Spoke to my doctors office today. They were not thrilled by the less expensive options I asked them about. They do not feel they are nearly as effective as Lialda. That being said they are going to...
In my case I have not had a complaint in the charges from a Doctor's office. Or any of the tests, procedures, etc. that either my GI or Primary Physician have done. I have considered the charges...
Yes, it became very clear after the first people chimed in that it was a price increase for me but not for everyone. Although we do not know if the manufacturer raised prices or the insurance...
I blame the entire industry. And when I say the entire industry I am including the Federal Gov't for failing to pass reasonable laws, e.g. tort reform, allowing direct advertising, regularly...
I am in a high deductible plan so no co-pay. I forget there are still plans out there with co-pays since everyone I know that does not work for the Federal Gov't has been moved to a high deductible...
Based on the posting above I checked the pricing on Pentasa. It is even more than the Lialda. At least for me....
I go through periods of extreme exhaustion. There are times where I end up taking 2-3 naps during the day and still going to bed early. Even taking provigil there are times where I still end up...
Lonie - I got the same sticker shock recently. I have been on Lialda for the last several years and this year there is a huge price difference for me. As I just posted in a new thread I have gone...
Anyone else experiencing a huge increase in price on Lialda? Last year I think I paid $135 for a 30 day supply. This year the same 30 day supply is ~$600. In both cases the price is after the...
Today is the first time in several (?) years that I have not had a single bowel movement. It has been long enough that I cannot remember the last time this occurred. That being said I really do like...
I take multiple Curcumin (Tumeric) pills a day. I take between 1.5 - 2 MG a day. I am not convinced it is doing anything. It is supposed to be good for your health overall but I can't say it is...
To me it is a very simple question and answer. I am very attached to my colon and the rest of my body. I DO NOT plan on losing anything I do not absolutely have to. So in the case of UC I am going to...
I am on Entyvio and am following the schedule from the packet 0, 2, 6, then every 8 weeks. I have called Tekada (the Entyvio manufacturers) several times. They have always been friendly, helpful, and...
It is funny. My doctor requested Simponi and the insurance company rejected it because I had not yet tried Humira. That being said they approved Entyvio with out an issue. I decided to skip Humira...
My urine color is based on what I am taking, eating, and the amount of liquids I consume. If I consume a large amount of water for example my urine maybe clear....
Your urine is bright yellow after taking a multivitamin because you are peeing out much of what you just too....
Hardly a reliable source of information. Just one of the many lies this charlatan has been caught in: http://www.huffingtonpost.com/2014/06/17/dr-oz-congress_n_5504209.html...
When I flare I continue both with both weights and cardio (riding a bike). There maybe an impact to how long it takes me to complete circuits/ride. However I make it a point not to let UC completely...
I hate to sound flippant but a flare is less painful than Orlando. Good luck!...
I am adamant about avoiding Predisone. Although I have taken the poison for short periods. Unfortunately for me Uceris made things words for me not better....
That really does suck. The older I get the less I am willing to accept crapping myself. A trashcan, reversing into a urinal, heading to the opposite sex's bathroom, etc. It really should be all about...
Again - I would ask the doctor to justify a colonoscopy yearly, every other year, etc. Do they really not know what is going on? If they do not know how to treat you maybe another doctor does. Why a...
The biggest issues with flying are how slow it is to get someplace and the attitude of some of the staff. Take your meds onboard with you and enjoy the flight....
I am in a similar boat. Immuran did nothing for me or made things worse. Not all drugs work for everyone. You know your body best. Follow your instinct vs. what the doctor says....
I am just amazed that Tramadol does anything for you. Personally I have taken Vicodin, Oxycodone, and similar drugs. For me and my wife they are worth about as much as aspirin or Tylenol. Just to...
Look at that. You learn something new everyday. My GI talked about Remi talking 8 hours and I read something similar in one or two places. That being said after having home healthcare for my...
