PS: I was off Humira for 3 months, have been back on since 4/15. PMR occurred January 2015, have been on Prednisone since then, down to 17.5 mg at present. Now have Uveitis- very painful left eye...
Hi I am new here, have had UC for past 5 yrs., plus over past year have had bouts of other immune related diseases: Uveitis and Polymylagiarheumatica (PMR) , plus have had allergies and asthma my...
I have been on Humira since 8/16/14..honestly I can not say I have had an increased appetite or cravings thus far...
oops..meant hope it is not stopping to be effective for me......
I have been on Humira since 8/15/14...I have noticed that I am vey gassy and my bowel movements of late has been very smelly. The week before I took my last shot (10/10/14) I have had some urgency...
I too have been on both Prednisone and Uceris...Prednisone works well, at the 40 mg dose I feel like I am on speed, my pulse increases and I do not sleep, I too feel hyper and do a lot of cleaning,...
I started with a bad flare in April and have been on Prednisone most of that time, hospitalized in May, came home on Prednisone again, tried Uceris in June. At first I though it was helping, but then...
When I was on Uceris, my Dr. gave me 5 refills, so I would assume he felt it ok to continue with it past 6 weeks. It did not work so I stopped after 3 weeks. I have been reading more where there is a...
I have decided to add a Probiotic to my treatment regime. I purchased Reuteri pearlsby Nature's Way today. I guess I would like input from others if this is a good brand and any other brands they...
Allergies/Asthma, histamine reactions, have taken Ativan for anxiety, but now believe it was food related reactions and exposure to perfume & cleaners, smoke. UC has given me Anemia at times. so for...
I started Humira on 8/15/14 and as Trinity said, it helped almost immediately. I was going 10-15 times a day with blood, diarrhea and cramping, tired all the time, not sleepin, was wearing depends...
wishing you continued success., I asked about Entyvio, but my insurance approves Humira as the first Biologic...I just started Humira a few weeks ago and it has helped significantly, I too am doing...
I have used 2 products that the rectosurgeon recommended..recticare is an ointment that has lidocaine in it and helps eases the pain, the 2nd is sensicare an ointment that you apply that helps...
I agree with momto2 boys....I also live in western NY and we have not had much of a summer...way too much rain. I would love a couple more months of warm weather. Today was very nice, went to my...
I like Pepto-Bismol better for diarrhea and cramps..did not like Immodium as well...any one else use Pepto??...
@WRX....just saw your post, thank you so much for your input...I too felt significantly better with in just a few hrs. of the loading dose...did more housework and yard work than i have had energy to...
@I Got UC....good to hear you have had some positive results....I am cautiously optimistic!! The test will be to see if I can wean off the prednisone and still see positive results. Please keep me...
Thanks Gary....am doing some research on the subject right now.....
Hi All: am interested in trying a histamine blocker, would like input on brand and dosage and if I need one with vitamin C. Thanks, Gail PS: started Humira yesterday, shots went well, just a sting...
@Charlie3- it amazes how late in life this disease manifests itself... Thanks for the input...I hope it brings some relief to me...I still work part time to help my kid with his Grad school bills, I...
Thanks Gary, have already had Shingles vac., Pneumovax, Hep. B series and tetanus shot are all up to date....
I have had my TB test, but was wondering if I can continue taking my allergy shots while on Humira??? Any one have experience with this??? Also, since the flu shot is a dead virus, can you take that...
Thanks for the input and well wishes, I sure hope it works.... Gail...
After dealing with a flare for the past 4 months, plus hospitalization x5 days, several courses of pred, tried Uceris, plus all my regular meds...the Dr. has decided to put me on Humira, he wanted...
@Andrina: I am hopefully, it seems to be helping some and I have been on it about 11 days, also doing the Canasa supp and enema at night. I really would like to avoid a biologic if possible, but at...
@UCinsouthfl: Thanks for the input will discuss with GI...
I have hydrocortisone enemas that I use occasionally, but a lot of my problems are lower rectum so have been using Canasa SUPP. twice a day...Is Rowasa a steroid or a mesalamine or something else???...
About 2 weeks ago I came off Prednisone, then started to have issues so had a flex sigmoid that showed I was moderately inflamed again...we decided as a last ditch effort I would try Uceris. I am...
Thanks for all the input on fermented foods and drinks, much appreciated!!...
I have seen posts from other members, but can't remember who, regarding eating fermented foods. I have purchased some Kim Chi fermented cabbage, but was wondering what other foods people are eating....
Yep, sure have experienced that, I too have UC with Proctitis...I was just in the hospital for 5 days and since I have been home I still have had some bouts of uncontrolled explosive diarrhea...I...
Does any one use WOO without adding P reuteri or other Probiotic??? All this can be so expensive..just wondering if others just use the WOO in water or swish in mouth....
I used to work with Developmentally Disabled individuals with uncontrolled Epilepsy..one treatment they used was the VNS, which was placed just below the skin. If the individual went into a seizure,...
UCHater: can I ask what State/Country you are in??? Sounds like they are being very proactive in getting it out there for us. My GI is now talking Biologics. I live in NY state so was wondering....
Me either, I do use the tip of hemorrhoid ointment inserter to help get in a little bit further, it seems to make it more comfortable and I can retain it better....
Thanks all for the suggestions....I will keep plugging along with this very frustrating portion of the disease......
Good to hear, since I believe either Remicade or Humira will be recommended when I see my GI this week after my recent hospitalization. Prayers for continued success for you and others!!...
Just found the Wise Woman Supps #2 .....looking forward to trying them....
TO: stereodefelico89, can you please tell me the name of the suppositories you are ordering from Wise Woman Herbals?? I would sure like to try them....
Good morning all and thank you to all the Veterans who served in our armed forces!! My question is for those who use the Canasa Supp. during the day. When do you use it?? First thing in the am or...
I too have Proctitis and rectal meds have been helpful . The Canasa Suppositories twice a day have eased some of my discomfort. I was recently hospitalized because it got so swollen and couldn't pass...
Have you ever been diagnosed with Proctitis, which affects the lower rectum area. It causes severe swelling at the lower rectum making it extremely difficult to pass stool, first sign is the...
I have been on Lialda for several years, never saw any whole pills in stool....
DUMP THE DOC...i had one like him in the beginning when I asked for the Canasa Supp or the hydrocortisone enemas..he refused saying "patients aren't compliant when using them"..meaning they could not...
Great news, Remicade is one med they are considering for me, glad to hear of the positive results and being in remission....
I agree using Canasa twice a day helped get me feeling better quicker than just using it at night. Proctitis for me is often worse than the UC. I have my old Sitz bath basin ( saved from the birth of...
Pain...whew...I went through child birth at almost 39 yrs old, all back labor and did natural birth ( labor about 8 hrs). The back labor felt like knives twisting in my spine, but I did it with no...
To: Libidi...wow your story makes mine sound so minor, I was in my 50's before I had symptoms enough to really notice...I too was tested for C-diff in the hospital, thank God mine was neg.I heard the...
After 6 weeks ago started with my worse bout yet UC/Proctitis, a colonoscopy 5 weeks ago, that showed a lesion, mod.- severe left sided UC, plus proctitis. Biopsies done, negative, one polyp removed....
December 28th, Capricorn...