Far more than YouTube videos....
Sorry things are going so poorly. Will your doctor even prescribe Entyvio given your prior non-response and unwillingness to continue past the initial dosing? Why not follow your Dr’s recommdation?...
For what it's worth, once I got the really bad inflammation under partial control, I indeed had less of an issue with retention of the mesalamine enema. Not that it's especially beneficial, but at...
No, it was treated as though the first brand name Remicade infusion was simply a continuation of the previous three Infliximab. In other words, the first Remicade was also the first maintenance...
Budesonide has never had an effect on me. Years ago I took oral Uceris, with no effect, and then Entorcort, which did help. Of course, Entocort has been discontinued by the manufacturer, or so I...
I don't know why I've never noticed your signature, but that is hella funny! Yes, flaring, so I imagine that active inflammation could slow absorption, I've just never experienced this before. Don't...
That is really awesome to know - not many people share positive stories that last years, since they're out enjoying life instead!...
Wow - great news. How long have you been on Inflectra in total (the forum no longer allows viewing full history)?...
I’ve used mesalamine enemas for years with little issue, but that has changed lately. It used to be that I’d squeeze the contents in and hang out on my left side until I fell asleep. The next morning...
Yep, that sounds like a reasonable way to view it. Thanks. BTW, for anyone who searches for Entocort in the future, that brand name budesonide has been discontinued by its manufacturer; learned that...
9mg taken once a day, and it does say "extended release" on the bottle....
I'm a little fuzzy on whether there is a difference between budesonide and budesonide MMX, or if they're the same medication now. The generic budesonide I was prescribed makes no mention of "MMX...
And it's an oral medication - wahoo!...
Is Simponi self-administered?...
I don't consider myself a cup-is-half full kinda guy, and yet I just don't see this negativity you're referring to. Just a word of caution; just as you wouldn't walk into a support group meeting for...
What probiotic enema do you use and where do you get it? Thanks...
Well, you're not the only one, as I'm in a similar situation as you, with comparable symptoms. No urgency/blood/mucus, and only 1-2 BM's a day. But pain in similar places, with the addition of distal...
This specifically says it's a study of inhaled cannabis....
I thought the reference to the double blind study on cannabis use in IBD patients was interesting; how can the smell and especially the mood-altering effect of cannabis be made "blind?"...
I've been on generic Balsalazide for ~4 years, generally with good results. The usual oral 5-ASA's stopped working for me (Asacol>Delzicol, Lialda, Pentasa...), but within a few months of starting...
Sounds like you're describing tenesmus. Is that possible?...
Yea, I agree. It's odd when the moderator is the one who starts to move the conversation where it's not supposed to go according to the TOU....
The one take away that I've gotten from this forum is that if one person has had a symptom, experience, drug reaction, embarrassment, diagnosis, or funky issue with suppository, someone else surely...
Thanks everyone! Your input helps me to make an informed decision....
Indications from my most recent colonoscopy (about a month ago) indicate what I would call clinical remission, to go alongside the symptomatic remission I've been enjoying. My new GI said that...
When I was in grad school, shortly after diagnosis, my guts would interrupt the professors' attempts at Socratic teaching, which was embarrassing as hell. I cannot count the number of times my...
Me too, but only six a day....
I'd give Colazal a shot (or its generic). Pretty cheap, and it works better for me than some of the other 5ASA's (though I've never tried Apriso). I too had problems with Delzicol and Lialda....
The relationship between early antibiotic use (especially for acne) and IBD is really interesting. I finished a complete course of Accutane (or its generic) many years after first being diagnosed...
Actually, sometime after moving out here I had to live on the Mainland for a year, and during that year my symptoms were the worse they had ever been. Plus I had skin rashes and other inexplicable...
It seems to me there is at least one other person with UC on this forum who lives on Oahu. I need a GI recommendation, as I recently moved to Oahu from Kauai. Any thoughts? Mahalo!...
I've been on them since my initial diagnosis in '95 or '96. Wasn't always on top of taking them though, and though I can't remember for sure now, I think I went up to a year without taking any...
Yep, the generic Colazal, balsalazide, has this effect on me too, and others on this forum. After taking balsalazide for around 9 months I changed to 2 pills three times a day, and find that dosage...
Very cool! Glad that's it's working for you as well as it is. I know I could read through some of your old threads to find this, but could you remind me if you're an ex-smoker? Thanks...
Signed, and here's a link directly to the White House site: http://wh.gov/igOWD Make sure you get the verification email, and click the link!...
What does Gas-X do for you? Does it help relieve gas more easily (meaning what exactly)? I mean, if I can pass gas without anyone hearing, then I'm good to go (a fairly constant trial at work). Does...
Yes, it goes away, but it is one of the worst things about UC, and as others have pointed out, one of the most difficult symptoms to control. Though 5ASA's don't work as well as they used to for me,...
I can't take Lialda, Delzicol or Asacol HD, even though I used regular Asacol for around 15 years. Lialda/Delzicol and to a lesser extent Asacol HD made me sick to my stomach, and I did lose weight...
There's more to the story than the cancer you can get from smoking. What about the colon cancer you're at a greater risk of developing if you continue with inflammation via UC? My family history is...
To add to the mesalamine weirdness, I use Canasa suppositories to help with proctitis inflammation, but can no longer use mesalimine enemas as they do not help and actually even make things a little...
ceecee600, can you explain that chart? I don't understand the ++, +++, etc. Thanks...
It's funny that you ask this now, as I just tried taking two different 5ASA's, Balsalazide and Asacol HD. I won't go into the details of why, but my dosage was 3 Balsalazide twice a day, and then 2...
In General: Going back to smoking works for ex-smokers, while other forms of nicotine do not. Non-smoked forms of nicotine (gum, lozenges, patch, inhalers) work for those who never smoked. Nothing...
There are so many posts on this subject, and on nicotine, that you're really doing yourself a disservice by not doing a simple search. In short, it seems to work for some, and not others. Also, most...
AGREED!! Tried a food journal for almost a year, and after seeing no correlation gave it up. I do still keep track of medication, symptoms and BMs, if no other reason than to have an idea, years from...
Yea, this is one issue around which I wish more research would be devoted. But I know it's really tough to perform a scientific study where one of the variables is known to kill people (cigarettes,...
Definitely worth a try. As my signature indicates, Asacol worked for years, but its replacement did not. Tried Lialda, but it did not work either. Old Mike suggested I try Colazol (its generic in my...
I bought a bottle of that stuff off Amazon, when I was really suffering from tenesmus, but never used it. After learning a little more about the medication, I was just a bit weary of using that...
I'm confused. Balsalazide works by releasing mesalamine, so how is that going to differ?...
Have you tried suppositories? Those can be a huge help for your diagnosis - they help me....