i don't get any pre-post meds. just the Remicade. at 10 mg also. For me I notice a bit less energy the next day, but nothing that really slows me down or changes my day or sleep. i remember reading...
Thanks everyone. Cavalier9 - East coast actually. New Brunswick and Prince Edward Island....
Just wanted to say a quick hello and offer hope to those who are flaring. I've been in Remission for 16 months now on Remicade. Life does get back to normal. I was able to do several...
Uhmmmmm .. does my name give it away... :D...
Lr21, I don't do much diet wise at all. I've always been one to believe my body tells me what it wants/needs- so I eat well but not a fanatic on health foods nor to I avoid the occasional fast food....
Lr21 How long have you been on Remi? have you reached remission at all and this symptom returned or is this the last lingering symptom? I see you are at 5mg/kg@7weeks, I've needed nearly twice that...
Been on Remicade for just over a year now. and been mostly in Remission that whole time. I did have a minor issue this winter with some minor bleeding and mucus for like 2 months. My GI doesnt...
tooblessed, I'd say it is still Pred that is affecting you re:hot flashes. Give it time! you were on for a long time so 2 weeks off is really not much yet- hot flashes and puffy weight will go away...
Caitie, I've been on Remi since April 2013. A real godsend for me too! within 2 months I was totally symptom free and back to pre-UC kind of life! All was well from July til Feb. then in Feb of this...
Having just read up on tramadol (niece was prescribed a short dose), I'd want to get off of those as soon as possible Thoreau! .. they seem to be very addictive! I know you gotta do what you gotta do...
My understanding is also that the lymphoma risk is more so for young males for some reason.. As for the germs.. I work around preschoolers and they are germs on legs.. (lol) but I honestly feel...
I'd say 3 infussion is still early in the game and not an indication of antibodies... The way I approached it was.. if i had similar damage to external body part (e.g. say severe road rash on...
:) enjoy... that first year or two are busy ones for sure... we get used to our quiet old cats and know their habits like our own.. but it is fun to have new life and an easy distraction! 6 months...
Lr21, I know from this site everyone responds differently for Remi. For myself I had the 3 loading doses closer together than the standard protocol and except for the first dose i've always had twice...
Thanks everyone ! Those of you going through a rough time colitis wise ... Know it can get better!...
13 months after very scary flare that ended with a 3 week hospital stay, 6 GI telling me to consider surgery and a special approval to get both a rescue dose (closer loading doses) and ongoing double...
So just got back from my scope and I got a thumbs up from my GI! He said there was some scaring from last years ordeal, but other wise no ulceration, no inflammation. He said I had mucosal healing...
yeah.. Pico says works in 4-6 hours... well 45 minutes after drinking.. I was running to the washroom! lol...
interesting.. I had this last year for a while... never connected that it could be related... think steroids were out of my system by then.. but perhaps an after effect.. ? Happy to say it seems to...
OK here goes nothing... did dulcolax last night! 2 soft loose BM's already this AM And I just downed the first Pico-salax... fun, fun, fun... Now I spend my day drinking tons and eating Popsicles......
Ha I wish... Nope big prep for big full colonoscopy!...
So I'm scheduled for a scope on Wednesday.. not my first and not my last... but i don't remember needing to prep for like 4 days in the past... starting today I'm not suppose to eat nuts, seeds or...
Good to see an update from you Meerkat, Glad you are feeling better... it is such a scary process being so ill and not having any control over it! Hope Remi works for you for a very long time! -...
Depending on your view on surgery - it is really a personal decision. That being said I do think you have more options to try (if you have it in you.. ) You have just just started Remi - so hopefully...
well I was due for a scope last year around this time.. and since I was in such a major flare (3 weeks in hospital) we never did get to do it properly- as I mentioned... we tried 3 times in hospital...
