I had my appointment with my surgeon today. He is willing to do a partial colectomy if that's what I really want, but he does recommend total removal and a pouch. That's the way I was leaning, so it...
Thank you all very much for your responses, I really appreciate them. I’m not normally one to worry much, but I’m losing a lot of sleep over this - the appointment with the surgeon can’t come fast...
I received my pathology report back this afternoon, and I thought I'd post it while I wait for an appointment. Clinical Impression: 1. Polyp (2mm) in the sigmoid colon. 2. Scarring in the hepatic...
Thanks very much for the replies. My GI's office is going to make the appointment with the surgeon, so I'm hoping to hear something back soon. I will update this post after my appointment. Thanks...
I have been thinking a lot about that, and...I guess I need to keep thinking about it....
Hi, I'm looking to see if anyone has any information they can share about partial colectomies in patients with UC. My background: I've had UC since 2013, and was in rough shape until I started taking...
If you are going to wear ear plugs that often, you might consider looking into earplugs that are custom molded to fit each of your ears. I used to have a set, and they were very comfortable. They are...
I know of several people with UC or Crohn's, and when I have to explain to someone that I have UC, it’s not uncommon for them to say they know someone else with it too. Not to jack the thread or...
I started using Rowasa recently after not using it in a long time (a few years). Right now I have severe inflammation in the last 20cm of my colon, and at first I wasn't able to retain it at all. I...
I started Entyvio at a time when I was in really bad shape. At that point prednisone was the only thing that gave me any relief, and my GI thought I was headed for surgery in short order. Well, after...
I had a pretty bad fistula that healed without surgery. It started with an abscess over Easter weekend 2016. I didn't know what was going on at the time, other than it was almost certainly the most...
That stinks, I'm sorry. Remicade and Humira were like that for me. I stayed on each of them longer than I probably should have because I wanted them to work so badly. By the time I started Entyvio,...
I had joint pain on both Remicade and Humira, although not nearly as bad as you. I didn't know what was causing it at the time, but now that I'm on Entyvio I don't have any joint pain. I also have a...
I remember waiting for my colonoscopy and diagnosis, and how hard it was. Unfortunately, that's the only way you're going to find out. Your doctor should be able to give you a better idea immediately...
Oops, ignore that signature, I updated it...but it's not saving for some reason....
Sorry for resurrecting this thread, but it looks like I'm not the first to do so. :) I had my first thrombosed hemorrhoid over Easter weekend. The pain was horrible - I could barely function - and...
I've used these a few times. They are visible under a pair of pants, but I found that they held a LOT. http://www.amazon.com/gp/product/B001RD4VAE?psc=1&redirect=true&ref_=oh_aui_search_detailpage...
My first infusion was October 15, my second was 2 weeks later, and my third will be next Wednesday (November 25). After the next infusion, I am supposed to go every 2 months. I really hope it is...
LabCorp offers some of the tests that used to be Prometheus only, such as the test for Remicade antibodies. My doctor did not know this - it's something I found out on my own - and I had to ask him...
Casey, I had the same experience with Remicade and Humira, and have recently started Entyvio. My third infusion is next Wednesday. I didn't feel any differently after my first infusion. I was...
It looks like some of the doctors at Cornell do, but I can't tell if the hospital itself does. I have to research it further. I will also check out Dr. Monson...it would be a lot easier for my wife...
Thank you! Unfortunately, it doesn't look like Dr. Greenstein or most of the other doctors there are participating providers with my insurance (Pomco)....
I'm looking for surgeon references in New York (especially northern/upstate NY). I was diagnosed with ulcerative colitis in 2013, and I've gone through most of the usual meds to no avail. I just...
I hesitate to post this, but I am doing very well now. I got a 10 mg/kg infusion almost a month ago and I just took my fourth dose of MTX today. I'm down to 4-5 BMs a day. I still have some urgency,...
