I'm not sure what to tell you other than I truly consider Miralax my go to in situations when I'm wondering if I'm constipated. It is not a stimulant. My GI says Miralax. For me, Miralax, Preparation...
Can you get a flat x-ray to see how full of stool you are? Most urgent care clinics can do this. If you are full of stool, you may want to hit the Miralax (it's not a stimulant) and stool softeners...
I agree with the point to refrain from trying everything at once. My husband has thrown all sorts of supplements and diet strategies at me. If I notice I feel better, I have no idea why. I do oatmeal...
I've been on Entyvio since October. If you want great info, I'd recommend joining the private Facebook group Entyvio Warriors. Many here who are on Entyvio belong to that group. The organizer has...
I agree. That's two. On a similar note, I'm curious how one grades a poop. Do you grade it by how formed it is when it comes out? Or how formed it looks after, say, a few minutes in the bowl?...
For the past week I've been dealing with headaches and dizziness that comes and goes with bowel movements. I had to delay my Entyvio infusion by nearly two weeks due to a fever, so I know my UC is...
Any more updates on the Nopal? I ordered some of the juice made from the fruit and the pad. Though I feel like my pancolitis has receded on Entyvio, my rectum is still giving me trouble from time to...
My platelets have been high for some time. When I was diagnosed, they were as high as 860,000 per mcL. Now they are around 480,000 per mcL, but won't go lower. My GI thinks I'm nearing remission on...
For me, it all came down to measuring if I'd reached an effective concentration of the drug in my system. I hadn't and my liver wasn't handling it well. My GI couldn't take the dose any higher for me...
UCHater, I think it's great you are healing. I'm 5 months in and doing pretty well. The last week or so before my next infusion starts to feel a bit dicey. It tends to be a problem with urgency. I...
I just can't imagine that much snow. Wowzers!...
Wow, I've never made that connection. I think you're on to something, though. I'll have to pay attention moving forward. I use Tylenol for medication and a tube sock I've filled with uncooked rice...
I definitely agree with using your thumbnail to shave off the jagged edge at the bottom of the suppository. If it comes back before it's had time to break down, that edge hurts. I have no idea why it...
Leokorry, my guess is you are seeing suppository...especially in that first evacuation after putting it in....
In the early stages of needing Canasa, I would do one at night and one in the morning. After I noticed improvement, I would back off to just one at night. If you're just doing one, I'd go for the...
Miralax helps me when I'm swollen and inflamed. I get the thin stools, too. Hopefully you can get on something that starts chipping away at the inflammation soon. I'm sorry your remission has ended....
Yep. I had it on my shins in the months leading up to my diagnosis. Since beginning treatment, they've faded. I didn't make the connection until about 6 months ago....
Sounds terrible! I had an experience where I nearly fainted. I didn't realize until I read your post that there was such a thing as vasovagal syncope tied to an aggressive bowel movement. If you...
That was my deal. Normal liver profile, but toxicity too high for comfort. Please keep us posted. Though I hope the Entyvio works for me, it's good to know there is something I haven't tried yet if...
Interesting. I can't metabolize aza properly either. We didn't try a combo. Good to know. I'm trying Entyvio, but I may ask my doctor about what you're doing should it fail....
I always seem to flare when I go through something stressful relating to the well-being of a family member. Fingers crossed you get out of this flare soon. I know I like to eat avocados, baked...
I don't know that I have that same type of pain, but I use a long tube sock full of uncooked rice that I heat up in the microwave until it's hot to the touch. The moist heat it generates is heaven...
I thought allopurinol and imuran weren't supposed to be taken together. Am I wrong? My pharmacist cautioned me about combining the two when I'd failed the allopurinol and was switching to imuran. Is...
Katmom, are you going to be 'the woman wearing green' in East Lansing on Saturday? I drove by the students guarding Sparty today. Campus is ready for Michigan week. It's going to be a beautiful day...
I couldn't get the link from NCBI to work. I'm wondering if you need to be a member. I found another link. Is this the same article? It's from 2002....
