Thanks for these thoughts. My symptoms so far are blood, some diarrhea (although also some constipation of sorts), and mild urgency. So, definitely a mild flare so far. It's helpful to hear that...
Folks, I need your thoughts. I was on Remicade for a couple of years along with Imuran, after a very difficult time getting the disease under control (including several awful months on Prednisone)....
Yeah, I think that's good advice. Before Remicade I spent 2 weeks in the hospital and got down to 89 pounds...was never so sick in my life. It took a while for the docs to get things under control. I...
I only did SCD for about 6 months and didn't see any real change. However, it's hard to tell if the diet had an effect because the Remicade works, so I don't have symptoms that get better or...
Thanks for sharing that--that's great news. I wonder, though, if people recommend changing course if what you're doing is working. I'd certainly like to reduce my cancer and infection risk but it...
Hmmmm...that's too bad. And the more I read, the more I see that it has the same scary side effects (e.g., vulnerability to certain cancers). I guess we'll have to wait and see. As I said, I'm lucky...
Are others following the progress of Xeljanx for UC? http://news.yahoo.com/pfizers-xeljanz-meets-goals-ulcerative-colitis-trials-170322465--finance.html Perhaps someone else has read the journal...
I'm on Remicade plus Imuran (recently started having antibodies to R, so Imuran was added) and sometimes my poops are so "normal" I want to show them to someone. (: But I agree with others that...
Found out doc is now considering adding methotrexate...not sure if that's better than the others--it sounds scary based on what I've read. Will discuss other options with her when I'm there next. I...
I get my infusions at my GI doc's office (every six weeks now; not sure of the dose but I think it's nearing the max) and they draw and test the blood each time I'm there. I'm not sure who actually...
Wondering if anyone has found a great cell phone app for keeping track of food, BMs, etc. I tried doing a food journal by hand but it was kind of a mess. Hoping if I'm doing it on my phone I'll be...
Similar story here--great response to Remicade. Hopeful that it lasts! I have begun producing some antibodies to it so I guess I may need Imuran added. But maybe, hopefully, all will hold steady....
Actually, no...I think it's just straight-up Remi. (I was on Asacol for a while but had a hard time taking them and my doc said it isn't clear they really help anyway. On Prednisone at various times...
Hey all, I've been on Remicade since September and I'm having a very good response to it. I am at 6 week intervals and having no symptoms between infusions and no obvious side effects. My last...
What I meant was how would I know when it was worth trying to get off Remicade, not that I was planning on doing it soon. As in, how do you know if a diet is having an effect if you are on medication...
I am on Remicade (since last Sept.) and also trying the Specific Carb Diet. I am hoping not to need Remicade forever but I wonder how one knows it's a good time to try going without? And how would I...
Thanks for replies. I thought it might be reflux but it is SO severe, seems like something else is going on, not just acid (and I don't have other signs of reflux, which I have experienced before)....
These are the Asacol 800 mg...big for me, I guess (I'm very small). I don't know if I have inflammation in the esophagus--no one has told me I do. In the small bowel, maybe. I seem to be inflammation...
Hi all, I've been reading the forum a lot but have only just become a member. Appreciate all the info people are posting. I was diagnosed in Sept. with UC (already have autoimmune pancreatitis) and...