I've suddenly developed a horrible allergic reaction to my current system of Eakins seal and Hollister two piece. I'm now trying out the two piece Coloplast sensurable flex (I think... my nurse just...
I'm having troubles with a swollen stoma and pain when stool passes. I thought it was a partial blockage but it's been like this since Wednesday. My nurse says it would have cleared up by now if it...
I'm usually fine with any kind of food. Currently I'm on a mostly liquid diet though, with some mashed potatoes, bread and crackers here and there. Ugh, why can't the rough patches just stop after...
My stoma was always slightly prolapsed already. In fact, I woke up with one right after my surgery! Yeah, perhaps I should try to see if they can book me as an urgent appointment....
Thanks for joining! Always nice to have experienced people on here. I myself am having some troubles with my stoma. -.-'...
Perhaps it's the acidity or high sugar? I know that after I consume a drink with high sugar, I tend to get a lot of output soon after. I also read that coffee and tea help too so it may also be...
If it's more watery it may be a partial blockage. Perhaps try treating it like one for now; walking around, hot liquids, hot baths, laying on your side with your legs tucked into your stomach, a hot...
Hi all, Wow, I've been away from this forum for a long time! After my surgery in September I was in and out of hospital for my pancreatitis. It was a rough road. Finally diagnosed with autoimmune...
Have you contacted your surgeon or GI? I haven't experienced this either and agree to try using a more specific title to get more people to look at your thread. I hope you can figure this out soon....
I'm sorry to hear this. :( It's my fear about the subtotal colectomy, getting UC in the remaining areas. I hope you can find a solution that will work for you....
Wow, you're home fast, that's great!! Glad to hear your surgery went well. Just take it easy and relax now. :)...
Wow, 4 years, that is so long!! Congratulations for being able to live a UC free life and thanks for sticking around and being a big inspiration on this forum. :)...
Wow, yeah that is similar to me! I did have an hourish long nap at around 1pm.. it gave me a lot of energy. Now I'm up late again, lol. Planning to hit the hay in 15 mins though, going to try hard...
I am glad to hear that your pain sounds to be under control! Oh yes, much, much better. Hoping to be home from the hospital by Friday. The only thing keeping me is the TPN. The dieticians are...
Wow, were you in a lot of pain then? I'm sorry you went through this. I hope that at least the surgery went well, how are you feeling now?...
I would imagine that they would because they alter the gut flora. They kill bacteria, often times not only the bad ones you're after!! It's a good idea to take lots of probiitics after a course of...
Just wanted to let you know I'm thinking of you!! Can't wait to find out how you are feeling after your surgery. Right now I can't sleep. I seem to be able to sleep for 4 hours, then have to go pee...
I am not quite sure yet if I want the jpouch or not... to be honest, I am a bit chicken to go through more surgeries and the further possible complications a jpouch can bring. The temptation of a...
I posted my advice on the thread you made on the ulcerative colitis forum. You should read it, but don't let it scare you!!...
OMG good luck!! I just had mine done last Saturday (Sept 27) and I'm doing great so far. Yes, it is quite shocking seeing the stoma at first... I'll be honest I'm still grossed out by mine because...
I've been in the hospital now for 15 days and I've had quite a few neighbors during this time. One neighbour I met had the same surgery as me, same day, and walked out of here as though nothing ever...
Oh man, feeling a lot better today, thanks to your guys's awesome advice to move around more! Yes, it is hard as heck, but once I start and finish, I feel a lot better!! Maybe tomorrow I'll be well...
I did some more walking tonight and I actually feel better, albeit I think I overdid it a bit and felt a bit dizzy. But now I'm going to have a good night's sleep without the stupid NG tubes. Hoping...
Pluot, I just spent the entire day reading your blog. Just want to say it's awesome. I am trying really hard to walk but omg, this jelly belly of mine is awful, it feels like my intestines will all...
Ughhh, it is so freaking uncomfortable to walk. I did three laps today and it feels as though there is a bunch of jelly on the left side of my lower abdomen and jiggles when I walk. It doesn't hurt...
