At the 10 week mark with Humira. Felt wonderful after the starter pack and then things started to back-peddle once I hit the maintenance dosing. How long should I stick this out? Is it common to feel...
Anyone using this for UC? I have failed Remicade and Entyvio and this is my next step. My doc is sending in the paperwork for approval....can anyone share their insurance experiences on getting this...
Anyone using this for their Ulcerative Colitis? Would love to hear experiences with starting it and whether it made your symptoms worse before it got better?...
Have read the numerous threads on here about the positive effects of adding this to my regime as I am flaring right now and am desperate for some pain relief. I have seen many different doses that...
Want to try these for Ulcerative colitis and I need recommendations for what enema syringe to get and also what Vitamin E oil to get and how many drops/ML to add to the syringe? I have been looking...
Does anyone juice for their Ulcerative Colitis? If so, how many meals do you replace and have you felt a difference? How long did it take to notice a difference and how many ounces per juice do you...
Anyone here take this for Ulcerative Colits? How effective has it been? Does your insurance cover? Thanks for any help you can provide!...
Does anyone just poo mucus alone?? I am in a flare right now and just started pred 40 mg on Wed (so I have had two doses.) Granted I am going less (the last week has averaged 4-5 times per day) and...
I'm totally allergic to any mesalamine so I'm trying the budesonide (Uceris) foam. With the foam it shoots one huge poof up there. It feels like it covers a lot of area since the aerosol can releases...
It's only been a few weeks but I noticed that when I did the foam a few nights in a row that I would get stomach cramping (mainly lower both sides). It literally felt like someone took me out back...
Anyone get terrible abdominal pain from Uceris foam??...
I had the surgery about a week ago so luckily I haven't had any trouble going poop and it's been nice and soft, but after my bm this morning the cramping got out of control and it's scaring me...
Do you know if you pain was abdominal pain or rectum pain? My tush feels perfectly fine its the abdominal pain that is worrying me....
I need to know if abdominal cramping/discomfort is common with a hemorrhoid banding procedure. My tush feels fine but my abdomen is very tender and crampy. Please help! I called the surgeon and they...
You are referencing the foam called Uceris, correct?...
Anyone have ongoing stomach cramping and diarrhea after getting your appendix out? It's been 6 weeks and I still don't feel the same. FYI--I have Ulcerative Colitis and I do appear to be in a flare,...
The constipation was so bad I hadn't gone for a week. They had me taking two capfuls of miralax plus two colace per day. It took a few days, but I've now had two mushy poops in a row, , thank god....
Want to know if I should continue the stool softener after I'm now seeing softer poop. The doctor has me taking double softener doses right now and I wasn't sure if I should take 1/2 the dose today...
Question for those who have had to take a stool softener for constipation after a surgery or for other reasons... I had been taking stool softeners after my appendectomy and I've just had two mushy...
Hello all- I have UC and recently went to the hospital for appendicitis. They removed my appendix. Was prescribed Oxycodone and took about 3 pills per day max and went down to 2 per day 4-5 days ago....
I have been on Entyvio since July of 2015. Was on prednisone since Aug of 2016. This is the only drug that has kept me symptom free. A few days ago I started noticing some similar side effects as...
Believe me, I know it's not influenza. Even my primary calls it stomach flu. Regardless of what's it's called, my symptoms point to norovirus. Can stool samples assess whether it's gastro bug or if...
My symptoms started two weeks ago today. It started with me feeling totally fine and then within an hour I had diarrhea three times in two hours. Over the course of the first day I developed nausea,...
The only symptoms I have are occasional nausea, diarrhea 1-2 times per day and stomach cramping. My main question is whether me making the wrong food choices can prolong me getting better or not....
I have been feeling wonderful on a combination of Entyvio and Methotrexate for 18 months now and I got a stomach bug/flu last week. Felt terrible for 2-3 days, felt back to normal for 2 days then got...
Just got my colonoscopy and my doc was very encouraged and said everything looked good, very good in fact. I've been on Entyvio/methotrexate for over a year. The only statement on the results that...
Has anyone heard whether this vaccine will be helpful with UC as well as Crohn's? The more I read about it, it seems like they are starting to think that it may help more conditions in addition to...
I am freaking out hearing horror stories of weaning off pred. I have been on pred around five years at varying doses but I would say 80% of that time was 10mgs or less. I started my wean yesterday at...
Imuran was not my friend at all. Made me feel incredibly sick (like the flu multiplied by 100) and it made my liver numbers go through the roof. They took me off after five days. I am only one person...
How long does Prednisone keep? I have a script that expires this month and would like to use for my current wean and wondered if I should keep it as I don't want to waste if it's still good. Thought...
Geez!! All I did was call my Insurance company and they informed me I needed no Pre-auth, then I had my doctor and infusion center confirm. Luckily I've met my deductible so I don't have to worry...
I've actually had two and my insurance already paid for the first one. Fingers crossed for the second!...
Yes, the FB threads get out of hand and off topic most of the time, so I tend to pop between here and there depending on the nature of my question. I am extremely open about my disease (I have UC)...
I have been on some dose of Pred for almost 5 years now. The majority of this time was 10mg or less, however, there were some times @ 60mg or IV pred plus a small dose of oral, plus rectal as well. I...
Just recently had a flex sig and was put on Flagyl 500mg three times daily and Cipro, but because I was very leary of antibiotics, he said to just take the Flagyl. My script is only for 10 days and...
I have my first one this Friday and then my second on 08/14. I have an appt with my GI on the 24th to discuss. Should I just ask him to go straight to six week intervals to get things under control...
Was wondering if anyone here has taken E and saw relief after the 1st or 2nd treatments? I get my first one this friday and my next one on Aug 14th and I leave for Vancouver the very next day and...
Seeing two surgeons out of state over the next few months to discuss surgery (one at CC and one that was at CC but is now at Northwestern.) My main concern is recovery time. I orginally thought I...
I am only on the antibiotics for 10 days, but it's possible I may start the Entyvio this week. Is it ok that I am on antibiotics when I start Entyvio or should I wait to start when the course of...
Had a flex sig this morning as I have been flaring for a few weeks but even when I'm flaring I only go 1-4 times per day. I woke up this morning and did my normal mucus with poop balls.. Hehe. Then...
What's your advice on when I should take them? I have to take the flagyl three times per day and the cipro twice per day I was thinking of taking the flagyl in the morning at eight then again at four...
Just got my flex sig done and apparently the remicade/mtx combo is not working so I'm stopping both of those, upping pred to 10 and doing cortifoam once per night. My doc also wants me to take cipro...
I can't figure out which rectal meds have the most steroid in them and potentially can have more systemic effect.. I assume that proctofoam has less steroid/effects than cortifoam but I don't know...
To Pluot and Notsosickly girl- How long did it take to recover from each surgery so that you felt well enough to go back to work? I have a full time desk job at least but I find myself putting this...
Are these types of complications common in UC or are they generally only present in Crohn's? I typically only hear about these issues when I talk to Crohn's patients, but wasn't sure if I was at any...
Not ready for surgery yet, but I am currently taking Remicade, MTX and 7mg pred (along with rectal steroids for my proctitis) and am researching surgeons. The main question has to do with my pred...
I was unsure at first about whether to get a perm ileo or try a J-pouch and I think I have decided to try the pouch. If I decide to get it in 2 parts and they create the pouch can i still wait as...
Does "being on the formulary" mean that when I checked the website that it showed up as a covered drug with no pre-auth? Otherwise, when I type in a drug that needs this authorization it brings up...