Gary I agree with your sentiments about the $$ spent on treatment rather than prevention/cure. This is the state of our healthcare system and there's unfortunately not a whole lot we can do about it....
How does your body react to Imodium and how long does it take to kick in? For example if I take a pill at 9am can I expect not to have bowel movements for X # of hours after 10am or so?...
http://www.bidnessetc.com/40101-receptos-inc-rcpt-stock-jumps-on-successful-phase-2-results-of-ulcerative-c/ ...
Welcome to the forum. Sorry to hear about your condition and hope you get better. For me, I try to focus on 2 things: 1) focus on the positives - It could be a lot worse. This is a bad condition, but...
Got an email from the Crohn's and Colitis Foundation of America about this webcast on May 12th: "Join us for this webcast that will review complementary and alternative therapies (CAM) used in...
Hi Andy, welcome to the forum. I would suggest you try seeing another doctor for a second opinion on the treatment plan. While I'm not doubting your doctor's diagnosis of it being UC (though if he...
Yavw thanks very much for posting about your experience. I looked into sarsaparilla and it seems like a pretty low risk thing to try (with potential other random benefits besides potentially helping...
Yes agreed. Just last week we upped the suppositories to 2/day from 1/day so I hope that helps. As far as long-term steroid use I was under the same impression and asked my Dr. about this but she...
I feel like I'm very close to remission but am not quite there yet (still have some urgency) and hoping for feedback from others who may have followed a similar path. - At my worst my symptoms...
Are you taking prednisone by any chance? Prednisone was an absolute libido-killer for me....
I've been reacting really well to mesalamine (generic rowasa) enemas, I think I am nearing remission, and I've been thinking about how to get this treatment to be even more effective by tossing back...
I have got some Mesalamine enemas left over from when my doctor was getting me to take them, but unfortunately, they do me no goood :([/quote] How long did you try the mesalamine enemas before...
I too have been on oral mesalazine (Lialda 4.8gs / day) for about 2.5 years and just recently started using mesalazine enemas (generic rowasa 4g 60ml). I started seeing improvement after about 1-2...
Click on the 2nd link here, from Wiley - https://www.google.com/webhp?sourceid=chrome-instant&ion=1&espv=2&ie=UTF-8#q=what%20is%20distal%20ulcerative%20colitis...
http://www.rttnews.com/2384033/salix-s-fda-grants-tentative-approval-for-uceris-rectal-foam.aspx?type=corp...
Sorry to hear that Chrissy. I too was on prenisone for a few months, didn't quite achieve remission and absolutely hated the side effects. Coming off of it was a little rough but not for too long,...
When I flare I tend to react well to suppositories (Canasa) and enemas (Rowasa)....
I feel like I am approaching a similar situation. I've been on Lialda (also a Mesalamine variant like Asachol) for 2.5 years and tried a bunch of other compliments along the way but was never able...
My last colonoscopy was about a year ago but the notes then were mild to moderate colitis from the rectum to 20 cm. Yes it could be that his is farther up where rowasa isn't as effective. Not sure...
This is pretty graphic advice but hey, we're here to help each other right: when I first moved to NYC I shared a bathroom with 2 other guys and sometimes in the mornings they'd be mid-shower or going...
Guys thanks again for the advice and Old Hat for the Williams Street tip. They actually opened that office in December and Dr. Steinlauf has some office hours there though I was able to get an...
Have you tried seeing other doctors (not in the same office) to get a different opinion?...
Great point. Before UC I would still go multiple times a day (though without any urgency or other symptoms other than the frequency), my friends would sometimes jokingly comment on it and I didn't...
I've been taking Rowasa for almost 2 weeks now and would say my first BM in the morning isn't very well formed (mostly intertwined with the enema liquid) but the following ones in the day (even an...
Thanks all! A little bit farther away than I was hoping (I live in Greenwich Village) but I'll give these guys a try since they come so highly recommended. Liz, cool blog btw. IC what you did there....
How soon is your dinner? I would try taking 1 pill on a random day to see how it effects you (and to give you more peace of mind on the day of the dinner, that it worked before). I was on vacation...
Can anyone recommend a GI with strong UC experience? Preferably one who can administer biologics / entyvio. I did a forum search but didn't find any helpful recent threads (most were 4+ years old)....
Pre UC - 2-3/day (maybe it's got something to do with my metabolism - food just flushes through me) With UC / non-flaring - 2-4/day, mostly formed but with moderate urgency (30-60 seconds?) With UC /...
That is really encouraging and helpful. Thanks for posting, wishing you continued remission!...
Good to hear. I'm on Lialda and haven't made my way up to the biologics yet but they're next if this nightly Rowasa (going on 10 days now) doesn't help with my urgency. I miss hiking and being out in...
That is awesome, congratulations :) Yes, each of those considerations you listed at the end there are all too familiar. What has helped you to get so much better since January?...
Congratulations! That is great to hear, and thanks very much for coming on here to post an update because I'm sure I'm not the only one who's considering doing something like that (which feels more...
Katmom, wishing you and your daughter a smooth surgery, quick recovery and hasty return to having her (and your) life back!...
Hannah you'll be fine, it's not bad at all. The worst part is the prep the night before (make sure you have a bathroom readily available and no one competing to use it). You'll be going a LOT once...
One of the worst things about having UC aside from the physical effects, is the disappointment of not being able to enjoy certain things in life that others take for granted. One of those joys for me...
Thanks Chantrelle and Gary. I agree about the traumatic events. I don't think it was the mold itself (i.e. I didn't "catch" UC from the mold) but the effect it had in upsetting my stomach just weeks...
Hi All, Long time listener, first time caller here. I've been browsing this forum for a while and finally decided to make an account and start posting so I thought I'd introduce myself. I'm a 28 year...