Yay! I'm hoping my next infusion gets me back on track. I thought I was doing better, but now that I'm cutting back on prednisone, I'm not so sure. I've only had two infusions. My third is coming up...
For those who weighed in on my prednisone taper a few weeks ago, thank you! You were right. I was tapering too fast. I called my doctor and requested smaller pills so I could taper by dropping 1 mg...
That's not selfish at all. I wonder if you'd feel depression even more so since, if I understand correctly, endurance sports like distance running/cycling release endorphins. Experiencing the...
I second the "pain happens for a reason" point. Definitely worth a check. Although, I will say that since UC, I haven't been able to tell where pain is coming from between my hips and diaphragm. I...
Welcome to the forum. Sorry you have to be here, but it's a good place for information. I use the optiflora and like it quite a bit. It doesn't give me the gas pains others do. I've used the alfalfa...
I fill a long tube sock with uncooked rice, knot it off at the top and heat it in the microwave for 3-5 minutes...depending on how hot I want it. It works like a heating pad and it curves right where...
Spinach seems to help me, too. I usually just eat it in leaf form as a salad....
I'm pretty sure I had my first flare right after having my first child. I came out of it without meds. One day I had a perfect s curve and thought all of what had transpired ahead of that must have...
Thanks! I really appreciate this feedback. The pills I have are the 20mg, so they are hard to break into smaller than 5 mg, but I am getting a replacement batch of smaller pills. Katmom, I'm so happy...
This is fabulous news! Keep up the healing!...
Thanks, Katmom. I was thinking dropping below 10 mg would be the easy part. Guess I'd better change my game plan. Are you going to MSU v Nebraska? From your words, it sounds like you plan to be...
Hmmm, maybe I am tapering too fast. I have these 20 mg pills, so breaking them down into smaller increments than 5 mg might be tricky. Maybe I can get a prescription with smaller doses. Everything...
I thought my problems with prednisone would fade as I taper. Is it wrong to think that? When I was at 40 mg, I mostly dealt with restlessness and night sweats. Now I'm at 10 mg and it seems like I'm...
I haven't noticed an improvement to my energy. I'm so drained right now. I don't know if it's because of the entyvio, the fact I'm tapering prednisone (which has me waking up all hours of the night)...
I wondered if prednisone is adding to the spacy brain issue. I've got a few odd things going on that I have to believe are directly related to prednisone. It works, but it's not my favorite drug....
So, he doesn't want you to start the enema until he's sure you don't have a parasite? Miralax is my best friend when a flare triggers constipation. Maybe you can get enough in you to encourage a...
I think things are working. I didn't need to use the bathroom until this 3 p.m. this afternoon and it was normal in appearance. When I'm not dealing with constipation, I'm waking up every morning at...
Congrats! This is wonderful news! I hope you continue to see progress. I was supposed to get #2 today, but the infusion center forgot to request entyvio from the supplying pharmacy. Ugh. So tomorrow...
Yep. Though my usual spot for a sore is on the inner lower lip. It's the main reason I keep wondering if I have crohn's instead of UC....
I'm a week out, as well. No noticeable difference. I wasn't bleeding when I began, so it may be hard for me to notice the immediate changes. It really is easy to tolerate. The fatigue that hit at the...
I have issues with constipation. Psylllium didn't work well for me. Horrible gas. Miralax is my go to of choice. I add it to a cup of tea. I also eat lots of olive oil with things like artichokes....
Shucks. I hope you see things turn around soon. I start this week...I hope. I keep getting delayed due to pesky cold that got into my lungs. Seriously, I don't know how I'm going to stay germ free...
I've had that happen off and on when my protein intake/absorption was to blame. I ate hard boiled eggs and teaspoons of peanut butter when I was having trouble with meat. The swelling goes down...
Definitely thinking of you both! Today is a new day. Wishing your daughter a speedy recovery and recaptured life!...
I am scheduled to take my first dose of Entyvio at 9 a.m. on Tuesday. I'm hoping for remission, too, Bishop5....