How often do you have to go on antibiotics? I know you said Pepto works for you, do you take it daily even when no symptoms of pouchitis are showing? One thing I've noticed already is that my poop...
An on call doctor at the hospital I had my surgery at called in a script for Flagyl and Cipro last night. I already feel better after not even 24 hours. There is major warfare going on in my...
Thanks. Will try this today!...
when I was dealing with the stricture my stools ranged from watery to formed and in between. It's hard to say....everyone is different. I know you said your surgeon is away. Is there anyone else...
Thanks guys. About strictures... would they cause your stool to be completely soft and watery? I do have stools that look exactly like what I assume my small intestine looks like. Small, thin, worm...
Thanks, NSSG. I knew and read going into this that I'd be dealing with the issues. What has been hard for me is that I felt so great immediately that I thought I was some kind of exception! If it...
Difficulty emptying all the way? Maybe, but hard to say. I do feel like I've emptied when I'm going, but after I move around a little a sensation will come back that I need to go some more. Is that...
Hi all, It's been a while since I posted here... Today, I am 4 weeks post 2nd step of 2-step surgery. I had a very easy surgery, and for the first week thought I was a miracle. I spent one night in...
Entyvio worked for me very quickly. I noticed improvement after 1st dose. I have been on all other biologics and not seen any improvement. Even double Remicade for 6 months did nothing....
Thanks again everyone. Soy, I've tried diet mods, supplements then every medicine besides tysbari or cyclosporine. The closest I've come to remission was on Entyvio for about 4 months. Even then I...
Oh, that is sooooo encouraging. I have not met my surgeon yet. I'm meeting him Monday, 8/8. My Gastro did tell me that 2 step is their normal procedure. Based on my health (other than UC) and not...
Thanks guys. I have been on steroids, but not currently. I'm doing my best to keep off until surgery, but having some rough days....
I'm having this surgery soon. Probably within the month. Thanks so much for sharing this. This is very encouraging!...
Hi all, Been a while since I posted here (Hi again!). Dx'd in 2013 and have been though just about all the meds available. Entyvio helped briefly, but that was short lived. I'm meeting with surgeon...
I've always been active and exercised to some extent. I got dx'd with UC after about 6 months of Crossfit. I don't feel like they're related, but it's an interesting coincidence, at least....
It's not hard at all. Lexapro is different than benzos (Xanax, Ativan, Klonopin). Those are the ones with a chance for abuse. Lexapro doesn't really have the abuse factor. Doctors really shouldn't...
[quote="Indycat23"]Jacket-do you take the Lexipro for just bowel related reasons? quote] Well, I wasn't on it before UC if that's what you mean. My GI believes that I'm dealing with IBS as well as...
Hey Indy, I'm on Lexapro and it has helped me. I started Entyvio at the exact same time so it's hard to say which one is doiong the work, but I feel like it's both. I went from about 10-12 trips a...
You sound so much like me it's scary. I used to use the exact same euphemism of the dry heaves. Anyway, my numbers were around yours and even higher for a while. I just recently had my second loading...
My doctor thought that my UC was in remission and that I was dealing with IBS now. So I had a scope done a little over a month ago. It confirmed that my UC is still active, however, he believes I'm...
Hey-O!...
eating too much can lead to a horrible experience. Edibles have a bit of a psychedelic effect to them if you eat too much. It can be dangerous because it takes about an hour for you to feel the...
Thanks, Banana. I did not have a good night. Chills, night sweats, headache, nausea. I probably didn't hydrate as well as I should have. As soon as I chugged water last night, I felt a little better....
I seem to be lucky # 1! Well, sort of. My aunt has recently been diagnosed with some form of colitis. Not exactly sure what, but not ulcerative. My mom had stomach issues, but seems to be more IBS as...
Thanks guys. Easy peasy. NSSG- I recently had to cancel my 10 year anniversary to Punta Cana because of this disease. I've tried Humira, Simponi, and most recently Remicade. Nothing. Sloth- I'm...
