Thank you, yes I hope so, I'm concerned now that my daughter is showing signs of IBD. My appointment to see my Gastro is tomorrow and I think my daughter will have to mention that she's having...
I think it is best to have a colonoscopy done before making any decisions. It can be extremely disheartening to go for an entire year thinking everything is okay while inflammation builds up inside...
Update: I experienced a severe reaction to the Imuran that almost necessitated me going to see my doctor. So, I stopped taking it right away and resumed Humira instead. Later, I went to visit my...
Okay thank you that makes sense....
ok thank you...
Hey everyone, I was given Plaquenil 400mg today, but I wanted to take half in the morning and the other in the afternoon for a few days before taking the full 400mg to avoid a shock to my body, Is it...
Thanks all of you for your reply but I just cant help but wonder why on earth would you all think that I would take it on an empty stomach???? I mean really...its a given with any medicine not to...
Morning, so I started taking Imuran yesterday for the first time and after a couple of hours I could feel my stomach contracting and cramping, awful really as it lasted for a few hours. Has anyone...
Yes have had the bloodwork done for antibodies and all its good. Not had the ANA test done but its something to explore. I will look at this and then as you say if they are negative I will discuss...
Hi everyone, its been a while. I have been doing great on Humira since 2017 but I've started to have an adverse reaction to it which doesn't surprise me having MCS. Today I have been to see my...
Hi, thank you both for your replies, I think you are correct in that I need to go see my doctor and find out what he has to say. I believe it is related somehow to sugar and histamine. My BP is okay...
Hi, I was wondering if someone could offer a little advice. When I was taking prednisone a couple of years ago I had problems with my blood sugar levels but when I came off of it everything...
Sorry to hear your struggling. At least you are not pooping more than 3/4 times a day. I think more would be a big concern. I would also feel stressed re the clots, although it appears that is...
I dont have those issues so much nowadays as I'm taking Humira. I do however always carry a small tiny pack of wet wipes and a toilet roll when I have to go to the local hospital. In the waiting area...
Sorry, my post was for Valli1234 because she was talking about drinking.. Is that okay with you?...
Maybe you could try having a drink or two before your holiday to see how you react. Then, if you do have a problem you will at least be at home....
https://www.jewsnews.co.il/2018/04/03/israeli-scientists-may-have-found-a-cure-for-ms-alzheimers-crohns-and-colitis-in-one-single-drug.html...
I can't and dont wear sunscreen. Why? because I happen to think its the root cause of many illnesses. Have you ever looked at the ingredients even the ones that reckon they are toxic free? These...
How old are you? Are you living alone? Are you exercising at all? When was your last visit to your Rheumy? Staying in bed is tempting sometimes but you need to get up and about otherwise you will...
I am taking Humira for ulcerative colitis and Plaquenil for Lupus. I worry that you are getting seriously bad advice. Your daughter needs to be on Plaquenil and that should help with the pain...it...
Hi things seem very quiet on this forum.. it sounds like you need some help. Can you get someone to live in and work for you, and then they can drive you around as well as doing all the other stuff...
sorry for the late reply..I forgot I posted this!...that's Lupus for you!! Thanks everyone for your comments and I will bear that in mind....
Hi, well I'm no doctor, perhaps you could try azathioprine? I dunno, this is why you need to speak with your doc. I am taking Plaquenil at the moment for Lupus and Humira for Ulcerative colitis. I...
Well done!...
It is very likely that your recent flare is the cause of your hair loss. I wanted to mention though that I went through a very similar experience and was told the same as you, but for me it turned...
Bdimr..my reply was directed to the OP and not to you. No offence but you seem to have taken over this thread....
Hi Liamsmoma, it sounds like you have Lichen Sclerosus. I have it and from your description it could be that..many doctors are ignorant when it comes to LS which is why you have probably not had a...
Hi everyone, I saw my Rheumy yesterday and everything seems to be going well. I am on top of my Lupus and the blood tests that I had done all looked good...prior to this visit the last time I had...
It sounds like you have gone downhill. I would make an appointment to see your Rhumy and see what he has to say about it. How old are you and what Meds are you taking....
Hopefully, once the Meds kick in he should be fine and should be able to lead a normal life. I believe Remicade and Humira are lifesavers for many with IBD....
Hi, just take one step at a time. If you have proctitis you will be able to deal with it. I believe it is normal procedure to take some biopsies during a colonoscopy which you won't feel at all. The...
Wow! that really was an interesting read, thanks for sharing....
Well, I started on Plaquenil about 3 months ago and it does make a big difference. I have had no side effects from it either, only positive stuff. Your lupus is slightly different to mine, but the...
I'm taking Plaquenil and after three months I have started to notice a difference. Sometimes it can take even longer so I wouldn't despair as I am sure you will see some improvement over time. I had...
I think you just have to hold on and hope that Simponi works for you. If not then I agree surgery is the way to go..good luck....
Having rectal pain after a bowel movement sometimes for hours afterward doesn't sound right to me. I would definitely go back to see my GI for a chat....
Devastating news!..my thoughts are with you....
Crikey that is awful, also remember that they used to bleed sick people. "For thousands of years, physicians relied heavily on a single treatment for hysteria, heart disease and just about every...
Humira worked well for me, and I found it easy to administer. I understand your thought process but I also believe that more and more new drugs will appear over the next few years and you need...
Hi, yes everthing is fine thanks....
I post in the Ulcerative Colitis thread and sometimes here. In the UC forum people are usually grateful when someone tries to offer help, and they almost always respond accordingly. What I have...
Hi, I am gluten, lactose, salicylate, sulfite and histamine intolerant. I have Ulcerative colitis and MCS with multiple food intolerances. When I look at your list I can see that there are some foods...
Hi, is it possible she may be histamine intolerant? Hives, tiredness, anxiety and allergy to pineapple point to a histamine problem. Also, if you are giving her antihistamine and she perks up,this...
sorry, I can't help you. Vertigo is terrible, my husband has had it a couple of times. I hope you can get this problem resolved....
Hi, it sounds like you are having a rough ride. I have been taking 400g Plaquenil for almost three months and I am hoping that I will start to feel like my old self. The problem I have is acute...
Hi, thanks IMC, iPoop and ncot. Yes, that's the thread. I keep getting UTI's and I just knew he would want to know when I got my first one. I had a culture done and it came up nothing, and the...
Hi, Last year I posted that I had blood in my urine and you and others mentioned I may have a UTI problem. I can't remember what month that was and I have had four UTIs since then! and so I am seeing...
Hi, I have been through the same as yourself. I know that some bottled waters contain sulfites. What I did was purchase half a dozen small bottles of water from the supermarket, found one that i...
Yes, my top right and bottom right have started to hurt. I have no idea why....
That is sad news and terrible the way you found out about her....