Vaccine for crohns looks promising http://crohnsmapvaccine.com ...
My son just got out of hospital for low abdominal pain. He would have similar symptoms every few months for the past year and had been prescribed buscopan for the spasms. Last Monday he had they same...
I don't know yet, haven't heard from the hospital. Specialist just called to let us know he should have another one. He is away at university. It may be a little tricky organizing it. Hopefully know...
I have never had a MRI so I really don't know about the noise. I understand it's very noisy. I guess the white noise and the length lulled him to sleep. He will know better this time around. We too...
Thank you Quincy. I was hoping you would reply. I got lucky you are still up. Assuming you are on the same time as me. I feel better having my son do this now. He's had one without contrast but fell...
If you have been ask to have an MRCP with contrast(dye) to help diagnose PSC, do you see any harm in this or would you stick with a MRCP without contrast?...
Wow. So glad to here this for you and your son. Nice work :)...
She also wants him on 2000iu of vitamin D to help prevent bone loss along with 3 servings of dairy daily that would provide calcium intake....
My son was at the largest liver centre we have here in Ontario. The hep dr said she would not prescribe URSO herself but because he was already on it he should reduce it by her calculations according...
I think URSO can cause diarrhea. If that was not a symptom he had before starting URSO you should mention it to your doctor. If I remember correctly iron treatments can cause some inflammation in the...
Mezavant is a slow release tablet. Maybe that is why....
Hi ajnepa. It's such a worry. I hope he doesn't have psc. Doctors seem very quick to link psc and ibd together. They have found nothing on the ultrasound and the liver biopsy was good I don't think...
Wow that's a lot of young male similar situation. Sounds very familiar to my 18 year old son diagnosed almost a year ago. I recall his dad complaining of his very very smelly gas in the mornings and...
Thank you. The funny posts made me laugh. What's life without a sense of humour. Sgarlata, thanks for your input. 13 years on a low dose of asacol, you felt comfortable taking a new step when you...
Hi Herbgarden Just thinking did your son start the Urso in March after the PSC diagnoses? If so, could he be reacting to URSO? My son is on Mezavant 1.2g x4 daily. "Mesalamine delayed and extended...
For those that decided to go unmedicated, how did you do it? Cold turkey or slowly reduce maintenance meds? How do you know that your colon is healthy without the meds?...
I was reading old posts while researching PSC. Your doc thought maybe you had this. What is your present dx with PSC?...
I saw one person at the market on Saturday....
That's oddly beautiful!...
The wheat belly cookbook has some tasty recipes. The pancakes are delicious....
I'm so sorry Herbgarden, I feel your pain. On top of all that its hard not to worry about their emotional health as well. When he should be just loving to be a 20 year old, having fun. Thinking of...
It sounds so similar. It's so hard to believe without real evidence or symptoms. Such a rare disease and adds so much complication to their lives, health care, life insurance, travel insurance and...
Herbgarden: no I do not no anyone personally. Killcolitis does. She put me in touch with her friend. I am sure if you are interested she would do the same for you. I don't understand how they could...
Bud light is wheat free. It's made from rice!! According to the "wheat belly" book....
Herbgarden: does your son have fibrosis? What stage is it at? I like the sounds of the MRE test. I wonder if it is in Canada yet? Thanks for sharing. Best wishes to you and your boy when you see the...
My son had d for along time before being diagnosed with UC. He never had any visible blood. Only when his iron levels were low his primary did an occult blood stool sample. From that they could tell...
Sorry. I was looking back at this old post and thought I had replied but couldn't see it so I just replied. Then I realized there were 2 pages. Lol. I am blonde though!!...
Herbgarden - my son feels healthy. He says "it is what it is". He's concerned for sure but has a firm belief that there is always someone worse and he finds the best in everything. He could have my...
If it is in the same family of antibiotics as tetracycline and minocycline I wouldn't recommend taking it. There is evidence that it can effect your liver causing further damage that is related to...
Pb4: your sig shows all natural products. Do you not take 5asa or any prescription drugs? I like that. How did you get yourself there? I know there have been studies done with oregano oil cleaning...
Herbgarden: his ALP has been up and down with the other enzymes. Not consistently up. But as high as 473 once. My son is okay with it too. Some of the social things he misses like partying with his...
I want to believe it would be his meds. But the GI refuses to consider it. "No one in my practice has had elevated liver enzymes from mezavant. Go ahead a stop all your meds and see how you make...
Thank you very much herb garden. I guess I am in denial and very angry that a young thoughtful loving son could be dealt this horrible disease. Wishing the best if health to our sons and everyone...
Killcolitis if you would like to send my email address to your friend regarding the vanco treatment I would be interested. Thank you....
Ucdad I edited my profile looking forward to your email. Thank you....
Ucdad1 will post my email thanks....
Hi Ucdad1: I have been wondering how your son has been. You haven't posted in a long time. My son is afraid all his UC symptoms would come back if he went of Mezavant. Did your son have any success...
Hi Quincy. Unfortunately with an 18 year old I don't have any say when it comes to the doctors. I am only allowed in the room if my son allows me in and so far he welcomes me and my input but...
Interesting thoughts. Thanks for all your input....
He does lift weights everyday. Then boxes and runs for cardio. He has no other symptoms of psc. Elevated enzymes which urso is bringing down and a liver biopsy that shows very mild inflammation....
Deltaforce It's a liver disease associated with UC. My understanding is GI's will look for this when you present abnormal liver function tests. Do you know why your enzymes were elevated and how long...
With lots of people with UC and elevated liver enzymes, why do some have a PSC diagnoses and some do not? Any opinions if you have elevated liver enzymes? If you have been diagnosed what did the...
If your GI is dismissive on side effects that may cause elevated liver enzymes do to mezavant, what would you suggest? Are GI's always right and I should just believe everything he says? Would anyone...
Thank you Killcolitis. I think I'll wait for our next GI appointment and ask the question directly as to what my son has. I am confused whether pbc and psc can be treated the same way. I would like...
Very interesting. Thank you. I know of another young teen girl in my community recently diagnosed with this dreadful disease. I have already passed the article to her. Thank you. That's 3 people...
Wow. I'm so afraid of this possibility. It's my son that's 18 he has UC and the doctor has hinted about pbc as his liver enzymes are high and a liver biopsy suggests it may be possible. Showing some...
A very popular Thai restaurant I enjoy makes a fried onion appetizer that is coated in chick pea flour. Very tasty...
I'm from Canada. I do get copies of my son's blood work and have a written report of his colonoscopy and liver biopsy. But I'd like to see the inflammation for myself. Some of you get CDs and pics....
The diagnoses was made in August 2012. It's not so much that I don't believe him. More that it would be nice to have another opinion. They can be narrow minded in seeing what they want to see. And...
When you get copies does this mean the written report of your colonoscopy or is there pictures or something more significant? If you wanted a second opinion who do you ask the GI or your primary doc?...