Thanks all for the great advice....
Sorry, it is 800mg , 6 tabs daily of asacol...
Hello all. My last bad flare with UC was during the holidays. Since then I have been taking 800 mg of asacol daily and rowasa enemas when needed. I guess like everyone, I have had some good and bad...
Oh gosh, I am crying reading your post. I lost my 19 yr old chihuahua Petey a while ago and I know the pain you are feeling. You will know when it is time to let him go. I rescued my dog from the...
Hello all. I am happy to say that I have been flare free for about 6 months. I need some advise so I can stay that way. After having some burning with urination, I went to my primary doctor and was...
Hello jack. I also have a high deductible insurance plan. I live in the USA , and for the last 4 months I have been getting my asacol in Canada. I get the generic ( no generic in USA ) it costs me...
Oh gosh, thanks. I started using the enemas last night. Hope this works. Thanks again for the info. Laura...
Depression & anxiety !...
Hello all. I have been flare free for about 4 months. Had a bad flare during the holidays. Took pred and then my G I put me on asacol 800 mg , 6 daily. Also rowasa enemas when needed. Although I am...
Hello everyone. I am getting low on some of my vitamins and other supplements that I take daily, and really need to make a run to the health food store. Right now I take Asacol 800 mg, 6 pills daily,...
Hello. I was dx over 20 yrs ago with proctitis. ( 6 inches of inflammation in the rectum area ) about 5 yrs ago, during my colonoscopy I was told that I had microscopic colitis. I remember having...
Please don't panic! Everyone is different with UC. I was dx with proctitis over 20 yrs ago, and it was very mild. Now my disease have progressed. I believe the reason why it has spread further up my...
After my last flare, I gave up yogurt, and all milk products. I like the almond milk ( some people have issues with almond milk, but it does not bother me) and even though I do not have celiac, I...
Has anyone ever used Poo-Pourri? It comes in a small bottle and has a a couple of different fragrances. Before you need to go, spray a small amount in the toilet and like magic, after you go there is...
Omg, sometimes we have to find humor in difficult situations or we would just be depressed and crying all the time. Please don't feel alone with the urgency and humiliation. My husbands side of the...
I decided if I get another flare like the one I had over the holidays, I will pick up about 10 packages of adult diapers! I must of thrown out 3 pairs of pajama bottoms. ( i was so disgusted, i did...
Thanks for all the great advise. Last scope was about 4 yrs ago. I am going to call my GI and see what he thinks about waiting until nov. I am pretty sure they would code it as a screening when I...
Hello all. I need some advise on my UC. I am a 49 year old women. Will be 50 in October. In my 20's I was dx with proctitis. ( GI told me just proctitis , 6 inches of inflammation) Lived with it for...
Hello. Years ago I was diagnosed with proctitis and was doing well with rowasa enemas. When I got a flare ( mucus and blood ) I would use a enema a couple times a week and I would be good for a long...
Hello. Instead of drinking juice which is high in sugar , you should try to drink or eat something with protein. I had this issue when I was pregnant. My doctor told me to stay away from sweets and...
Oh no. I am a big fan of anything sweet. I have tried to cut out chocolate because it causes me to have horrible migraines. I did not know that it causes inflammation in the body. Glad I know this...
So sorry to hear about your son. I have a daughter who has a mental illness, so I know how it feels be be a parent to a sick child. It is very hard. Did your son suffer a lot of pain with the UC ,...
It can't get any worse than that! My god, it looks like you have given up so much already. Can you try some of the organic dark chocolate or white chocolate? I just had a large bowl of ziti with...
Hi. I have been making my own shakes in the nutribullet. I like it because you add what you like, and in the long run it is cheaper than buying the already made shakes. Plus when you make them...
Also forgot to mention, nutribullet makes another powder mix that is all greens ( I use the fruit one) bed, bath and beyond sells it and also kohls. They are both loaded with good stuff! A lot of...
Hello. My hubby bought me one for Xmas. I have been using it everyday since I got it. I am home during the day, so I make one large shake for lunch. It holds me over until dinner. I have not tried...
