Thanks guys... gary - just eating foods high in RS would work fine if this was for me - as I can reason with myself - but unfortunately this is for my son and trying to convince him of yet another...
For those of you that "take" resistant starch - how exactly do you "take" it?? Do you mix in water? Cook with it?? Maybe in a protein shake?? I've made potato salad and mixed some into there -...
As it was explained to us, they don't want him taking 6mp because if he needs to step up to the biologics there is an increased risk of cancer (can't remember what kind) with the combination of 6mp +...
Hi everyone, We are being told by our doctors that its time to move our son onto the next level of UC medicine. After having tried and failed various 5ASAs over the last two years - including one...
hi - i would call the doctor as others have suggested but just as a positive note - in our case, my son's bms seem to move from loose bloody to thick tar-like black/darn green (he's on iron) to...
Jardine - thank you for sharing your story - from my point of you - i'm just happy to hear that someone found something that works for them - hope it continues to work and you feel good for a long...
So I'm wondering "how" do you eat the spinach. Is it cooked or raw or both forms??? How do you know if it's helping what changes?? And I guess I have the same questions about sunflower seeds.....
How do you guys deal with this symptom?? My son experiences cramping throughout the day on most (not all) days - quite often he has to lay down on his side and squirm (usually for a few minutes) and...
oops forgot to mention ... he was going to the acupuncturist around the time of that flare - not sure if that helped the whole costochondritis thing - but can't imagine an hour of passing out in a...
Carol: a few people have mentioned to try Colazol - gonna keep that in the back of my mind in case (hoping not) we need to switch again.. we are in the US also - he just started the Asacol - i'm...
Hi Cavalier9, my son had this symptom during his last really tough flare. according, to his GI, costochondritis can be a pretty common issue when flaring. we were lucky it didn't last too many days....
Just wanted to give a quick update. Its been one week since our switch from Pentasa (6 pills a day) to Asacol (4 pills) and there has been (dare I say it..) some improvement. He has been having about...
iPoop: he's taking 4 x 800mg pills of Asacol (one in the AM one in the afternoon and 2 before bed). I'm assuming the dosage is based on his weight... and he is on the lighter side. And yes, the...
All i can say is - Wow - most impressive!! To be going through so much physically and mentally and still be able to accomplish so much - that's amazing - I give you credit. Congrats on the baby!...
Thanks everyone. Today is actually day 3 on the Asacol. I'm really really hoping this works. iPoop: Luckily, his symptoms are not the worst they've ever been. Mostly, stomach cramps occasionally...
Hi all - GI suggested that we try switching from the Pentasa that my son has been on for about one year to Asacol - just a last ditch effort before going on the something stronger. The Pentasa worked...
soystud - thanks for the link - gonna give the powder a try this might be a stupid question - but does anyone know if i can just mix the psyllium seed powder into pancake mix (for example) and bake...
So I spoke with our GI about adding psyllium. According to her, it seems helps UC patients whose only symptom is loose stools but are otherwise in remission (no blood, no mucus etc). We are getting...
Thanks again everyone for all your feedback. UCandme: i guess if i think about it - we are basically following the low-residue diet: white bread, white rice, pasta etc soystud: my son was a big milk...
Soystud - what is the "upside down statue of liberty position" - i'm almost afraid to ask - lol Fruitgirl - gonna try and convince the GI to let us try the sulfite free version and see it that helps...
Thanks - wonderful to hear something positive on here. We've been battling my son's flare for almost a year now - at times it feels like there will never be an end to pain and anxiety. So helpful to...
Hi Medz, just curious - do you find using psyllium supplement helps you with the incontinence related to UC? I ask because I have found this is to be the biggest "quality of life" issue for my son...
hey Alex - that's a good idea - i will try squeezing the enema more "forcefully" going forward (about to give it a shot now) - to date i've been gentle - always afraid i might trigger the need to...
I'm trying to figure out what to feed my son while he is flaring. The info out there is so conflicting - at least i think so - and this may be because what works for one person doesn't for the other....
Thanks all for your feedback. Alex: sounds like the rowasa works very well for you - do you know where your inflammation is? - i think my son has left-sided UC - 35cm up from the bottom (is how the...
Wishing you and your daughter the best of luck today and for years to come. I sincerely hope this is the beginning of a healthy and happy life ahead. It's much harder to watch your child have to deal...
Question: When you are using rectal medicines - specifically enemas - do you ever have formed BMS? Long story short: My son was on a Vancomycin taper (for c-diff) which went on for about four weeks....
Thanks so much everyone for your feedback. Its great to have access to so much insight. Thanks for guidance on FTs. I think its time to push the subject more with our doctor - and if not - figure out...
Hi, Based on what i've read - there are multiple benefits of taking quality fish oil pills.. so now the whole family takes them - but especially my son who has UC. Given how much Omega 6s (cause...
Hi everyone, I'm completely new to this and am very grateful for this forum. A couple of thoughts / questions. My son was diagnosed with UC last year. After a few months of remission he ended up in a...
We made a huge mistake in not taking the Rowasa with us on our recent vacation! Same issue - could not figure out how to pack it and figured we were only going for 6 days so it wouldn't be a big deal...