Me too! Trying to think of something creative, but as Ki says your name was already taken:) I.D breach hence the name change....
will be changing my forum name in a few days. Old timers will probably recognize me:). Cheers...
Horrible experience NCOT. You are very strong. We all are. Sometimes I look back on what I've accomplished, been through and I wonder how I did it. IBDer's are simply tough. Feel better....
I had my first infusion last Thurs. Felt fine after but I'm currently dealing with side effects....weakness, nausea, headache. I'm committed to this for 14 weeks and will re-evaluate. My infusion...
Great news for me to hear! My clinic nurse also had some positive things to report from her other patients. I had a mild headache/nausea the following day but have recovered. Ivig had me in remission...
Take the Imodium! Saves me from anxiety ridden car rides all the time. I take it 2-3 hrs before I leave the house. My GI fully supports Imodium if needed & taken responsibly. Taking 1-2 on occasion...
Thanks Gary. Hope you are still seeing results from WOO. It really helped my abscess....
Yep. got fired because of the disease. Haven't worked a day since....
yep. 40times was terrible. Now it just sucks! Incredibly evil....
I haven't posted in a while....nothing new to report....still have colitis! In addition to monthly IVIG I'm starting Entyvio this Thurs. The plan is to get me stable and then wean me off IVIG....
I believe he's had no symptoms. Lucky him! Just wondering the possibility that the colon prep caused inflammation or irritation of some sort? That prep always makes my symptoms worse. Good thing is...
Ditto. You could try Jini Patel's protocol for healing fistulas. I used a modified version to heal a peri anal abscess. Basically I used WOO & organic olive oil rectally. It worked well. Canada Mark...
This disease causes major anxiety. It 's all consuming. Even in remission (it's been sooooo long!) I'd catch myself looking for the bathroom or wondering if I'd be ok for a long car ride. Try...
Just horrible. I was 16 when i started with bowel problems. It's really hard when you battle that and depression and have a non supportive or non understanding parent. I began just hiding my symptoms...
You guys should convert to team Habs!...
AZ- The benefit of trying Alactone is that it may also get rid of the excessive hair I have. Even laser hair removal didn't work. My derma says Alatone won't mess with my colitis but I'm still...
No one here would make fun of you. This is the normal topic of conversation. Are you using enemas? What Medes are you on?...
Sounds like a painful flare; and/or infection of some sort especially with the fever. Foam enemas may help with the rectal pain. i'm flaring right now (16months) and no blood and rarely cramping....
Which team are you rooting for? i'm a Habs fan and was on pins and needles last night right up to the last second. I'm sure my neighbours heard me celebrating! Fantastic game and Carey Price is a...
I use depends and pads....carry underwear and wipes in my purse etc. I ran across a website in England that sells regular undies for men and women that is lined. The site is: www.myshreddies.com...
here's hoping it helps! I'm right behind if I can't access FMT's Good luck!...
I suffer from cystic acne that seems to be related to the degree of flare I'm in. If my colitis is bad, I have and increased number of acne outbreaks on my head! Very painful at times. About 4-5...
I started Nopal on Apr 1st. I notice a little difference and decided to continue simply because it wasn't hurting....unfortunately my little Mexican store hasn't got an order for 2 weeks and I...
Notso...I tried that website...didn't get a response from most docs listed. If you don't trust the Bright Clinic, I won't either! My GI will write to Health Canada to get the funding to get it out of...
My GI told me to take imodium as I need to "live." I take it 2-3 times a week if i know I'm going out for an extended period. I take 1 with usually 2-3 metamucils. If I have a 9am appointment I...
NotSo...thank you. My GI would send me to Australia to get it. I'll check there. I have no donor. None. Otherwise I'd do it myself in a heartbeat. Thanks Canada Mark I'll try it. Don't really have...
My GI tried there. No go. They stopped the trials at Mac because the trials weren't successful and some patients were getting sick. My GI's tried all of the "obvious" contacts at Sunnybrook,...
Hi All, i'm in Toronto, ON Canada and am looking for a doctor to give me FMT's. My GI has exhausted all his contacts in Canada is willing to speak with any GI who will prescribe this for UC. It seems...
don't get me started! But at least we have hockey:) Go Habs Go!...
My GI spoke to Health Canada. It will be approved in May, there is a DIN. I was told to apply for Trillium drug benefits in the mean time....
oh certainly it's a far cry from Canada's own poverty line! $5000 does not allow for food and rent. It's shameful how marginalized disabled Canadian's live....
I believe that's what I said. The actual amount is now $5000 -5100. When you reach that amount they work with you to determine if you can stay on the program longer while still being employed. When I...
I was fired from my job for having a disability...of course they didn't say that, but that's what it boiled down too. I'm in Ontario. I'd suggest applying for CPP-D. You can still work and earn a...
Congrats Eva! You sound so happy:) I have to ask...how do you have sex with the bag? Do you just wear lingerie to "hide" it? Does it get in the way? Sorry to be personal, but you mentioned sex and...
A pint of ice cream a day is enough to make anyone sick! (love your humour btw!) I'd bet that once you eliminate even 1/2 of the junk food, dairy and sugar you'd feel better; including your anxiety....
nix1262- try Mexican restaurants Had a bit of a slip. Eat some sushi on thurs and immediately bad pain and passing m & b yesterday. Not panicking, just going to keep going with the nopal. A tad...
That's awful. I was meaning to post...just before a bad flare I break out with cystic acne on my head. Thank goodness for my curly locks... But it's very painful. Do u have this issue? About twice a...
I was on Accutane twice in my early 20's. What about tea tree oil? I believe that treats acne....
Churey360---I've been flaring for 15 months straight. I knew it was doing something because I could finally pass gas AND without soiling myself. I didn't have any formed movements today but there's...
I think I need to go to med school to figure out what the heck you guys are talking about! Canada Mark: maybe you should be my doc!...
Me too! My first batch cost me a whopping .80 cents! i can without a doubt say this is working. I deliberately didn't change anything to give this a fair chance. I've had 3 solid bm's today. Still...
Thanks CC! I hope so too. hopefully I'll see continued improvements in my bowel and quality of life. I was so excited I wanted to take a pic of it!! That's a good sign with no b since yesterday! It's...
I started this on April 1st....and I've had the slightest change on day 3 when I began passing gas. This morning however I had a completely normal stool!! I still have b and m, but the stool itself...
Just awful...try IVIG....
thanks CC. I'll try less water. I haven't had the instant success that others seem to have (not surprised) but I don't seem worse. I can imagine how disappointed you are. With this disease you can be...
Not to downplay anyone's constipation...but OMG what I would give to not poop for a day! CCinPA- how many leaves of nopal do you use per quart?...
My update. I'm starting day 6 of nopal. The only change is that from day 3 I've started passing gas! (Exciting I know!) Very exciting that it's just air..nothing else coming out! Huge improvement. No...
Agreed! Try cutting out the dairy. I'm almost positive that would help. As far as rectal meds.... I'm newly using WOO/olive oil for a peri-anal abscess. It's hasn't helped my UC but it's definately...
Sounds a bit like me!.. diagnosed at 28 and whole world at my feet...then BAM! My world changed and it has never, ever been the same. What struck me most was saying you are scared. I was...