TSH - 0.81 t4 - 1.36 T stim Immuno- 37 Free serum- 3.0 TPO- 8...
Hi everyone! I'm usually on the Ulcerative Colitis forum, as I have that disease as well. Bummer! Recently - like the past year - I have been experiencing facial numbness on the left side and muscle...
VSL #3 . It's specially formulated for UC. You can't get it form your pharmacist - no prescription necessary - it's a bit expensive but works well, along with my Humira. FYI- I'm in California,...
I consider myself a gym rat and sometimes lifting lots of weights, especially, squatting cant trigger my anus (sorry for the details) to become a bit inflamed, equaling some uncomfortable feelings....
Hey all, Has anyone heard of the latest information on the Fecal Microbiota Transplantation. According to Clinical Trials. gov they have completed the study. Also, has anyone tried it? I know there...
My nose... Like deep inside, behind my nose... Hurts my head. Doctor said he didn't know. Had and ENT check me out and said everything looked fine....
I'll make this short and sweet... I've been on Humira going on two months now. Recently in the past weeks I've developed a disgusting, rancid, foul smell and taste. It gives me awful headaches and...
I'm so sorry you have to go thru this! Prednisone for me personally is a nightmare. What you are experiencing, muscle aches, joint pains... I had days where I could barley walk. Taper slow, not fast...
I recently switched from Celexa to an increased Lexapro dose. It took me a few weeks to feel human again. Your body needs to take time to adjust to the medicine. Anti-depresents/anxiety meds affect...
I feel you! I've dealt with anxiety my entire life. I'm one who is very symptomatic. I get dizzy, numbness, shallow breathing. Anxiety has very real and scary side effects. They too have lead me to...
@fruitgirl- I have extreme myopia too. I'm -9 in both eyes. I have been stable since I was in my early 20's I'm 29 now. I want Lasik, however my doctors told me to wait for my UC to go into remission...
I have severe myopia too! I'm -9 ! Seriously I want lasik eye surgery, however the docs want my UC to be in remission for a year before. Blah...
For the ladies out there... I'm 29 and my boyfriend and I have been discussing our future recently. Our two year plan is to get married and have kids. With that said, I obviously have so many...
You are not alone girl! I was diagnosed two years ago as well. During my period, my sypmtoms always seem worse. Even if I'm in remission. I take it easy, if it's really bad I take an Midol. It rally...
I've been on Humira for a little over a month now. It's amazing! For me it helped almost immediately. I have no blood, mucus etc.. I was going 8-10 x a day and in and out of the hospital. Now I'm at...
Awesome news! Since you have been on Predisone for such a long period of time, I would suggedst coming off VERY VERY slowly. I think you have the right idea for doing 2.5 for a few weeks then 1mg for...
I just tapered from Predisone. I was at 40 mg on July 11th and had to do 5mg taper weekly. My GI just said to stop after I take 5mg for one week. If I had a problem after that then 2.5 for a week...
Wow! Many of us have low thyroid. Very interesting. As for the depression issue at hand @Amandawastaken. I had depression/anxiety years before being diagnosed with UC. I also believe my Bulimia had...
It is hard to differentiate what illnesses are just a part of UC ! @banangirl - I seriously think I have neuropothy. I believe you're the one that responded to a predisone post I made a month ago. We...
According to my Doc, Toxic megacolon is VERY rare. If you think you may have it go to an Urgent Care and have them check it out. The ER, will look at you however, if you don't have it they will just...
I would love to know what other "fun" disease you all have? Would love to see if IBD'ers share similar health issues. Also, what medications you take for it. For me... 1. I got hypothyroidism at age...
I work in the industry... And very sad about the news....
I'm a HUGE fan of immodium . Obviously I only take it when traveling long distance or have a very important event that like you will make my nerves run rampid, thus = D Usually one immodium does it...
So I added up our average non-flare and flare BM's. This does not include before UC BM's. Non-Flare: Average: 2.7 Bowel Movements/Daily Flare: 14.9 Bowel Movements/Daily This seems about right! I...