That's kind of how I am. I mean, I'm not in terrible shape compared to some. I still live a fairly normal life. Work, have fun, coach my kids in sports. I have 5 bms on a good day, 10 (sometimes...
How long have you been on it and how long did it take you to notice an improvement?...
The Warriors group has scared me a little with some of the bad reactions. I had horrible reactions to Humira, and it makes me a little nervous I might have the same. Trying not to think about it too...
Thanks! I joined that group last week, actually! I may post a picture there later today. Do you have to call them before you go to give your weight? I had to do that with Remicade so it would be...
I'll be starting my first Entyvio infusion this afternoon. I remember being much more excited about this drug a year ago, as I felt I was going to eventually end up on it. Now it's here, and I...
I do believe it has helped my symptoms. In fact, in almost two years of meds, I think AZA and Rowasa are the only things that have helped. Well, pred and flagyl have also, but neither one of those...
How long did it take you to feel a difference with Entyvio? I'm glad you're doing well on it. I've suspected that the anti-tnf was not the route for me as I've tried Humira, Simponi, and now...
I know some people were looking for an update on this, so here it goes. After meeting with the "consultant" doc, I met with who is going to be my actual new doctor. After viewing my history, he...
This was a concern of mine. After just a couple of days trying this, I've had some abnormally painful cramping. I've stopped taking it for and am going to bring this up at my next appointment....
This made me lol! I had a Transformers lunch box (Smurf sheets, shhh). I'm reading a book with my 7 year old right now about a kid that gets bullied. What you described sounds like it is straight out...
Never mind. It's working now. I guess it was my phone. Forget all about what I said about 7th grade... :-)...
I just tried to access this forum on my phone and I got a message that says "Your IP Address is banned from accessing this forum." I'm sure this is some kind of error as it's just my phone, not my...
Thanks, everyone! I really appreciate the interest and encouragement. I would say I'm moderate to severe. Right now, I'm having 10-12 bms a day. I've never been a big bleeder, but I do see it from...
I was on Flagyl/Cipro combo once and another time just Flagyl. The first time I was really bad off and went from 15+ a day to about 5. Most recently I was on just Flagyl and was doing a little...
ha! I'm in Pensacola, FL. It's crazy how much effort and time this guy has put into me already. My wife and I have both been completely blown away by him. Yes, Flagyl is an antibiotic. For some...
Yup, he set the tone at the very beginning and asked if I can live the rest of my life like this. I said, I can temporarily if I knew what I was doing was going to work, but if this is how the rest...
Thanks. I've tried Lialda, Humira, Simponi, Remi, Imuran, Uceris, Pred, etc... Other than UC, I've always been healthy, very active, always have kept a fairly decent diet. I'm a happy person, great...
Thanks. I forgot to add Flagyl also. I've had good luck on Flagyl in the past. I've taken it twice and it has calmed my symptoms down considerably (3 bms a day as opposed to 10). I'm pretty sure the...
I've had no luck with this disease going on almost two years now. I've had good weeks here and there, but nothing consistent. By good luck, I was put in contact with a semi-retired GI here in town....
I've heard it works. Recipes might be a bit over the top. I mean, does anyone really want/need their sh!t to smell like Key Lime Pie? :tongue:...
Thanks for the info! So, it's likely that since Lialda doesn't work, Colazal won't as well? Or more fitting in my case, since nothing has worked thus far, it is likely nothing is going to work. :cry:...
I feel like I've tried just about everything there is to try as far as UC goes. I've been up and down (mostly down) for the last almost two years. Every time I feel like I'm having some kind of...
I've had this happen from time to time. It's more the exception than the norm. You probably just got a bad one to start. Keep on squeezin' on....
there are more ways out there where you can make oil or butter, but this is the most easiest and fastest way I have found while still giving great results....