Ok great. I think I am going to try the miralax. Better then spending 130.00 on those nasty pills!...
Hello. My GI doctor just informed me that I need a colonoscopy. Because I have a problem drinking the fleet prep, he informed me that I am able to use the pills. I need to take about 32 of them ( 24...
Hi Doug. I have the same issue with insurance. A high deductible plan. I also take asacol HD and use rowasa enemas. I just ordered the generic asacol about three weeks ago from Canada. It seems to...
Hello. I also suffer from migraines and used to take a lot of aleve. My doctor that treats my migraines told me to stop the aleve! It causes rebound migraines and causes damage to the body. Which...
Hello. I just ordered a generic asacol from Canada. I am in the USA and they do not have a generic here. Canada does not go through insurance. I paid about 350.00 for a three month supply....
Hello. Has anyone ever had a severe pounding headache from pred? I just finished 6 wks of pred about 3 days ago and am still suffering with side effects, such as; severe weakness, hungry for junk,...
Also you asked when to taper when starting at 40 mg. My GI nurse told me not to start tapering until feeling 100% better. It took me 8 days. When i had no more stomach pain and had a normal bowel...
Hi Amy . I just finished pred. ( My first time too) Was on it for 6 weeks. Started with 40 mg for about 8 days and started with the tapering. The hardest part for me was when I started tapering. At...
Yes so true. Take your meds. Have you tried getting your prescriptions in Canada? They don't go through any insurance, but it is cheaper. I just got asacol, a three month supply for about 300.00. (...
Omg I just finished pred. Was on it for about 5 weeks. I don't know if I stopped it too soon. ( stopped taking it at 5mg ) but the withdrawals have been horrific! Bad food and sugar cravings, feeling...
I am just wondering how others deal with work, school, etc with UC flares???? I work part time at a hospital ( just Saturdays) I had to call out two Saturdays because of bloody D. My boss was not...
Hello everyone. I have a question about prednisone. I recently just got over a bad flare during the holidays. I was prescribed 40mg of pred for one week and started tapering. Besides my heart racing...
It is very expensive. But if your insurance covers 500.00, why not go one or two times?? Can't hurt any. They may have some good advise. I went one time to a local college with interns. It was cheap...
Hello all! I Just want to start by saying happy new year and a healthy one too!! I am tapering from pred, down to 20 mg twice a day. Happy about that. Also started with the rowasa enemas. Those...
As soon as I read your story I prayed to god for you and and your family for healing and hope. I can't imagine having so many sick children in one family. Although, I too have IBD and my 21 yr old...
Hi, I started with the rowasa enemas while tapering. I have asacol but have not been told when to take it. Do you think the enemas will be ok? Now I am scared of flaring again when I get off pred....
Aw, you sound like a good loving mom!! Us moms always worry about our kids. We just want them to stay healthy and be happy! My son who is 16 has been complaining about stomach gurgles and pain. I...
Hi everyone. I have a question. Has anyone here ever tried to use aloe vera enemas. A friend of mine who is into natural healing suggested that I empty a fleet enema and add pure aloe vera juice from...
Omg sounds scary living in Canada when you have an illness. When I flared. I saw my doctor twice and the APRN called me three during the week times to see how I was feeling. Also sent me for blood a...
Glad you are feeling better. I think anyone who has colitis/crohns needs to go GLUTEN FREE. Even If your tests for celiac come back negative you can still have an allergy. I learned It causes...
Hi. Yes sadly, she has been seeing a pysch doctor since 9. She also takes clozipine. It is a heavy duty psych med. The only med that controls voices and hallucinations. She also takes lamitical for...
Sounds like you need to push him to go to the doctors. Start with a regular MD if that don't help go to a G I. Why does he not want to go? But than again, sounds like a typical man, lol. Could be a...
Hello. I am new here. I have colitis so I have been reading and writing on healing well for a couple of weeks now. Love this site! The issue with anxiety is not for me. I have a 21 yr old daughter dx...
Yes tapering on pred. On 30 mg right now for 3 more days. Then I guess 20 then 10. I guess the only way to know the correct dx is to get that scope again. Thanks...