a big proponent of making it legalized for anyone. I tried it many many times and it didn't work for me. So I hate that it doesn't work for me, but hope it helps others. I tried the flower,...
Can you tell us what your "usual" diet is like? Like.. what did you eat yesterday? The term "sugar" is really very broad.. and basically any vegetable with a digestible carbohydrate has "sugar"....
Are you sure it's constipation and not an inflamed rectum? I'm lactose intolerant, so drinking a glass of whole milk usually cleans me out good. I stopped taking psyllium products a few years back...
I think I once applied for a policy with Mutual of Omaha and the questionnaire asked about any diseases. I put down UC and they denied me for that reason. Next time I apply for a policy, I'll see if...
Is my understanding correct that we're all basically screwed when it comes to buying life insurance? I have been fortunate enough to get it through my employer, and I have a cash policy from when I...
I used to think I was the same, but having a constricted rectum can also feel like constipation. Are you stools actually dry and hard? Magnesium Citrate usually works quite well for cleaning out the...
Sounds normal to me. Make sure to take it easy after a scope, and fart away! They fill you up with air during the procedure, which can make things sore as a result. Any medical procedure carries the...
I'm not understanding the situation. Is the gas causing pain because it makes everything swell up? Is the pain near the rectum or higher up? Can you adjust your diet to not eat foods that produce...
How are you juicing it?...
Have any of you experimented with your portion sizes in order to make UC more manageable? For example, I tend to have a light breakfast and lunch, followed by a generous dinner. I was raised this way...
Nobody can say colon cancer --- you have to get scoped/biopsied for that. But restriction of the rectum can happen. My UC manifested early on as proctitis and as a result, my BMs are thinner than...
Love Suprep! At least compared to the other ways like drinking mag citrate or miralax. The only thing I find odd about Suprep is that after I've downed a cup of it, I get a weird aftertaste that...
This.. doesn't seem like a good thing to tell someone who is an admitted hypochondriac.. :confused:...
How much is a lot? For example if you put some sauteed mushrooms on a steak, or have some as a side dish to something else.. that seems like a reasonable amount. That being said, one of the leading...
Try changing your diet for a week. Maybe cut out the wheat bread and beans which seem to be a common mention. If you are already somewhat diarrhea prone, then the lack of fiber won't be a big deal...
I think Oligodar might be talking about toothpaste containing Triclosan? Colgate Total may still contain Triclosan even though it has shown to be ineffective for dental health....
Maybe you've just developed a gut allergy to all those relatively healthy foods? I'm being dead serious. When my UC flares up, I actually stick to foods like white toast, chicken breast, porridge,...
This is an interesting area of discussion. I suspect in the context of UC, we tend to think of suppositories as a localized application of a compound. For example, when I'm flaring I use Canasa supps...
Now that is a fantastic response, thank you. I really mean that. I had no idea that was the case. So can I order from those states and be relatively certain I am getting what I am paying for? No....
The sad reality is that, currently, there is no way for me to recommend "something better" when it comes to mail order CBD. So my only recommendation was that one should always see/request a lab...
There is no way I'd spend $100+ on a CBD tincture without seeing a third party lab report that confirms the THC and CBD content. But you are free to spend your money as you wish....
Here in the UK where I live, CBD products are not yet as widespread as in the USA. There are few suppliers and I bought this one, as my first try:...
I am now seeing reports that CBD Flower can be purchased legally as well. For those who are unaware, when a "pot smoker" rolls a joint, they are using the "flower" from the marijuana plant (nobody...
I have been on Zydus generic lialda ever since it got approved, and frankly, I like it better. Real Lialda gave me bad acid reflux and made my pee stain the toilet. I don't experience either of these...
Not a problem -- the topic itself is quite complex. CBD is Cannabidiol. It's a chemical/molecule/substance. Science says it could be beneficial to certain ailments. THC is Tetrahydrocannabinol. It's...
MJ does not need to be legal in a state for CBD to be sold.. generally speaking. So there are at least 2 ways to get CBD: From MJ plants grown specifically for the sake of MJ (to smoke, eat, etc)....
CBD often carries claims of being pain reducing and anti inflammatory, but because it is not a recognized drug by the FDA yet, the claims carry no weight of law. So right now it's very experimental,...
Tylenol is OK, but NO blood thinners like aspirin or ibuprofen! And let them know what time you took the tylenol when they roll you into the op room. The anesthesiologist needs as much information as...
I have been on Imuran (Azathioprine) for 5 years now. I don't recall it having a risk of pancreatitis, but it can cause lymphoma (blood cancer) and elevates your risk of getting colon cancer. That...
Wow! I made this topic 4 years ago and totally forgot about it. I was looking into CBD again, and stumbled upon this topic from the search engine and LOL'ed since I remembered it. Anyway, it looks...
Work with your GI doc. You may be able to move to a form of mesalamine that has a cheap generic and hopefully still manage your symptoms. You should never hesitate to explain to any of your doctors...
Not surprised they pulled the program. They no longer have a monopoly on that specific formulation so it's of no benefit for them to offer discounts. But regarding the generic lialda -- I no longer...
How are we supposed to react to this? I feel like most people here are trying to do various things to get better and to beat the disease to have a semi-normal life. But it sounds like you are...
You have to make sure you don't get into a negative feedback cycle. Keep a JIC bag (just-in-case) with you at all times that contains a few small trash bags, clean undies, toilet paper, and some...
Funny... I'm the same way.. although my current attack plan is keeping things at bay (knock on wood). But on a different point - summer to fall always gives me a few weeks where I just feel dread and...
For those of you with active flaring - I hope the best for your healing and that you get into remission ASAP. For those in some form of remission - Are you as active as you'd like to be? Can you...