So I haven't been on this forum in quite some time as I've been remission. Or at least as close to remission as I've been since diagnosis. I had a colonoscopy done in September 2015 that was the best...
Hmm that's interesting. I would have never thought about the stuff they use to disinfect the scope. I have had 2 other scopes and never had any problems and have been fine later that day. This was...
My GI called me back after I had gone to the ER, when I was walking out of the ER actually. Then again today but I missed his call. My mom suggested a reaction to the sedative, I'm not sure but am...
I just thought of pancreatitis? could that be possible even thought they did an abdominal CT maybe they didn't look there?...
I had a colonoscopy Tuesday and besides the prep being awful, everything went fine. I was still inflamed and showing issues by the rectum but everything else looked much better than a year ago. My GI...
I have about one and a half 8 ounce cups left of my last liter. I'm going really slow but at the same time I just wanna get it over with! I'm gonna ask for the one you said doesn't remake you throw...
I have a colonoscopy tomorrow and with my last doctor I just did miralax and Gatorade prep. Now I'm doing the moviprep. This stuff is DISGUSTING!!!! The first liter I tried so hard not to throw up...
This post has really ironic timing! I actually just had a bunch of my flat warts burned, or i guess frozen off yesterday. I had them all over my legs. I have had them for years on the top of my right...
splangirluc, I'm 22 now but was diagnosed when I was 19 (suffered through it when I was 18 though). I'd be happy to give you someone to talk to and vent to. I could use the same. I understand the...
I don't think I've had a liver function test in awhile, my ones from before were all normal though. I'm going to ask my doctor to check that when I'm in the office in a few weeks. I didn't know liver...
The DR gives me pre-meds before my infusions. They give me two tylenol and benadryl through my IV before starting the Remicade. I just had regular blood work done last week and everything was fine....
I agree it's something on the inside, but I haven't changed anything in my diet or anything else I can think of. Gary, I didn't even think about the fact that every batch isn't the same. I get my...
I didn't know that, thank you! I'm actually terrible at remembering to take the turmeric, so I'll start taking it more regularly and maybe up my dose a bit and see if it helps....
The past few months I have been extremely itchy. It comes and goes, but right now I'm scratching all the time. I saw my GI yesterday for my 6 month visit and told him about the scratching, he...
This is literally the story of my life! Since being diagnosed with UC I get UTIs so much more frequently! I have them about 3 times a year despite all my best efforts to avoid them as well…. they are...
I actually receive my next Remicade infusion May 27th as well haha. I noticed a difference after my first infusion and then a larger improvement after maybe my 4th or 5th infusion. Since then it has...
I'm going to ask my doctor about Sulfazine to help with the pain. I have actually never heard of that so thank you for the suggestion… I'm coming up on a year this July of being on the remicade and...
I am getting a double dose every 6 weeks. But I have been doing that since about November I believe? I had my last infusion two weeks ago too. Sherry, how long did it take for your body to get used...
I called and left a voicemail with my Gi and I have an appointment with him in a few weeks. I have talked to him before about the joint pain and he suggested possibly using celebrex if need be. I...
I have been having pretty bad body pains/joint pains the past few days. I'm taking 6mp and remicade so it's probably due to one of those or just the UC in general. I usually only have really sore...
I have been on 75 mg 6mp since April 2013 and it alone plus then trying Uceris and Entocort wasn't enough to pull me out of my flare at the time (I didn't wanna do Pred again, I hate it). So in July...
I have been on remicade since July 2013. I am currently getting a double dose of remicade every 6 weeks. My remicade treatments usually last around 3-4 weeks before I start flaring again. However,...
I've been on a combination of 6mp and Remicade since July 2013. Remicade has helped me better than any other med I have taken since being diagnosed with UC 3 years ago. I get Tylenol and Benadryl as...
If your anemia is really bad they could give you iron infusions as well. After many blood tests showing I was iron deficient and anemic and complaining to my doctor of constantly being tired, he...
