This has been in use for UC for about 3-4 years now, has to be an old article. I have been on it for almost 2 years....put me into 100% remission within 3-4 months and have not looked back. Eat...
I've been on Simponi 100mg self injection every 4 weeks for almost 2 years now...and it put me into a solid remission after about 3-6 months. Best thing ever in my life, feel the best I have felt in...
The really only LIVE vaccines out there are Measles, Mumps and Rubella (MMR), and Chickenpox/Shingle (which is really nothing more than a double dose of the chickenpox vaccine). There is a live flu...
I'm not so sure about all this information on the vaccines... I've been on Simponi now for almost 2 years, and have received TDAP, 2 flu shots, Prevnar 13 (pneumococcal pneumonia vaccine) and the...
I have been taking Simponi now for 21 months, and yes, I notice towards the end of the 4 weeks I get a little sketchy in my stomach about 5 days before it's due. And I love it as well...saved my...
The shingles vaccine is one of the few LIVE vaccines, which means you will be vaccinated with the actual disease...into an already compromised immune system from your Remicade and Imuran...not...
the prep 40 years ago was a full bore enema over and over till it was clear...so yes, in a way, it DOES taste better!...
its anti-MMP9 antibody GS-5745 forward in clinical development for ulcerative colitis and gastric cancer in 2015, per the Abzena website....
Oddly enough, no one in my family (and I have all of our ancestry, health, and death records going back 200 years) has any evidence of ANYTHING immune related...I was the only one....odd.....!...
As a veteran of 40+ years of scopes, and one of the first ones who got the scopes in the late 70's when they became standard and safe, I always preferred my drs. old joke, "how the hell did flowers...
I was flaring on and off (never really in remission for 10+ years) and finally put on Simponi. I was in remission in 6 months, and never looked back....glad I did it, NO side effects, best decision I...
this is only my opinion..... My doctor has always told me, in this day and age with all the other medicines that are out there, that any use of steroids over 6 months is considered...
As much as you don't want to hear this..and I HATE to say this...everyone is right...you ain't in remission. We all have had these times when we love to think we are in remission, then something...
It's common with UC to get what's called apthous ulcers in your mouth...its one of the many manifestations of the disease along with ankylosiing spondylitis (arthritis of the spine), iritis,...
In my opinion.... I am with everyone here. First, you HAVE to take the Lialda and what we call the 5-ASA drugs like this ALL the time, for the rest of your life. I have been on them since they were...
double duh...I'd bet there is NO ONE here that hasn't linked stress, anxiety, aggravation to having an instant urge to have to poop at some point during their disease....these "investigators" need to...
Speaking as someone who has had this disease for 40+ years and had one of the first colonoscopies in 1981..... For disease in remission, it's every 2 years. For extremely active disease, the usual is...
update...just had my 2 year scope and was 100% quiescent and in FULL remission on Simponi....not a drop of any active disease anywhere! I'm going to Wisconsin this weekend for a week as a volunteer...
There have been studies for many many years that show oral 5-ASA's decrease the inflammation that cause cancer, regardless of where the inflammation is. Even though they have limited effectiveness at...
Yes, take the medications. Even though you have UC, there have been years of studies that show you have a constant low-level inflammation in your gut. You will need this medicine to counter-act this...
Bupropion for post-herpetic neuralgia? Never heard of that, and I manage an interventional pain clinic with 5 drs...and we see this daily. An anti-depressant for pain is off-label in ALL cases except...
suppositories have a very low dose of systemic absorption....yo may get a little side effects. but not much if at all....
get an iron/ferritin levels..I was a reasonably healthy guy even with rampant flares for YEARS, and when they checked it, they were all in the dumper, I was so sick...I was on iron for 2 weeks and...
Hi everyone, been a while..... My 40th anniversary of this wonderful malady was April 22....1975!...that makes it FIVE DECADES. I am still on Simponi now since 3/2014 and in full remission, doing...
he's in full DKA, I'd bet....
For what it's worth.... I pop in and out months at a time, and this April will be my FORTY YEAR anniversary of this wonderful disease. And yes, I still have my colon, never had or needed surgery. And...
$20 you're diabetic. The 'alcohol' smell (which I bet is also a fruity smell) is actually ketones, and the thrush you have on your tongue is common in diabetics....your immune system is in the dumper...
A month of Simponi isn't enough...you need to be on it a while and give it a chance. The loading dose itself takes a month, then you'd probably need at least a few months after that to see how it...
UCinsouthfl (and notsosicklygirl): Don't give up....my dr kind of made me feel pressured because one of his pts responded immediately, so he thought I would as well. It took me 6 months as I said,...
Banana, sorry about the hives...I just posted, I'm in complete remission now. Are you sure it's the Simponi doing this? I mean it happens right after the shot? It could be you just are making...
They're called apthous ulcers and are a side effect of people with UC, no idea why...just is what it is. Supposedly happens more with people with UC, but people without it get it too, so how you know...
Hey everyone, been a while since I posted....hope you all are well. Just wanted to stop by and say hi to all of you, and say that Simponi has put me into remission after 6 months. Took a bit longer...
Bleeding is the worst sign of all, so the fact that it stopped is a "start". The rest usually takes time to go away. If the food is coming out as it goes in, then you have a pretty fast transit time,...
no....that's one that will rip your gut apart though. They use it for C-diff....
Benadryl only helps stop the release of histamine (it's an anti-histamine) as a response to a Remicade infusion, as an allergic reaction that some people have to it...it has nothing to do with the...
They put that on everything...it's even on Prilosec OTC, its a legal thing. I have been on Canasa for I think 10+ years at least with no untoward effects....don't worry....
Cipro (any of the fluoroquinolones) seems to be the least stomach damaging to me always, and most broad spectrum....
Whatever you're smoking somedude....keep doing it!...
I know, right? He let me watch during the short scope, I was like "shut the front door, that's someone else's tape, that looks beautiful!".....he was laughing........
I'd recommend Imodium, 2 tabs qid... it;s the safest...
I don"t know about Humira, but some biologics take a while...I'm on Simponi and it's been 4 months and it slowly has taken me to about 85% and getting better each week....the worst thing is the wait,...
Banana: So Simponi isn't working then at all for you? or are the "side effects" something else maybe?...
The best colonoscopy picture I ever got from my GI was one of the 4 Lialda sitting at the beginning of my large intestine, fully intact...I guess the coating works....
I was using Uceris and Rowasa for months with little success before the Simponi, so it was the Simponi that has done this dramatic change over 4 months that was seen this morning. He now wants me off...
I use Simponi, and it worked. NO pain on injections, less antibody chances than all the others, and no side effects like the others have been reported....
I take Simponi, and have had Z E R O side effects......and have heard of none reported from others taking it....
So, I started Simponi 4 months ago, and it's been up and down as some of you have read. Diarrhea, stomach aches, on and off, Had to start Uceris, then Rowasa, on and off, etc. All this time, I have...
Sorry to say it may take a while.... While being off larger doses will lessen the major side effects, staying on the lower doses for longer times may keep those effects in you, so it's really not an...
My Simponi isn't clearing me up 100%..seeing my GI on 6-4 to ask to be put on the list too (Chicago area as well)... Interesting that all the Simponi users I see here aren't really cleared up...
You know, I've red through his thread a few times, and it's pretty interesting. Everyone says to hold off for Vedo...and I really have to almost laugh a bit, but not at everyone...at the situation. I...