I have been on entyvio almost 2 years.. the longer on it the better it seems. slow at times but labs are normal for the last 6 months. Still have a pull up on.... but not so bad anymore....
never symptom free... leaky butt, gas gas and more gas. But over all feel so much better. Not as many accidents, can actually drive to work without looking for bathroom most days. More problems just...
have been on entyvio 1 year. Noticed last 2 months slight bleeding but yesterday actually a clot or 2. Have had mucus and fluid leakage for 2 years. My GI say he has no other treatment to offer at...
I am proud of the strength in so many with UC. Notsosicklygirl... you are a brave lady and wish you only good health from your surgery. If I were younger I would probably consider the same route. I...
Surgery is surgery.... it changes things in your body forever... no backs. It is not for everyone. My PCP and I had this talk and he feels the same way I do... When the colon is gone... there will be...
best of Luck... will keep you in my prayers. Be strong... it is not childish.......
no RA....checked recently...... Surgery is not off the table .... I am really getting tired of the steroids, pain and mess...
Dry eye sjogren related I am sure. Prednisone is low dose 5mg daily...MTX is also low dose 5mg weekly. His plan is to increase...to a higher dose. so far the joint pain was the worst out of all of...
Have not posted for a while. Remain in remission according to MD, but really doubt it. Still pink drainage, some urgency at least every 2 wks. BM's depending on what I eat... maybe 3 to 6 small ones...
gRAVES DISEASE AS A TEEN ... NOW UC AT 60 YEAR...
on entyvio 9 months still have a few accidents but not as bad, like a volcano. Usually the week after my iv is a little rough but with diet changes and entyvio is so so much better. I ran out of...
had xray of hand and lower limbs and lab done...
New dx of osteoarthritis...hand and knee pain... Has anyone found anything that helps that does not cause flare of UC...
just finished 3rd 8 week IV of entyvio. Gut is much much better except near time of next dose... Joint problem though....
Had work up done. waiting for results that included xray. Had entyvio yesterday.... joints and stiffness still there and miserable. Waiting till lab comes back Monday to start methatrexate...
the majority of the pain started when I was originally on remacide. To me it was like chemo. Now the areas that hurt before are swollen and warm. Guess I make a good lab rat....
Excuse the spelling. I have a new key board and it does not like me. Have been taking entyvio since 9/2014 with fairly good results. I have now developed joint pain with swollen joints to 2 finger...
Thank u so much for your response. Ours sounds just a like. You are right about the pain..it was terrible.. almost like a kidney stone passing... One horrible burp and relief but until then, OH MY. I...
I just passed 6 months.... missed 3 wks of treatment due to the flu... but still in remission on entyvio. It is the only thing that has improved my life....
I know UC causes gas but... I could fuel a small city. Some days more than others. I have tried the low gas diet from my GI but no help. I have times where I burp burp and more burp then the other...
I am very happy for you. UC effects all of us in different ways and to different levels. It is good to hear you are doing well. It gives us all hope...
opth. said yes to the taper causing the pain and eye problem.... It is amazing we make it though all this...
have not posted for a while.. Feb had flu, followed by UTI, bronchitis, sinus infection and eye problem related to UC. Had the flu shot but had flu anyway.. and was on a prednisone taper... As I got...
I have been on entyvio for 6 months, while I want immediate results.... it can be slow. We did not get this mess over night and I am sure yours and my colon just need time. Entyvio is so so much...
aza ....could not tolerate..... Gary you have good information.. will be going to GI this week... to update and get on track. thank again...
Also tried Canasa... Really did not help....
mesalamines were no help.... actually made things worse. Ended up in hospital while using them.. MD felt I had allergic reaction to them. Blood veins in legs and feet started to break rapidly.....
on entyvio..... for mtnc. But have been on prednisone .... I have stayed on the reduced doses about 2-3 weeks between the reduction. The tenesmus shows up around the 3 day and last about 4-5 days...
Have been working on taper since Dec... slow business. Has anyone had problems about 3 days after reduction. Reducing 2.5mg every 2 wks, then tenesmus shows up.... backup2.5mg, then down then back....
I used 5asa and Canasa 5 months. then to Remi...
Thanks for the support it really help.. You are right about the taper... it is hard.... but UC is hard for all of us. Had accident at work again today.... but not as bad and this afternoon is better....
my gi also dicussed this as a option for me.... have not needed it yes. Hope all works out for you...
Just a update. Completed first series of my 8 wk infusion 2wks ago.... The last 3 days before the infusion not too great but was also on prednisone taper. Started the taper on Dec 17, 1st 8 wk...
I understand your concern. I too developed antibodies with Remicade(1.5 years) and simponi (8months). So far entyvio is doing ok. I started in sept...and just finished dose 4. Trying to come off...
thank you...I always get good information from you. Happy New Year...
remicaide was like chemo for me... simponi fair.... entyvio better and working better...
MD stated clinical remission on 12-17-2014. I started my pred. taper from 15mg on 12/17/2014.. to 10mg .. 3 days later tenesmus ( excuse the spelling) started. Went up to 12.5 and it stopped. Had...
number 4 next week.... taper is no fun... 3 days and tenesmus...
well it is still slow but seems to be working. Went to GI yesterday and said I was in "clinical remission" , first time in 3 years. Started prednisone taper today. Still a few accidents after...
entyvio seems to be working for me. finished my last loading dose... it slow but oh my gosh... so much better. I pray for all of us who need it that it works for all of us. Too many poops to count...
I am doing about 8 months. Went from 1 polyp to 10 during that time due to imflamation...
it is nice to hear someone doing well... Good For You... it gives us hope...
I missed 3 days on my last infusion, and started to feel it . Hope you get out of the snow soon. In Texas it is just plain cold... Have not had snow in years....
same happened to me. then when to simponi for 8 months and it failed... now on entvyio for 9 wks and good progress...
Tried azothaprine... really made me sick. Nausea and vomiting Lab work was all normal just before starting entyvio.... lab due in Dec...
I pray all us will get there soon... UC is a life changer...
The weeks have gone by fast. Feeling almost normal at times. More good days than bad. Still have some days that I have a lot of gas sending me to the bathroom with spots to pink mucus but not like...
For me Entyvio is much better. Not the sick feeling and little response from Remi. no swelling like simponi. While both worked well to start, neither were long term for me. Eight weeks on entyvio and...
Started entyvio 8 weeks ago and pooping in pants is better. I agree one fart and run for the pot... you never know what you are getting gas or poop. People where I work have learned to move when I am...
would love to be in remission. On entyvio for 7 wks. better but no remission. Today I hurt for the first time since starting. not bad just a reminder that all is not well...