Does anyone here live in the Bay Area and go to an IBD clinic? I have a great local GI. However, I want to add to my care team. Especially a clinic that only specializes in IBD. I have an appointment...
You can TOTALLY get out of jury duty. You have the biggest excuse in the books. Your doctor needs to write you a note and you're all good. I've done it time and time again. I actually think that jury...
Neither are affected by a sauna, not sure why you would think that? I would be more concerned if you were in a flare, and being dehydrated. For me, I always want to pass out in Saunas! Flare or not!...
I'm a BIG advocate of coconut oil! I love it! You will get a bit of a sweeter taste when you make things. An added bonus, coconut oil has made my hair and skin so pretty!...
Coconut oil, cocoa powder, ensure (lactose/gluten free) ... lots of peanut butter. Personally I don't recommend going the unhealthy route and eating loads of bacon and butter. The natural route like...
Garsh darn'it! I'm so sorry you have to be going thru this. Try and stay away from some of the posts leading towards the negative side effects of these biologics. I can't believe some people would...
Question: Since Predisone is potassium wasting, does it matter what does it's at for it to waste potassium? Here's what happened: So I just got out of the ER. :( Finally for something other then a UC...
@tunnelvisionary I too started having symptoms after I had to go thru several rounds of multiple antibiotics. I know there are some other people on this forum who have a similar story to ours. So...
These are great ideas! Chocolate milk, genius!...
I take Immodium only when necessary, doctor approved it only for long car drives, work meetings etc... It's dangerous because if you're in a flare you don't really want to get backed up, it can lead...
Gary- You're right it will be very valuable I hope. And, ,yes the video didn't offer much, it's CCFA what do you expect. If anyone else has a better video, feel free to share!...
Apologies if this link from CCFA has already been posted.... The microbiome research studies is catching on like wildfire! I feel excited for this research! What do you all think? In all honestly,...
Interesting! Thanks for sharing.... I just did a genetic/ancestry testing. Since none of my family members have IBD, possibly one of my distant relatives is Beethoven !? However, I'm terrible at...
Just wear depends and you can go anywhere! J/k...
I'm 29 and have always been right on point with my cycle. However, from predisone and possibly Humira now. I haven't had a period for a month! We will see.......
I've had hypothryrodism since I was 14 years old. I got UC when I was 26. Completley unrelated. If your daughter ends up having low or high TSH T3 or T4 she will only have to take a pill to correct...
This was similar to me when I was on Imuran. My WBC was 12 when I first started. A year later on Imuran my WBC decreased to 4. Eventually my doctors thought it was better for me to switch to Humira....
I don't think any doctor would ever make the diagnosis of UC without clinical evidence. Especially if you had a colonoscopy done. Advice for the future, ALWAYS get copies of your medical records!...
@bania- Couldn't have said it better myself! @betsaronie- Way to scare the shit out of people on Humira! Geesh....
I'm not sure why your doctor would say "denying him good nutrition is correlated from being Gluten Free. In my opinion it's quite the opposite, Gluten is very hard to digest and our good gut flora...
I feel like our disease would be easy to go viral, do to its "embarrassing" nature. We or CCFA could put something brilliant together. It would just take a good team of people with a great sense of...
@HateUC.... Wow! That is perfect. I'm jealous I didn't think of that sooner. I'm writing CCFA now. :)...
Colitis challenge: Take a sh#& load of ex-lax, go out to your favorite restaurant with your husband/wife and see how long you can hold it, while trying to have a romantic dinner for two ! @Guardian7-...
Why didn't we think of this for IBD! I think it's wonderful that they have already raised $22.9 million with this viral charity! The Crohns & Colitis Foundation needs to think of something for us...
I agree with everyone else, that doctor was very harsh saying Humira causes cancer. Again, there is such a low risk. My doctor, did not want to put me on Entyvio as of yet. Her theory being based on...
First of all, this site is most likely not going to give you an accurate result in remission. As many people who reach remission are out living there lives! I was diagnosed with UC in 2012 and was in...