Well I was discharged from hospital on Wednesday because basically they don't know what to do with me. I am not an emergency situation as my bloods are now stable and my crp is going down slowly....
No they told me they won't be removing my rectum. But I don't get it in a way?? I mean my rectum also has colitis in it and is quite inflamed at the moment. So surely I can continue to have colitis...
Thanks for all your kind comments. I will probably head to surgery on Monday. Very nervous about the actual surgery especially as my immune system is in shatters at the moment with all the drugs they...
They are leaving in my rectum so I have the option of a j pouch later on. Because of the state of my health and colon at present, they want to do the surgeries in two stages and leave at least 9...
We'll I have been in hospital on and off for the past three weeks with an acute UC flare that has been relentless. My UC has been classed as mild and then to moderate and now very severe. I have...
Hi all Well I'm hospital at present with an acute flare of UC. The flare has been very difficult to control and as such it have become quite ill and options are running out before surgery. I met with...
Those of you that have had a j pouch- have any of you tried to conceive or conceived with one?? I've been told it will be difficult...
I don't know what to do. I think I know it's inevitable but it's just such a drastic decision. I mean even with this bad flare I am going to the toilet only twice to three times a day and I will be...
My CRP has shot up to 96! So this is now not looking good. Starting to think about surgery or should I wait and see if the remicade does anything???...
Well back in hospital yesterday after having a flexi sig and seeing that my colitis is now severe. First dose of infliximab given yesterday late afternoon and thought I started to feel better....
That's great Jonny! I am in the same position as you. Last week was put on IV steroids and they didn't work. Well it got my CRP down but it just shot back up again when I left hospital and was put...
Right.... Well things have gotten pretty interesting since I left hospital last Friday. The IV steroids failed to work and so did the oral pred so I had a flexi sig today and it showed my colitis has...
Update is that I was discharged from hospital yesterday with 40mg oral pred. My CRP was yesterday at 14 and they think it will just reduce slowly now on the pred. I was meant to stay in hospital as...
Gary I am not trying to be rude but I have biten my lip here a number of times when you have tried to give your advice and i have to say 90 per cent of the time your 'realism' is extremely negative...
Support not supper!...
Hi Jonny I too live in the Uk, was admitted to hospital on Sunday on IV steroids for 4 days and now switched to 40mg oral pred. CRP reduced from 80 to 14 and is getting lower so looking to discharge...
Been tested for all bacterial infection including c diff and it's negative. BM's seem to be reducing slightly. CRP is usually accurate for me as is calprotectin. Tb test done for remicade so it's on...
Update! Third day on IV steroids and my CRP has reduced from 80 to 26 so we are now heading in the right direction. They are confident that I shall be ok with this now and no need for remicade yet....
Well I had a bowel movement two hours ago and I am only just getting over it. I was in that much pain I was crippled over the toilet. And I feel so weak and am finding all the drugs hard. I am in a...
Well after my last post my most recent blood test shoes my CRP is reduced from 80 to 51 so it's going down. Seems like they are finally working. So may be no need for remicade but I am ready...
Well I have had a few doses of the IV steroid now and it does not seem to be helping :( my CRP is actually increasing and has gone from 60 to 80 in a day. So looks like flexi sig tomorrow and then...
Well I'm entering day two on IV steroids and even though I'm still having urgency and probably the same level of frequency the water is starting to turn browner rather than red! And getting brown...
Update is that there is no change to my condition after three doses of steroid. The doc has said he is still confident that it will work and that I just need to be on it longer. He says if no change...
Had my third dose of steroid now. I feel good but BM not much better yet. Still lots of blood and painful cramps. But doc said my CRP went from 3 on Tuesday to 60 by yesterday! So will take a few...
Well I've been told I will be on the IV steroids for 2 days and then back to oral ones. This is all the doctors fault who reduced my azathioprine. I never would have been in this situation had it not...
I've been told the steroids given through the IV are not the same as oral pred. They are stronger but as I will only be on them very short term then it shouldn't get too nun side effects. I suppose...
Thanks everyone! Well I have been admitted now and they will be starting the treatment soon. I am quite nervous. Also by the fact that the emergency doc told me that the IV steroids may not work as...
Well I've given the 40mg pred seven days and my condition is worsening. I would have carried on with the oral pred had my symptoms not gotten worse with more frequency. So tomorrow I shall go to...
Exactly thank you for reading my comments correctly....
While this is generally wise, I do not fully agree with you statement in this case. UC is bad. Life sucks. No liver is worse. No life, just death. You statement "not having any effect in my blood"...
I hope it doesn't take longer than 10 days! I think I will have a breakdown! I'm hoping it works soon. Because I am also on allopurinol, that boosts the power of aza by about ten times! Even 50mg...
That's so nice and thank you for your post and thank u for your prayers. Means a lot. My mum has been up in the nights with me praying and chanting and that has helped my mind rest. IV steroids are...
It just shows we definitely need our own judgement on our health and should not just rely on what the doc says- even though they are the professionals they are only guessing in relation to each...
I take VSL3 probiotic and have a mainly dairy free diet. I have been told to come in to hospital now for IV steroids. I'm scared. I've never had them before and heard they are double strength....
Hi all Well I have been really well with my Uc the past six months whilst on 50mg aza and 100mg allopurinol. I've had no side effects and have been enjoying life. That all changed when at my last...
Hello everyone! I am planning our next family vacation and am looking at Bali as our destination. I have been on Imuran since last year and it is working well for me. I have heard that one of the...
FightUC- for those of us that are on immunosuppressant medication do not choose to be on it and are on it because other things have not worked for us. You do not have to be so insensitive about the...
For me, is starts to disappear when I am on the lower doses of pred like 10mg and below. The longer you are on the higher doss of pred, the longer it will take to go too. Just keep in mind that it is...
I go the norovirus last year too but luckily my colitis remained ok. It is the worst thing ever! However it was when I got food poisoning last Autumn that sent my colitis crazy. I have been extra...
So I went for a second opinion regarding this pain I have on my left side (where my colitis is located). I was sent to another consultant gastroenterologist at another hospital by my GP as my own...
lol! I live in England too Kevin and I actually have the direct email address to my GI doctor and IBD nurse and they always gets back to me on the same day....
Btw I had my aza dose reduced from 125ng to 50mg with 100mg allopurinol. I don't know why my signature has not come up!...
Just a bit about my experience on imuran and allopurinol. Firstly allopurinol is NOT an immunosuppressant. It is actually a non-toxic drug used for the treatment of gout as it reduces uric acid. It's...
I take about 1500mg of turmeric a day. The capsules are 750mg each and I take two, as advised on the bottle....
You are so right and I applaud your way of thinking. I have wasted the last year on thinking about this stupid disease everyday. Yes there were times of flares during that time where it is difficult...
Whoa! I've never heard of that high a dose. The highest I've ever heard anyone be on is 100mg given through IV. I've never had an IV of steroids always had the pills so the highest I've ever been...
I was bf and I also bf my daughter for almost a year. I still think I did the best thing for her. Only time will tell as she is only 22 months yet but I did what I thought was best....
I am on aza as my long term maintenance med and have had no side effects as yet. I have noticed some hair thinning but nothing noticeable to anyone else. Plus that might get better now I am out of a...
Yeah I never had any nausea and it aza has put me in remission too even though I still have ongoing issues such as mild cramping (maybe spasms or IBS)...
well at least I am not alone!! My husband also suffers with UC and he is the complete opposite to me. His first GI told him not to let the disease get in his head no matter how bad he gets and he has...