Nope, no annual colonoscopy for me. Sounds like someone wants to pad their billing. Tell them to justify it....
Maybe I have an accelerated and unrealistic time scale. However Simponi was approved in 2009. I hardly call it new or cutting edge. That being said my insurance company requires me to reject Humaria...
I am still off immuran and it is a good thing. For me it is just not a good drug. However Uceris was also a very bad drug for me so maybe it is a body chemistry issue with me. From what I have read...
It is illegal but the chances of having an issue are slim to none. I have ordered drugs from Canada in the past an have not had an issue. Now if you are trying to get the "good stuff" like HGH or...
Teddy - I am very sorry to hear about your issues. I would like to take a step back. Are you sure you are with the right GI? I just cannot spend the (8 hours?) that a remicade treatment required. Nor...
I feel your pain and am sorry of the issues you are dealing with. Luckily peanuts do not seem to bother me. Nuts however do (peanuts are legumes not nuts). Hang in there things will get better....
Zed - I am sorry to hear about your issues. I am a guy so my perspective is going to be a bit different (possibly). My father took prednisone for an extended period of time due to Chrones. I saw the...
I am very glad to hear that you are improving. I am on week 5(?) with Entyvio. I have stopped all other medication except Lialda. Meaning I have dropped Immuran and Rowasa. I am a bit gassy (I blame...
My sleep sucks. I am can't say if trouble sleeping causes greater problems with my UC or if my UC is impacting my ability to sleep. I am not sure about other people. However I have no problem getting...
Good luck on the Enytvio. I have completed the 2nd infusion. It seems to be helping but I am not 100%. Several more infusions until I make a decision one way or another....
I have had two infusions on Entyvio. Is it helping me? I am not 100%. However I had dumped Immuran (which made things worse not better) and Rowasa. I am still taking Lialda. Symptoms are no worse and...
I am sorry to hear about your problems. Immuran is yet another drug that made things worse for me not better. Despite my doctor wanting me to continue I have stopped. You know you body better than...
I am in the same boat. As much as I hate Predinose and am terrified of the side effects it does work for me. Uceries on the other hand seemed to make my symptoms twice as worse. The key to take aware...
I too am on Entyvio. While I like my GI I am the one that brought up Entyvio. I am the first patient the practice has put on Entyvio. From my research (limited as it is) I feel like Entyvio is the...
Honestly I think 150mg's of Immuran would kill me. I went up to 75mg's but that level made it so I was barely functional. I was lucky if I did not require 2 or 3 naps a day. Even with naps I...
I despise all of the enemas. They really f'up an evening. However they do seem to be effective (at least for me). Like anything I would give it a specified period of time. If it does not work in that...
So am I right that Remicade is ~8 hours for an infusion. I hope it works for you. But how can you spend an entire day getting an infusion? How in good conscious can your doctor recommend this...
I think 40 was the highest dose I have been on. However I think that any dosage is too much. I refused it for an extended period of time. I would like to say that I will never take that poison again....
I have stared Entyvio. I have just completed my second treatment. That being said I am not able to say how it compares to other treatments. Well I can say for me it is significantly better than...
I can't speak to normal. I can however tell you my experience. After 2 rounds of Flagyl did not work I was given Vancomycin. Things cleared up for a bit but then the symptoms came back. However I...
Sorry but what do mean Simponi trial? It has been out of trials and is regularly subscribed. It should be noted that anything you say and what you have during a trial are recorded. For good or bad....
I had no luck with any of the probiotics I tried. They just made no difference. My big suggestion is to listen to the advice on the board and Nancy Reagan - Just Say No to flagyl. It is a waste of...
Thanks everyone. To add some clarity. Yes, I have been approved for Entyvio. Without failing to prove another drug did not work for me. I personally contacted my insurance company to verify it would...
So as a quick recap I have been battling a flare for 1.5 - 2 years. I have moved up the treatment ladder. Doctor wanted to put me on Simponi. Insurance refused as I had not proven than Humaria was...