Hi, NYC is allowing signups starting Feb. 15 for people that take immunosuppressants (I take Xeljanz). The New York site lets you choose locations that either have Moderna or Pfizer. Has anyone taken...
When I was hospitalized they put me a low-fiber diet (dairy, etc) to help w/ healing. I thought this was counterintuitive but I gave it a shot and actually felt better. After I got out, they...
Update: two weeks on Xeljanz -- no noticeable side effects -- feeling good but also on prednisone (now 30mg with a 5mg taper in a few days) so it's hard to say. Hoping things stay this way, will...
I started xeljanz this week, my insurance is covering it completely (BCBS). At first they denied the request but after two appeals it was approved. I failed humira, entyvio, (had success with...
Stared Xeljanz today, 20mg/day. Before taking I spent 4 days in the hospital getting prednisone IV and Cyclosporin. Hard to say what's working since I'm still on 40 Mg prednisone, but we shall see....
Any updates? Doc suggested I may need to start Xeljanz since nothing works....
thanks for the replies, i am taking folic but do need to get a blood test. esp since i have 1-2 drinks a week. hoping to stop mtx shortly...
was flaring for about 1.5 years, started humira and methotrexate (12.5 mg) about two weeks later, thankfully it put me into remission. after about two months on them, i'm experiencing some side...
which brand do you take? i should get some more. thanks for the update! glad you are doing well....
Doc advised me to take folic daily, thanks for reminding me. Glad it worked well, hopefully it does the same for me (with no side effects). @ipoop -- mtx to help the effectiveness of humira while i...
I just started humira and dont see any side effects. Also tried remicade and entyvio and never saw any....
are you still taking CBD? I tried some gummies which i think helped but i stopped. Should do another test run....
Tried 6MP long before the Remicade -- glad you're better. Exactly -- trying to throw everything at it. Cyclosporine was discussed but decided against it. Tapering pred in the meantime...
Just did 4 pens for my first loading dose but hesitating on taking methotrexate, I may start it in a few days just to give myself some time between these new drugs. I'm actually more worried about...
Similar age and situation as you. I just stopped Entyvio after 11 months, it wasn't working that well (for me). Before Entyvio I was on Remicade for a few years, which worked great until it stopped....
Any office job will have bathrooms and the ability to use them whenever you please. Look for admin type work or something. I give myself time in the morning, take immodium, and use the bathroom as...
I've been taking immodium every day for at least the last 10 years. It gives me piece of mind, especially when I travel -- I might take two doses, one at my normal time and one before the plane. I'm...
During flares, I'll stick to 1 ensure a day, chicken noodle soups, or egg drop wonton soups, etc. Light stuff. It doesn't always reduce my movements but it is easier on my body and I sometimes feel...
Stress is the reason why I get my flareups....
I feel your pain. Any situation where I feel "trapped" without a bathroom would give me anxiety. If I were in your position, I would wake up earlier, make sure to eat something, so I have my morning...
17 is tough, mine started when I was 15. I'm 31 now. When I was younger, I was afraid of all the medications, as time went on, I learned to accept it, and let them make me feel better. That's...
Just take the Prednisone and feel better. Don't worry about the side-effects, get healthy first....
Just an update -- did the AnserIFX test and my levels were low. I did 10mg remicade dose for the first time yesterday afternoon. How long does it start to work for you? I think I feel slightly worse...
Thanks for the replies. @gary -- That's good advice, I'll consider that. @kazbern -- Not intolerant, I take 4 Asacol HD every day (3200mg total), I'm not crazy about the enema approach either. @iPoop...
Been dealing with a moderate flare, had a flex sig this afternoon, rectum and sigmoid are inflamed, doc went in about 20cm. Put on prednisone 40mg now which is good, it will help get the flare...
White rice is also great. Limit it to one ensure a day, I like chocolate. I noticed drinking 2+ a day gave me loose movements and mine are pretty much always formed otherwise....
Stress is the primary reason I get flare ups, still figuring out the best way to get it under control after all these years. Exercise helps, I do hypnosis, meditate sometimes, or pursue my hobbies....
Diagnosed at 15 and now 31. Taken many medications and new ones keep coming to the market, you can live a normal life. Don't get scared about prednisone either, it works and gives you a life until...
I've been on Remi for 3-4 years and still experience flares every year or year and a half. At this point we may switch to entyvio or raise the Remi dose. Diet definitely contributes to my flare....
Google "remistart" -- remicade offers $6K a year towards treatment....
I can understand your situation at 20 years old. This started for me when I was 15, now I'm 31. Also in NYC, so I know how dangerous the city can be with breaking a good stride in taking care of...
Take an antidepressent and a drug like Klonopin. I take those and immodium and I am able to go out and live my life. Also, try meditating -- that helps. I downloaded an iPhone app called "headspace"...
My inflammation is also located in my rectum. I tried Uceris for a brief period but it was to avoid taking prednisone, by that time my flare was pretty moderate so it wasn't that helpful, I had to...
Currently on Remicade but experienced some flares over the past two years so my doctor wants to try Entyvio. Anyone got a list of common side effects? I didn't really experience any side effects...
@ByeByeUC what irreversible side effects did you experience later on?...
I've taken a Prednisone cycle almost once every year, starting at 40mg and tapering as my flareup goes away. Yeah my face gets a little puffy, I get a little moody, and I wake up super early, but...
Yeah I go to work. Come in around 11 though and leave at 7. Told my boss I'm dealing with a serious health issue, he's cool as long as I get my work done. I also take immodium and klonopin everyday...
I would do 10mg until 40, then 5mg every 5-7 days. Once you hit 10mg, I would be more delicate....
The more frequent you use them and the more you put inside, the better you will probably feel. I had to do enemas years ago and hated it. I prefer the oral steroids. What's the problem with just...
Yeah man, 31 here. I also sacrificed a lot of social activity due to my constant worry. Not sure where you live but there are bathrooms everywhere. I've almost become a master at walking into random...
Also going through a moderate flare right now, it sucks. I wish my doctor would just prescribe me Prednisone so I can start feeling better. He usually starts me off at 40mg too. I also take Remicade...
Sorry to hear that. Zoloft and Klonopin will make you feel better....
Hello forum, I finally made an account. During my routine flares I would always find myself on this site from google, searching my various symptoms and medicines. I figured now, going through a...