I have been getting Remicade infusions since July 2013. I am now getting a double dose every 6 weeks, instead of 8 because I was still having symptoms. Though I am definitely not in remission,...
I was diagnosed with UC when I was a college freshman and living in the dorms on campus. I started having symptoms in December and was finally diagnosed in April. I am now a college senior and will...
Katmom: I figured every 4 weeks was probably not safe either, I hate putting all of those chemicals into my body anyways...but the nurse said ask? who knows. My doctor checked my levels with the 6mp...
Question for those who are on Remicade or have taken Remicade: I have been getting Remicade infusions since the beginning of July. After my loading doses, I was getting a normal dose every 8 weeks. I...
NinaKP, I know I'm a little late to this thread, I haven't been on the board in awhile but I could really relate to your post.. When I first started taking 6mp last May it made me feel incredibly...
My grandma who has Diabetes swears taking a shot of it helps with her blood sugar. When her blood sugars high she takes a shot, or just takes some in the morning. And I found when I was younger that...
I definitely notice body aches the day of my infusion and days afterwards. It especially causes pain in my knees, hips, and hands/wrists. The nurse that gives me my remicade told me to drink extra...
Hillhunter: I appreciate your post. I am going to keep giving Remi a chance. It seems to have been the only thing in the past 3 years that has made a large improvement, even if it hasn't lasted. I...
Hillhunter, I took the job once I thought I was getting better from the Remicade. I like being a little more financially independent and thought I finally had the opportunity to after being in a...
My GI required me to get the flu shot, pneumonia vaccine, and another vaccine I can't remember right now. He said since I'm on 6mp and Remicade it was important. I would call and ask your GI what he...
Thanks all for your input! I guess your right notsosicklygirl. I didn't cause the flare, I just felt like since I was feeling so good I kinda forgot to adhere to what I usually do to keep my UC from...
So after having 3 doses of remicade, I am back in a flare. I feel like I am to blame for this flare. UC is such a balancing act for me; two days of forgetting to take my half a pill (25 mg) of 6mp at...
I find that the day after or a few days after my remicade infusions I get a bit itchy as well. There's never any rash but just kinda itchy, almost like there should be a rash. I get it on my hands...
I had a hard time retaining the mesalamine and steroid enemas (which were not working anyways), so my doctor suggested a suppository. He prescribed me Canasa and it was much easier for me to retain...
Before I started 6MP (and now Remicade) my doctor had me get the flu vaccine, pneumonia vaccine and hep vaccine. He told me it was because of the immunosuppressant meds....
That is a strange letter from your doctor! Maybe he is just letting you know that if you need to go on a higher med your blood work shows you can? I have been taking 6MP since the end of April. The...
I tried Uceris for about a month before I moved on to 6MP. I would probably give Uceris a longer shot than a week. Have you tried 6MP/Imuran at all? Thats what my GI put me on after Uceris and...
Totally been there done that. It's not fun! During a horrible flare last year I was living in a dorm. One night I knew I reaally had to go but I didn't want to use the bathroom I shared with my...
Thanks all! It's extremely hard driving myself home after the benadryl with the infusion and I don't want to have to ask my mom to come with me every time. I'm going to talk to my doctor/nurse at my...
Thanks all for your input and experiences! So far i haven't noticed any changes, but it has only been 24 hours so I'm optimistic. Hopefully remicade works for me like it has worked for some of you....
My story/rant: After flaring for the past 8 months with no help from Liallda, Uceris, Entocort, Rowasa, steroid enemas, Canasa, 6-mp, and diet modifications, I started Remicade today. My doctor and I...
I have been using the Nuvaring for the past year and have not experienced any side effects or problems from it or any effects on my UC. I love the Nuvaring, it's one less pill I have to remember to...
I was diagnosed when I was 19, but had bad symptoms around 6 months before being diagnosed or seeing a doctor. That was 3 years ago, I am now 21. I have not had surgery but have recently been through...
Andrina, glad I'm not alone. How long have you been having the side effects after taking the Imuran? I'm feeling better today though, less tired and weak. But I still have little appetite even when I...