I was too hesitant as a 20 something male to take 6mp with Remicade so I lobbied my doc to use methotrexate as prophylaxis for anti-remicade antibodies. I have had the titer at promethius and was...
DBwithUC- That's not the first time I've been accused of going over the top lol! I was just a little put off by the doc when she told me I was only seeing casing; Cheers! My doc is good...I won't...
Thanks for the heads up on Colazal, I will look into it....
ipoop- I think you are correct I have an elevated transit time with Metamucil. My dad has the same problem...another only anecdotal example but important...his MD told him and I quote, "Asacol...
Well, my doctor told me that all I was seeing was the capsule and the med had been expelled and she was sure of it. I debunk that for my case. Med is still present. I'm in a gut remission, but I...
This is anecdotal for only myself, and not medical advice. I have often wondered how much medication I am actually receiving and absorbing from my maintenance medication as I often see the tabs in...
Here is a review of a research study with a control group that shows the benefits of vegan diet. There is no autoimmune disease addressed but it is interesting and addresses blood lipid and weight....
I agree...and a critical care icu doc told me 2 months ago that high LDL are strongly associated with cardiac disease more so than high triglycerides an low HDL....
RE: SILLY I think that is great if it works for you. I am not an ethical vegan; I just say vegan because it is easier for people to understand that term than me saying strict whole foods plant based...
One has to remember that UC can present at anytime and the medical community many and most times cannot put a finger on the precipitating factor. There are some people on this thread that were long...
Hi everyone, For the first time in years I am in a true gut remission; no blood, no urgency, no diarrhea. I had tapered a prednisone burst from 60mg to 5 then off during induction of Remicade. I also...
If I was in your situation I would be working very closely with my doc and asking a lot of questions to get a good grasp of the docs plan of care in the setting of your most current labs; I would...
Mine resolved with remission; its horrible; it gave me multiple roids that are healing but they seem like they will always be there; after I voided I made a conscious effort to realize I was done...
Renee Debose is excellent and is highly invested in her pt's well being if you are willing to travel to Sacramento; Mercy med group prob takes health net....
Hi friends, Here is an example of my lower extremity workout I do that my PT has tailored for me and my arthralgia. I definitely was not where I'm at back in July and the program started with just...
Thank you Miss!...
Thank you Sir!...
Hi kazbern, I tried gluten free for 6 weeks and from a personal anecdotal point of view I saw no change in my joint pain. I would love to try sulfasalazine again...I was on it as a child before joint...
Hi friends, Here is a new site created specifically with the purpose of talking about and sharing information on enteropathic arthritis. I have started the conversation with a brief description of my...
Here is a Vblog update of were I am at with my disease. https://www.youtube.com/watch?v=U6OeMJo6umk...
Just made the apt. thanks!...
I sincerely hope you can solve your chronic pain. I'm 29 as well and have moderate to severe tendon pains. It's not a fair dice roll for all of us with autoimmune. It's like bailing out a boat...
Hi all, Has anyone been counseled by their MD about trying to have a pregnancy while the man is on methotrexate? Risk of genetic defects and is it even safe to try? I'm now on 7.5mg and am on a...
I am an ICU RN. I attempt to keep people who are dying alive for a living. My experience with how fragile life is in the setting of illnesses (like UC, Lupus, infection ext.) and serious drugs has...
I believe that the fatigue aspect of the infusion is associated with the IV Benadryl. I would suggest a driver if they give you the Benadryl. It was nice to have a driver for my first infusion I got...
It is what it is...I would have never changed my diet if it wasn't for UC....my LDL went from 147 to 79 when I went plant based whole foods diet to fight the autoimmune aspect. I prob would have had...
Cool!...
I made this video just today and it may be a good start for you. I can do a presentation on Humira in the near future, it just takes a little time to put the vid together. Hope this helps. Regards....
Hello all, I have been living with UC for over 20 years, but only in the last year has it really brought me down and have started to take meds such as 6mp and Remicade. I have had a lot of questions...
First infusion completed this AM. No side effects at all so far. premed with Tylenol and Benadryl. Sleepy from Benadryl. So far so good/...
You are right...just trying to feel out the failure rates...I just need to be positive and hope I do not develop antibodies. Just worried and tired of feeling poorly. Thanks...
Hi, For those of you that have tried Remicade and had to come off of it, what was the reason you had to change drugs, and were you on an immunomodulator like 6mp while on remicade? Thanks...just...
Fnfiacco, Good luck to you too...I hope we can all achieve a state of well being....
Hi Ides, I start remicade for UC and arthritis this week. I saw you wrote it worked well for your arthritis and you are now on Simponi. If I may ask, did you develop a reaction to remicade and have...
Hi, Finfiacco have you tried a biologic? I have positive ANA with ulcerative colitis and a positive antiribosomal antibody. I have not been tested for HLA B 27 but I would like to. I have moderate to...
Thank you guys for the input. Thoreau, I see you tried 6mp. My biggest concern and being that the chances of me being the one are so small I understand it is unfounded, but I have a fear that I will...
How many folks out there are on azathiopurine or 6mp as well as a biologic?...
Hello, With the presence of arthralgia moderate x1 year that alters my walking gait and moderate to severe UC per my doc on 40mg prednisone I will start remicade. My current drugs are Asacol HD, 30mg...
1) UC 2) Chronic Headache 3) severe to moderate arthralgia....the arthralgia effects me the most...difficulty walking....
I agree...my knees and muscle myalgias are in flare too....wondering if I should have advocated for remicade, but I don't want to be on remicade and 6mp at the same time....hoping that when the blood...
I was wondering if anyone has been in flare and been on both at the same time and what their doses were. I am bleeding now and am on day 26 of mercaptopurine 50 and 20mg of pred....thinking I need...
Has anyone had all their autoantibodies checked for other diseases and came up positive for ANA and ribosomal p antibody? Any folks out there with UC and a positive ANA? I guess infrequently UC...
Hello, I have a positive ribosomal p antibody test at 4.0. I have ulcerative colitis as well. I also have pain in my connective tissues in my legs after 2 injuries that will not heal. Chronic...
Used in combo the drugs have had RARE complications of fatal cancers in younger males....you can find info on FDA...also infection risk is increased....but its a risk benefit thing for each...
I eat vegan now, and eat a lot of fruit..I do not notice any difference with any type of food stuffs and my colon..The key for me is 2 tablespoons of Metamucil coarse original a day...
My rhum told me I do not have spondylitis or any other autoimmune disease except UC based on what blood testing he can do. I do have a positive ANA. My colitis is active. Formed stool but urgency...
That's what ive been finding, no studies are out there....
My wife is also concerned that 6mp is going to cause sperm problems/fetal problems GI said don't worry. Any experience out there on that one?...
Hi all, I have been on 50mg 6mp for 10 days, chronic nausea has set in and I have a headache. I have not seen any change in my gut as I still heavy bleed, cramp, incont. I also take asacol HD. and do...
thanks all! we will see...