I've was diagnosed 20 years ago. I've tried every diet out there. Nothing helped. Last December I finally decided to try a Biologic and went straight to Entyvio. I just had my 8th infusion last week...
Entyvio......
I've been dealing with UC for 22 years. I had my 4th Entyvio infusion a few weeks ago. I wouldn't say that I'm 100%, but I'm getting better. WAY BETTER! I haven't had any side effects besides feeling...
I go for my third loading dose tomorrow. I've seen improvement since the first dose. The only side effect I've experienced has been a little fatigue the day of the infusion. It's gone by the next...
There's a group on Facebook called "Entyvio Warriors" you should consider joining. Lots of info being shared there... I'm not currently on Entyvio, but I'm considering it. I've learned a lot from the...
There's a Facebook group called Entyvio Warriors that I'm a member of. I'm not currently using it, but thought I'd join to see how people were doing on it. I think one of the members was part of the...
I've had 9 colonoscopies and I've been a type 1 diabetic since I was kid. You think I don't know about low blood sugar. I've never had a problem keeping my sugars in check while prepping for this...
Suck it up! No ones ever died from not eating for 38 hours... People starve to death daily and you're whining about not being able to eat today....
Entyvio is a gut specific biologic that didn't just show up yesterday. You would expect a gut specific doctor to know about it. Even if he/she is busy....
I'm a simulation project engineer for the Army's rotary wing flight school. I have access to 48 level D full motion simulators and instrument flight trainers. Chinooks, Blackhawks, Kiowas, Apaches,...
I took a single prednisone a few days after I was diagnosed. It shot my BS up too 500. I never took another one!!...
Diagnosed Type 1 in 1979 and UC in 1997. I've been using an insulin pump for the past 11 years. Makes things easier. They both suck, but UC sucks more....
I think a lot of the people in the Entyvio trail would disagree with your doctor. Some found it very useful......
I've been eating this since I first noticed it on the shelf at the supermarket years ago. I've probably eaten around 1200 containers of it since then. Never had a single issue with it....
Interesting article on the CCFA website. http://www.multivu.com/mnr/65964-ccfa-genetic-microbiome-discoveries-ibd-crohn-s-disease-ulcerative-colitis...
I will be watching for your updates... Please keep us posted....
This might be a good question to post here: https://www.facebook.com/groups/LetsBringAwareness/...
Just wondering how everyone passes the time on the toilet. A few months ago I downloaded a solitaire (card game) app for my phone that I only play when I'm in the bathroom... Here are my stats: Wins:...
For some of us Prednisone does more harm then good. I took one 50mg pill 15 years ago when I was diagnosed. That was the last one I ever took. For me that stuff is poison... I agree with fruitgirl....
I do experience the same thing. Last week it was in my left wrist. This week it's in my right ankle. Once it ends in one spot it starts in another. Never 2 places at the same time. I do have minimal...
I've been a long time reader, but haven't posted much. I've had some interesting things happening the past few months that I thought I'd share. Back story. I was diagnosed in '97 with pancolitis....
I'm doing my prep today too... My prep has always been to take 2 dulcolax at 3pm then at 5pm I mix a 238 gram bottle of Miralax with 64 ounces of water. Add some Chrystal Light powder to flavor it. I...
There hasn't been a major cure found since polio in the 50s. I think most people agree that way to much energy is put into treating a disease instead of curing it. With all the advancements in...
I'm in for the play by play on this. Please write it out....
Here's a YouTube video blog that may be helpful. http://www.youtube.com/user/IrisUCVlog?feature= ...
I wonder if there's such thing as doing to much?...
Watch this short video. It should explain all you need to know about beans. http://www.youtube.com/watch?v=MDVrmSEZEKg ...