Thanks for the replies. I've had no improvement what-so-ever on the Remicade, and I can't take it with aza because aza gives me pancreatitis. I don't want to give up on Remicade yet, if there's any...
I'm not sure. My doctor wanted to provide me the information so that we could talk about it in person at my appointment next week, and how exactly this will work is one of my questions. This is the...
I've been taking Remicade since October (my 4th infusion was in January) without any improvement in my ulcerative colitis. My doctor ordered a Remicade concentration and antibody test and called me...
I developed pancreatitis from azathioprine this past fall. For me, it caused severe pain across my abdomen right at the bottom of my ribs, first starting 2-3 weeks after going on azathioprine. Each...
Nope. I suspect there are a few cases of IBS, and I have four relatives who have had colon cancer, but no IBD....
Wow, this is great, thanks everyone. I have a bunch to ask now. That's a really good point about the different dosages/medications and knowing what is working. I'm just really worried about sliding...
Thanks for the replies. I do have some Bentyl, but that's just for cramping, right? I haven't had that...yet. I will ask about the Imodium. If things continue to get worse, I will need something to...
I have an appointment with my doctor next Wednesday, and I’m looking for some advice on questions to ask him. Here’s a rundown of where I’m at: -I’m currently taking asacol, rowasa, remicade, and...
Cabelas sells rechargeable, heated insoles. They are pricey for sure, but I sure would like to try them out....
Not due to Lialda, but I developed pancreatitis due to azathioprine. It was VERY painful. Glad you're okay!...
No idea, not much of a cook, thought I would ask before I started begging for turkey carcasses. :turn:...
No reason not to use turkey bones, is there? This is the week for those!...
My batch turned out pretty well, I think. I had a mug when I got home and it tasted pretty good. I put it into mason jars and into the fridge, and it was jelled by bedtime. There's a thin layer...
I have a crock pot going right now too...Gary's article that he linked the other day got me going on this. It's been cooking for about 24 hours, and I'll let it go until I get home from work this...
I'm in the middle of an awful flare, and my problems are unquestionably worse when I lie down. I have a lot more gas and my BMs are a lot more liquidy. It doesn't seem to matter what I eat or when,...
I'm flaring badly right now - the last two weeks have been especially awful - and I've worked every day. My desk isn't as close to the bathroom as I'd like, and I've had a few minor accidents (and...
Thanks everyone, I really appreciate all of your advise. You've given me a lot of great ideas to try, and I'm going to try and hit the grocery store after work today. Thanks again!...
No, no doctor here! (Obviously!) :tongue: Thanks very much for the replies, all of you. Luckily, I have a wonderful (and very concerned) wife who is a great cook. That's a good idea about the broth...
I’m going through a really rough time right now, and I’m looking for suggestions on what I can eat that will cause me the least amount of discomfort as possible. I’m currently taking Asacol HD and...
Can anyone recommend a specific brand and style? Depends makes quite a few different products, many of which appear to me to be geared more toward urinary incontinence. I bought the style that Old...
You can stretch plastic wrap over the toilet bowl to catch the stool, and then use latex gloves to fill the container. It works better than it sounds!...
My GI's office is a beautiful, modern facility. You enter into a large, dual waiting room with comfy chairs, TVs, and WiFi. Off one side of the waiting room is the regular office, with the exam rooms...
I just wanted to update this in case anyone has similar side-effects and comes across this thread. My stomach discomfort got significantly worse after my last post. Turns out that I developed...
Thanks for the replies. I felt pretty much the same all day yesterday, except with a fever too. I think I feel slightly better today, but I just woke up so it's hard to tell. I'm pretty sure that...
I have been on 100mg of azathioprine for two weeks. I've been taking it when I get up, around 5am. The last 3 or 4 days, I've been experiencing some pretty good fatigue in the afternoon - starting...
I have a different but similar problem where I work - there are at least four people here that like to read. I swear they coordinate their trips too, because the only time both stalls are occupied...