I can only speak of my own experience with Entyvio and Remicade. Needless to say, your mileage may vary. I went through 6 Remicade treatments--the last 3 being double dose. I had very little, if any...
That's great! Congrats! I've also gained back about 10 lbs of the 35-40 lbs I've lost over the last year. My GI doc is happy because it's another sign that Entyvio is working for me.--However, I was...
I also just had my final loading dose of Entyvio this past Friday (11/21/14). I've definitely seen slow, but steady improvement. (Before Entyvio, we gave up on Remicade after 6 doses--3 of them...
When I was on Remicade my infusions took no more than 3 hrs. Sometimes a few minutes less. I did not respond to Remicade and stopped after 6 treatments (including 3 double dose.) I've had my 2nd...
I had no issue with it getting approved. (I had dose number 2 yesterday.) My GI doc and I agreed on 9/29/14 that Remicade was not going to work for me and we should switch to Entyvio. We kept my...
This is great to hear! I go for dose number two this Friday--10/24/14. I am seeing, even after the first dose, some promising signs--definitely going less, much less urgency. I've been back on Pred...
Thanks for posting this. After several months on Remicade, including doubling the dose, we've come to the mutual conclusion that Remicade didn't work for me. I'm disappointed, because other than...
I'm sorry to hear that you've gotten C.Diff. I had it back in early June, and it was nothing short of a miserable experience. (I waited way too long to discuss with my doc--I just assumed my flare...
Later in the day of my infusion, I'm VERY tired. If my infusion is done around 11am, the fatigue usually hits me late afternoon--sometimes in the evening. I doubt it's the Benadryl, since I don't...
I feel that a lot of my problems began after asacol was no longer available. We tried a few different meds, and eventually were on Asacol HD--two pills 3 times a day. I can't help but think that it's...
Aaand there goes my literacy.... this is embarrassing. :p Thanks for pointing that out![/quote] Count me in as another one who can't read. I also read it as 14 days, and was thinking the same thing!...
Been on Remicade since 1/31/14--have had 5 doses: 1. I eat a light breakfast--which I usually do. The office is about 20 minutes from me. I usually use the bathroom when I get there--whether I feel...
When I'm having a flare GI doc is pretty good about talking at length with me (usually over the phone) about my symptoms, how I'm feeling, etc. He'll come up with a treatment plan, and always has me...
Well, I can only share my experiences having both UC and having been on blood thinners. I was diagnosed with UC in the 90's. In 2005, I had a rather significant DVT of my right leg. My UC at that...
I'm currently about 6 months into my Remicade treatment, with somewhat moderate results. My dosage was increased in early May, but I ended up with c. diff not that long after that, which caused me...
Hi--I'll throw in my own two cents for what it's worth. And as the cliche goes, your mileage (or your son's mileage) may vary. A lot. My own situation is that I am an adult (much older than your...
I've had problems with tailbone pain since my bout with c.diff last month. Currently the pain is not as bad/frequent as it was then, but it's still there. Even after the c.diff was initially gone, I...
This one may be too obvious, but we might as well start with an easy question--Are you eating any differently on Sundays--especially now that it's summer?...
Well, this thread caught my attention. I was started on Remicade for my UC at the end of January 2014. Didn't have much success with it through the first 3 "loading" doses. My GI upped my dose for...
Thanks again to all of you for the information and the welcome greetings. It's amazing to read the threads here. So much of what I read hits home for me. As I mentioned, I'll be discussing probiotics...
My own experience (and YMMV) was that after we got things under control, I was able to gently figure out what I could eat and could not eat. My doc was great about not just saying to avoid...
Hi, As you may have seen, I'm also new here. I certainly have had some of the same concerns as you with family, work, etc. Back when I was first diagnosed with UC, I also had some issues with...
Thanks! I actually had been reading (here) about probiotics--and will acknowledge to being pretty uninformed about them, or C.diff. (And I work in a health care setting!) One of my list of questions...
Hi, I stumbled across this forum while looking up some symptoms and issues related to my UC. As I began to read the threads, I found myself immediately feeling some sense of relief that "I'm not...