I have a few questions but dont know how to pm you?...
Sorry to hear of your troubles jiujitsulogan. I never figured out why prednisone made me worse. I tried it twice and both times flared horribly. I was tested for every parasite they could think of...
Hello, I haven't been on here in a while since LDN helped me into remission. Hubby and I are now wanting to try for our second child. I know that pregnancy can do all sorts of things to ulcerative...
Thanks for all the responses! Red34 16 years of dealing with uc must have been awful! And I thought my 4 year flare was bad! uc since 98 congratulations on your new pregnncy, I hope everything goes...
I was wondering how uc has effected people's pregnancies on here? Im particularly interested in those who have had multiple pregnancies, and if they were similar? I have one daughter and had started...
Bummer. I went through a few pajamas and undies while flaring. I agree with malaika, it may be time to look into diapers/pads. This disease can be a bit undignified at times :(...
That was supposed to say it worked better than mezavant (asacol). I need to turn off autocorrect lol!...
About a month but it didn't get me into remission, it worked better than Mexicans though (adagio). LDN was what finally put me into remission....
I'm not sure about the prednisone because it has always made me worse, but if you choose to retry sulfasalazine, start low and work up from there. I had horrible headaches and nausea/vomiting at...
I've never had that but prednisone is a nasty drug with endless side effects. Sounds like the chewing is some sort of anxiety based thing? Maybe try some deep breathing, relaxation techniques. You...
Well I haven't been formerly diagnosed with hemerrhoids yet, but I've self diagnosed myself with them recently. They came after 4 years of uc for me (unless I've had them longer and just didn't...
Is cranberry supposed to help uc? I have the unsweetened concentrated cranberry juice occasionally if I feel a UTI coming on. I've mixed it with black cherry juice too, and sometimes I do feel like...
LDN may get you out of your simmer, it worked for me very well....
Ok I just read up on internal hemmies bursting and it does sound likely that that's what this was. Phew, thanks guys. Does anyone know if preparation h suppositories would be ok to take for someone...
I did seem to develop external hemmies a month ago (painful, and when I looked there was a big bulge around the anus). I used witc hazel pads and it appeared to go away. Could an internal hemmie...
Update: went to the washroom again and had a small solid poop, no blood. It appears there is one spot in my colon, a bit higher up, but not too high, that is torn? Could this happen? I don't feel...
I'm not really sure what just happened to me. I've been doing quite well, 1-2 solid bm's per day, and rarely see blood (if I do, it's just a tinge). This morning I went to the washroom and and a...
I'm glad you found out what was bothering you! For some people it is as simple as a food intolerance, for others, it isn't so simple. I've been off wheat, dairy, sugar, all starch and various other...
I have never tried psyllium, but a quick google search says it can be used as an egg substitute (said 1 tsp plus 3 tablespoons water is one egg). Maybe I will try the psyllium this week and see how...
I'd say yes. This is off Wikipedia: "A number of medical conditions may lead to internal bleeding. Common causes include trauma, various pathological conditions and complications of medical therapy....
I used to eat eggs for breakfast until I was told I had to stop eating them (they were one of the top 3 of my food intolerances according to an IgG blood test). Now I eat buckwheat pancakes almost...
I don't personally have a problem with it raw, but every colon is different! Like soystud said, best thing is to try it and find out for yourself!...
Actually I've tried the cherry juice before and it does help, I never considered the antioxidant factor. That's interesting because my naturopath recently put me on something called mito-matrix,...
I tried the canned stuff once and thought it was positively disgusting! Frozen tastes much better and healthier to me, for about the same price!...
Oh good to know! I guess that's what made my last sentence go into tiny font!...
Oh and imagardener, kale also works, I just find it can make me a but gassy, but I think any dark leafy green probably has similar properties, spinach is just the most available to me, and cheap!...
I eat the frozen stuff, I'm not sure if it's cooked prior to freezing, but it does look cooked... In the morning I put half the block (150g or 5 oz) in a blender with fruit for a smoothie, in the...
It absolutely worked for me! Definitely worth a shot....
That didn't work......
That's an old signature, it's updated now....
I saw definite improvement on LDN after 11 days. I've been on it since February (so 6 months ago) and this past week, I'd say I'm pretty much in remission (after a 4 year long flare!). I'm not sure...
I remember reading a while back about a "spinach and sunflower seed diet" helping ulcerative colitis. While I can't seem to tolerate sunflower seeds, but have always noticed spinach really helps me....
It's a stool test and costs $800. Just google "metametrix comprehensive stool test" and you can find it. It needs to be ordered by a doctor, but I believe Diagnostech does one you can order yourself,...
My friend's husband has this! Took him a long time before he realized that's what had happened, weird stuff......
I did on advice of pk for a short while. Something happened though and I stopped taking it (I can't remember what, maybe I was flaring and wanted to stop taking so many meds or something). Anyway, I...
It does, thanks Quincy!...
Unfortunately I have no idea what is means. The things that were in the "red zone" were low elastin, acidic stool, very high n-butyrate, high streptomyces bacteria, low fecal slgA. These were my...
No I'm just on prednisone and sulfasalazine, Ive never been on an immunosuppressant. I was only on 7.5mg prednisone at the time of the bloodwork too. Predisone makes my uc worse too, I wonder if it's...
Has anyone else had this? I was getting some blood work (micronutrient testing) from a functional doctor (doctor/naturopath) and they could not give me results because my lymphocyte count was too...
I had mild proctitis that got much worse during pregnancy, then even worse postpartum. Now 3 years later I'm still flaring. I think everyone is different, it's a bit of a gamble! I'd never get...
Yes steroids are pretty scary James. 60mg for four months seems insane! I was at 45-50mg for two weeks and that felt too long! I have been dealing with nausea by splitting my dose (5mg in morning,...
Wow, quite the story. 40mg for four months too, Im surprised they let you stay that long for that high! And to think you had to tell them what the problem was through a book!! Goes to show we really...
You may be right DennyRae. I stayed at 10mg a couple extra days, last night i finally had no nausea so I dropped to 7.5mg today and so far Im ok, just tired and a bit if a sick feeling at one point...
Ya that's the first thing my doc tested for, I was negative. I must have some sort of infection, just have no idea what.....
Lately, extra old cheddar cheese on a French baguette, or pizzaaaa, mmmm (not that I can eat either). I often crave vinegary stuff too, salad, pickles, etc....
Ok, hmmm. Guess I gotta work on a new theory. Ncot I don't think the bleeding is from my upper GI tract, it would look different (and feel different too). I know prednisone messes with blood sugar,...
The only thing my skin responds to is uvb phototherapy, but that causes cancer so... Ya, may just want to try topical. Psoriasis in an internal thing too, related to the gut, some people find dietary...
Worse after starting, then once I get below 20mg things start to improve. Im starting to think I don't even have ulcerative colitis, this is just weird......
I have psoriasis and uc too. I think most of the biologics that treat uc also treat psoriasis. I think imuran/6mp would also work, and is usually attempted before Remicade? Ive never heard of Cimzia...
Im not talking about it just not working, I know some people are prednisone resistant, but has it made anyone actually worse? And did getting off it make you better again? Please share your story if...