I tried it. I used my newborn baby as my donor and it was not under medical supervision. I would get a day of normal stools, and then I'd flare again. I did enemas three times and honestly the yuck...
My GI doctor is listed at specializing in GERD and liver disease at her practice of 4 doctors, but I love her! She listens to me and is very thoughtful and proactive with treating me. Honestly I am...
I have the same thing. UC diagnosis but in my colonoscopy report from February, it said that my inflammation was patchy. I asked my dr if I had crohns and she said that microscopically it was...
My last flare, I was taking 40mg per day. It did nothing for me. Nothing! I weaned off it quickly since it wasn't working and started Simponi. It took me out of my flare within 3 days....
$82,000 for a cure???? Is my math right?...
OMG!!!! Totally freaked out now. It's not going to stop me from getting them but geeze! Another thing my anxious mind will worry about lol....
I just took my loading dose yesterday and I feel fabulous! I pooped a solid bm this morning and have had zero pain or cramping all day. I haven't had this much energy in months. I hope this honeymoon...
Honestly you sound very sick. You should have file for divorce by now and gotten your ducks in a row, but I 100% sympathize with you. When I'm flaring, I pretty much suck at life. My house is a mess,...
I'm pretty sure that methotrexate and simponi would work, but since you are a young woman that wants children, I wouldn't take methotrexate. If you have an accidental pregnancy, it's pretty much...
My doctor prescribed questran for me because I was honest with her and told her I have never finished a course of Flagyl. Flagyl makes me feel horrible and every c-diff test came back negative....
Well I'm a woman and I like to drink. :) I prefer wine and it doesn't affect me one way or another. If I have 1 beer, I pay fir it. It totally wrecks me....
I'm jealous. I want to fart. My insurance needs to do an override because simponi cost has gone up and is now above my annual allotted about insurance covers. Or something. She said it could take...
I actually prefer aspirin. The last few times I've taken Tylenol, I've either thrown up or have felt really nauseated. Ibuprophen is good for me as well , but I prefer aspirin for headaches. I've...
This is interesting. My doctors office recently made an online patient portal available. As I was looking through my records, I noticed that for the last 5 years, I've gone to see her January-April...
This is such great news! I should be getting my simponi this week! :)...
Prednisone used to work for me but after a few weeks on 40mg, it wasn't working at all! My GI doctor said that if prednisone isn't working, it usually means you have c-diff. She tested my stool and I...
I've had UC for 5 years now and I've had 3 colonoscopies. Polyps were only seen and removed during the second colonoscopy, which was about 3 years into my disease....
I'm on the process of getting Simponi approved, and I will update on how it works for me. It's my first tnf-a blocker do inhale nothing to compare it to. 6mp has stopped working unfortunately so it's...
Any update on how Simponi is working for you? Right now I'm in the process if getting insurance approval and I would love to hear your review of the drug. :)...
My grandma on my moms side had bloody diarrhea and bowel issues after her 5th child was born about 50 years ago. She swears she cured herself with buttermilk. :smhair: Other than that my cousin, also...
Is it Simponi? I know it's really new and that it's been pretty helpful in people for UC....
For my body, yes I absolutely believe there is a correlation. I quit smoking on New Year's Day and I started seeing blood within 3 days. After a month of not smoking, I was in a horrible flare. Now...
Yes definitely take antibiotics for strep if your test comes back positive. However, a few years ago my dd was a strep carrier and came down with strep throat pretty often. I would have her gargle...
I've taken a pic of what was going on in the toilet for my GI doc before. Those questions on the blood would confuse me too because I have one type of bloody diarrhea. It's the kind that looks like I...
Rowasa enemas were the only medication I took while pregnant. Absolutely 100% safe. Seriously. The small pieces and bold probably means that there are ulceration a in your rectum or sigmoid colon...
When I taper my prednisone, I don't exclusively follow what the bottle says. Here's what worked for me to get off prednisone as quickly as possible without flaring. I'll start on 40mg, and once I...
I just had my colonoscopy today for a flare that's been going on for 6 weeks. I'm going in tomorrow for a TB test, and I'm meeting with my GI on Monday. In my notes from today's procedure, she noted...
I know, it's bananas. I'm currently weighing the pros and cons of what smoking will do to my lungs and heart vs what not smoking will do to my colon and quality of life. Smoking does help and if I'm...
Usually the process of treating follows these steps: 1. 5ASA's/mesalamine. A few are Asacol, Lialda, Colazal. Also rectal meds like rowasa. 2. Immunosuppressants. Mercaptopurine/6mp, Imuran. 3....
I thought that restaurants were required to freeze fish before serving raw to kill parasites?...
Honestly my guess would be not smoking us what kicked off your flare. I started smoking two years ago after reading about it being beneficial to UC patients. My New Years resolution this year was to...
***oops, I meant to say Anal cancer from hpv. :)...
Yep, unfortunately I have HPV and UC. The only connection that I think is between the two is that I had my first abnormal pap after starting 6mp. I know that I was exposed between 10-13 years ago and...
I had been flaring for 10 months, had a newborn, was exhausted and in excruciating pain. I was up all night pooping every 10 minutes with major tenesmus, bloating, gas. Blood was just oozing out of...
No you are not wrong. They are wrong. My Grandmother told me that she also had UC in her thirties and that she cured it with mylanta. I just nod and smile. My MIL sent me an email that a friend of...
Hi people. After about a year on 5ASA's I keep flipping flaring. Im sick of prednisone and am barely clinging on to remission on Lialda and Rowasa. I finally agreed to try 6mp and I was confident in...
If you can get your doctor to switch you to Lialda, there is a pharmacy discount card from Shire. My script for Lialda was $150 after insurance...but then after the discount card the price dropped to...
Oh gawd this is so depressing. I am finally doing okay on my prednisone taper (10 mg woo hoo!) and I am looking forward to my huge fat head and hunchback shrinking. :( Apparently it is going to be a...
It has been so long sine I have pooped 'normally' that I have no idea if what I am experiencing is my UC acting up or of this is what healing feels like. Basically I am having BM's every two days....
I developed UC for the first time when I was 5 weeks pg. I flared my whole pg with 10-15 bloody D per day and my baby was fine. I gained about 30 lbs and I had many ultrasounds to check the babys...
I had pain at around a 7 during the worst part of my flare (that would be with child birth being a 10!) and darvocet did help me. But, it was a double edged sword because the narcotic painkillers...
I'm not sure what the magic number is. I personally had 15-20 bouts of bloody diarrhea for 10 months while I was pregnant. I was tested often by my OB for anemia and I never became anemic....
When I had 'bloody diarrhea' it didn't look like diarrhea because there was no actual poo in the toilet. It was just dark red water with white tissue looking stuff and black dots like coffee grinds....
Fioricet is great for my migraines....
I hope not! I always pop in to read your daily survey! :D...
If you are using a grill, you could just wrap it in tinfoil with the lemon, butter and dill...yum!...
This is exactly how my symptoms were. I either had no blood and immense pain, or lots of blood but it didn't hurt. I figured out eventually that when I ate more fresh fruits and veggies that usually...
Wow, I'm glad there is a technical term for this. The only way I could describe it to my husband was that I felt like I was 'dry heaving' out my rear end. I still have mild tenesmus but it is not...
OMG you poor thing. I completely know what you are going through. I actually had my first UC flare ever starting in December of 2008 when I was 5 weeks pregnant. I didn't know what it was at...
I've noticed in general that 'junk' food gives me less UC symptoms than healthy choices and that goes into what cereals I can tolerate as well. Plus, I have no intolerance to milk so cereal is a...