Wow, thanks for that Probiotic, gives me some hope that I will get better!!! Right now my abdomen is soooooo swollen omg!! I hope the swelling will go down. I knew recovery from surgery wouldn't be...
Wow, what a story... Makes it sound like what I'm going through nothing in comparison. You are a very strong person!!...
Tbh, it was also a resident who told me I could eat! She was pretty quick to suggest it to me because she asked if I was ready on the second day but then I said no. So when she asked on the third day...
There were three nurses helping me and luckily the one nurse was apparently very well experienced. This entire floor I'm on in the hospital is full of ostomy patients. Which kind of makes me...
The doctors told me I'll stay on the NG tubes for at least a couple days, until there is no more fluid coming out. So no eating or drinking for me, everything by nose!! They even put my pain meds in...
Well, I definitely regret eating the "ileostomy diet" tray of food the hospital brought to me yesterday for the first time. It consisted of a cardboard tasting hamburger on whole wheat. Then for...
Thank you all. I am still very happy but realized that my solid food appetite isn't very big at the moment. They gave me a hamburger for lunch and then chicken, rice and carrots for dinner and didn't...
Not to scare you, but my first flare started like that. Formed stool but blood on tissue. It soon went haywire after that. :( I hope you get the help you need from your GI before things get too...
So far I am really enjoying my ileostomy. Yeah, it is kind of smelly but I am excited to go home and buy some deodorizers for that. Today my surgeons switched me from clear fluids to full fluids. So...
Gary -- to be honest I intended on asking the surgeon to take a pic for me of what the colon looked like after they took it out. But from Saturday's order of events and the shock I felt from having...
All the docs keep suggesting the jpouch to me but I really don't want the troubles it may cause. I know lots of people are happy with their jpouch but so far I'm already loving my ileo!! It's looking...
I hope your surgery went well!! Let us know all about it when you feel up to it!! Thinking of you!!...
Couldn't be happier! I went for a (very slow and painful) walk with the physiotherapist last night and managed an entire lap around the hospital floor I'm on!! Afterwards I washed myself up (sponge...
Okay guys. This surgery was truly a blessing. I've been having acute pancreatitis attacks for the last two months. Just Saturday morning I had lipase levels of 600+ so my GI wasn't sure if the...
Today the surgeons came in to ask how I'm doing this morning. I started bawling my eyes out and telling them how much better I feel and how happy I am that I was able to have the surgery after all,...
Oooo, I'd love to try a naked shower.. Maybe in a couple months when my new stoma isn't swollen and I know when its quiet times are more likely... Sounds like it could be refreshing... Or just very...
Well after many possible complications and tears, I finally had surgery on Saturday night. Basically due to some bloodwork on Friday they were not sure if they could at all proceed with my surgery....
Wow. I don't know about my gut but I know that I can't sleep at all after watching a scary movie. I'm such a baby, my mind will keep imagining and visualizing things that aren't there after!!...
LOL woohoo, my colon just gave me my (hopefully) one final f*** you. Just had an accident at the hospital, so embarrassing. I'm hooked up to so many things, takes forever to unplug the machines and...
Wow, I am amazed you held out that long, good for you! That is horrible though, I hope the bathrooms at your work are fixed soon. That'd be tough for everyone though, lots of people have to pee often...
Thank you! Katmom, I can't help but keep thinking about you and your daughter because we're close in age and both have (had) UC. Well, my family and boyfriend just visited and saw me as I am now for...
I wish you the best of luck with your decision. After having a dreadful year and being diminished to a very low quality of life, I myself have made the decision to get the surgery. In fact, I'm going...
I am very sorry to hear this. :( What part of her digestive system is being affected right now? Small intestine, large intestine? I really hope medications will help her. I can't imagine going...
No, but I have access to internet here so I will post as soon as I feel up to it! I'm sure I'll be groggy the first couple days but apparently they want you up on your feet pretty fast to get things...
Well, it's official! I signed the papers, I am getting surgery tomorrow! Soon I will be UC free! Not sure what time yet because they're putting me in as an emergency so whenever they have a slot I...