Update Day 11 after latest infusion and still doing very well - thank goodness!!!! have not seen a trace of blood or mucus since Remi. yay! Also, got a call for my next scope, in 2 weeks. NOT looking...
one think I have to disagree with is that 5asa is not enough to get you our of a flare.. that all depends! for 7 years it worked for me!!!! (with the steroids on occasion). Everyone is different! but...
morning poop is very very common for UC! the urgency will decrease as you heal, but this may in fact be your new normal... :) I was never a morning person... but since UC I've had to become one... I...
in time you will... (pass mostly normal poo) if you are healing and the colon can absorb more of the enema. It is very normal for the stool to be covered in a light beige-ish tone. And if you were...
Feeling Hopeful today... Got my infusion on Tuesday morning, and ... knock on wood.. things have been really good for the past 3 mornings.... easy, long formed stools again - Yay! This is what I was...
Thanks everyone... (it's good to be understood ;) ) I'm terrified it will escalate again like last year... If it is just a blip (as in the previous 8 years) than that's fine - I can handle that! but...
ok here is short version of my story... Last year at this very time (april-may) I was in hospital for a very major flare. It took a whole lot of Remicade to get me out of it... (reg. dose, followed...
I suggest you look up toxoplasma and pregnancy risks a bit.. it is not a direct result.. cat litter : dead fetus scenario.. I've never come across a reliable source indicating breathing in as a risk...
Thanks ScottZ - I'm assuming it's a once a month as maintenance? If so.. even at double dose of Remi (which I get), Remi might still be cheaper.. I'll have to look in to this - costs may be different...
took me a few months before no more diarrhea too.. but it was nice to see each little improvement along the way... (less blood, less mucus, less watery, less sore, less gas, less cramps,) ....
How does Simponi compare cost wise to say Remicade? Remi is still working for me so far (fingers still crossed behind back that it hold- as i feel like I'm on the egde for the past 6-8 weeks) so I...
Jeepers Scum! so sorry to hear your ordeals continue on.... it's almost been a year now (in a few weeks) since we were both in hospital chatting / comparing our experiences! Really wish you were also...
My first dose was a 5mg, then 1 week later (instead of 2) we did a second dose and upped it to 10mg. I did not get any effects from neither the faster dose or the higher dose (other than finally...
Thanks everyone so far. I am already at double dose so not going to be going up I'm afraid. I'm focusing on the positives (not getting worse in 4 weeks, still not everyday, not feeling rundown like I...
I've lost a lot of hair twice - due to whatever... prednisone, 5ASA, or just plain old colitis flares (who knows for sure!) It is demoralizing when your hands are covered in fallen hairs while...
Hey everyone, So I've been in a very solid remission since last summer thanks to Remicade. Or I was until about a month ago. Started seeing a bit of bright red blood and occasional white mucus...
not for me either.. i'd say like Judy, perhaps more your worries and apprehension working themselves out!...
All due respect Thoreau, but unless she clearly asked you to help her figure it out or help her find more career options... sounds more like she was tell you about her thoughts more than asking...
I'm a bit in the same boat as you Red. Bee in remission on remicade for 8 months - no symptoms what so ever. last week and this I've started noticing constipation, and a little touch of either mucus...
has anyone here been followed/treated by an osteopath? thinking of going to see one (for overall health) but wondering if and how they can help with UC as well. ?...
A ha! that would explain it Judy, you are right... not available in US unless prescribed as cholera for destination travel... It is readily available without prescription here in Canada (no rbartolo,...
it's my travel buddies that brought it up this weekend, I'd still have just enough time, but inof is limited on line. I did read the parts that it can have interaction (one place seems to indicate if...
really ??? No one has used this product before a trip?????...
going to a resort in Mexico next month, looking into Dukoral, Does anyone know of any issues with UC or specifically with Remicade... I'm researching and will ask my doc. but thought you guys may...
Ok. buddy... that's enough now! You've been sick way too much for way too long!!!! Sending tons of positive /healing vibes your way!...