I also recommend cutting the flange before putting it on. This can sometimes prevent it from starting to curl up. You can also cut a slit where it goes over your belly button and I find that helps...
No I haven't had a chance to talk to my doctor yet. The surgeon ordered more blood work and all tests came back okay. Such as INR, Activated PTT, Fibrinogen. Not really sure why it's so low. I'm not...
I'm sure I'll live but just don't want any delays. I know it's not good to have low platelets, that's for sure....
Has anyone here ever had low platelets before surgery? Did they still allow you to go ahead with surgery or did they delay it until your platelet levels returned to normal? Maybe they gave you a...
Painful indeed! I get my B-12 tested every other month, and I'm actually high. I still take a sublingual b-12 daily now that I have no colon I am even more prone to be deficient. Thanks for the...
Canker sores, not cold sores. On the bottle I have it says not to take longer than 6 months. I'm wondering if I can take it as a maintenance supplement daily, say 500mg twice daily like you said...
Has anyone had any success with supplementing with L-Lysine for mouth ulcers/canker sores? How much are you taking daily? I have read quite a bit about it being beneficial to those who get...
I love the Sensura Mio. I have the 2 piece with the locking ring. I find the locking ring puts my mind at ease, and I don't have to worry about the adhesive. I get good wear time out of it as well, I...
Glad everything went well for you! We are in the same boat, just I had my step one done one week before you. Look forward to hearing about your progress, surgery truly is a life saver....
Great to hear. Here's to many more years of a happy j-pouch! I'm getting my j-pouch created in december, step 2 of 3, kind of looking forward to it....
I have been averaging about 3 times per day. Very little blood, but still present most the time. I'm starting to drink coffee again and it just had me thinking if that would even effect me anymore...
After having ileostomy surgery, and waiting for step 2 of 3, what is the average everyone is passing mucus/blood out their bottom? Would stimulants like coffee or certain foods increase this...
I just had my colon removed Sept 22nd. Between the time I found out it should go, and my surgery date was 10 days. I believe that is fairly quick but I kind of liked that, it didn't give me too long...
Sorry to hear that! Darn cats, I never did like those things... :P I guess unless you have a helper, you kind of just have to find a way to do it, sure sounds tricky!...
Thank you all for sharing your experiences. I agree I do read a lot more about people having it done in 2 steps rather than 3. I'm just looking forward to getting in better shape before going in for...
Good to know. I was hoping it got easier as you went along but I guess not. How long are you waiting to do the second step? I'm still trying to figure out how soon I want to do it. 8 weeks? 10 weeks?...
Hi all. First time poster here in the Ostomy forums. I am one week post op subtotal colectomy with ileostomy. I plan on doing the 3 step J-pouch, so I am a third of the way there. Still in quite a...
I would also say go for it since you are in remission. I have drank a lot more than that on special occasions, and had nothing more than the usual headache the next day. Enjoy your day and don't...
I just went from 10mg to 5mg last week. I had a little more nausea and felt verrrry tired for the first 3-4 days after the taper. I am staying at 5mg for an extra week because I feel my body quite...
Exercise, drink lots of water, reduce salt intake, eat healthy snacks throughout the day to try and help curb the hunger that it causes....
The sleep part intrigues me. I developed UC after starting a new job that requires 12 hour night shifts. I hated night shifts and fought to stay awake each night as it is a control room operator type...
How many days has it been since last bm?...
Yes call. Don't ever feel bad about bothering your doctor, it's their job. If they can't fit you in earlier than so be it, but at least you tried. Have your questions ready for him/her and maybe know...
Welcome to the forums backinthesaddle!...
It's been one day, relax and give it some time. It's very common for it to take 2-3 doses before you start to see some improvement. Although you should feel someeee type of improvement after the...
I'm like you NCOT. I need to know all my results, not just a blanket, good..bad..normal, etc. Thankfully here in Canada I can just download the "my e-health" app on my phone, and see the results...
I didn't start seeing the moon face until I got to around 25mg/day. I started at 40mg for 2 weeks and then tapered 5mg/wk. I have been cutting way down on sodium and getting plenty exercise but no...
Congrats. That remicade can really work wonders for some....
It's hard to believe that anything can be as bad as my first flare, but I suppose it's possible. My current flare is not nearly as bad as my first, but there are many factors that weren't there the...
Norwegian Gold Omega 3 fish oil I can tell you has no fishy after taste. They are quite large though if you don't mind that. They are a little pricier than most, but with fish oils, I don't mind...
I for sure am a bleeder as well. I have been bleeding since the beginning of the year, almost every bowel movement. No D, just mainly blood, and mucus. I am also on a taper of pred which doesn't seem...
This is good information here. After recently just having a kid myself (4 months old) and having changed only god knows how many diapers, I didn't even think about the risk of c-diff. I of course...
If it is nausea you are experiencing then that tends to usually subside within a few months. Give it some time and if your blood work stays where it should and you don't have to come off of it, then...
That does seem a little strange that you can feel the effect of increasing your dose by 25mg for one night, not likely....
Let's just split the difference, and call it a poop and a half. haha....
I've never heard of that one. I've always just been told the standard calcium and vit D....
You will have to wait a little longer than a month for the imuran to kick in. Three months is more like it. I would stay with the lowest possible amount of pred you can take without symptoms...
Good to hear!...
It sounds like you're on some pretty safe medications to stay right where you're at with them. If you're feeling well on these type of meds, while in remission, stick with it. I am allergic to those...
We're breaking records up here in Vancouver Canada too, I hate the heat! No air conditioning either so I'm trying to stay cool in my basement, it's not working very well....
A rough estimate is your weight equals your daily dosage. Obviously blood work and other factors come into play but 150mg/day if needed certainly does not sound like too much. My GI uses this formula...
Always a tough decision, I know! I recently had to make the choice to start another cycle of prednisone as much as I hate it. I did give the steroid enemas a fair chance to work before I gave into...
It's tough to actually say how long because I was also on other medication at the time, but 2-3 months is when I started to notice improvement after starting aza. Are you stopping at 100mg or...
Sounds very interesting. I might look into ordering it on my e-reader. I've been looking for a good read recently. Thanks pb4....
Enemas rather than the supps may help. Also, 50mg 6mp sounds low. If possible, upping that as well might help....
It sounds like the remicade is doing exactly what is supposed to do. Some improvement with doses 1 and 2, and marked improvement on dose 3. Glad you found something that works for you, that's great....
Quite the popular thread. I'm going to give l-glutamine a good chance to see if I see any improvements. In the past I would take around maybe 2-4g a day, and some days I would forget, never seeing a...
Well blood tells you there is likely inflammation of some degree, unless you have a history of hemmies or fissures? Personally, I wouldn't think I was in remission if I saw some blood and mucus. It...
Always good to hear some success stories. Thanks for the update....
That's good to hear. Even when I have quite a but of lower inflammation, I still can usually retain it for the whole night. A few hours is a good start though, it should only get easier....