Hi, Just an update on Abilify - sticking with 0.5 mg low dose in evenings, and the 10mg prozac in mornings. The issue is that on random days, my son is very tired and it takes him till late evenings...
Well last night we had a quarter tab, 0.5 mg and he wasn't tired. Will continue that path. Doc suggested to slowly introduce it. Maybe the tiredness was exagerrated because of the stress and anxiety...
Hi, My son's OCD (germs/bugs) had reached an acute level lately, he is 21. He is on prozac low dose. We discussed with doc to start an anti-psychotic, "abilify" generic, a low dose of 1 mg (cut 2 mg...
Thanks, Karen!...
Hi, This is my first post on this forum, i'm seeking effective treatment suggestions for OCD based on your personal experience. If you have recommendations in South Bay (San Fran) area that would be...
THanks for the advice @Scaredy Cat and others on this forum - it is so good to have community help, you guys are great....
Thanks @AngelLisa!...
Hi, Haven't heard back from psychiatrist. My son takes his dose in the morning, 75 mg, for social anxiety. Yesterday he missed, we gave him the dose at 6 PM. What should we do the next day - 9 AM or...
I also wanted to share that some of your meds could cause C. In my son's case, he has regular BMs until we did 50,000 IU Vitamin D supplement course for 8 weeks - after that he had 3 months of...
Thanks@AngelLisa!...
One more question - is loss of appetite also a side effect of Zoloft? I am seeing that in my son since he started Zoloft....
I think I mentioned i have seen the anxiety build up as we started the treatment. No, there aren't any family tensions - he has a younger sis and a stay at home mom. He's well taken care of. Thanks...
@garylouisville, he was never like this before - quite to the contrary very happy go lucky even during UC, his symptoms go back 4+ years. This is why I am thinking it is the meds....
Hi, It is perplexing - my son has developed serious social anxiety since starting remicade Jan 2014. Prior to remicade, he was a very social kid. But we noticed it about 6 months after starting remi...
Thanks, all. One other question, what is the best time to take zoloft. We went from afternoon (3 PM) to evening (8 PM). We haven't tried morning yet. Would appreciate your experience of what time...
He is only on remicade right now. We started zoloft for social anxiety recently that has come upon him since December and got worst since....
Thanks all, for your insights. Yes, we had our first appointment with therapist last week. Plan to do that twice weekly during summer. Just bumped up the dosage to 50 mg yesterday and moved to after...
Hi, My son hasn't had nausea with remicade all of last year. This year, the last two infusions were higher dose (7.5mg/kg) and closer (6 weeks vs 8 weeks), and after the second higher infusion he...
Hi, My son has been on 25 mg for 2 weeks and now moving to 50 mg - for acute social anxiety that has been building up over a few months. We noticed that an hour or so after taking the med he gets...
Thanks - this is very helpful! Also, will try and give the dose after lunch today, rather than at bedtime....
Yaay! All the best! In my son's case, he has also developed social anxiety over the last few months - which I think stresses him and doesn't help with UC. So starting treatment for anxiety too....
Thanks @Hibee. Yes, CBT is on our radar, waiting for an appointment. Thought that we need medication for him to get him through this acute phase. A doc friend also suggested prozac 10 mg going to 20...
Sorry, re-read my post - multi-tasking and mistyped. It should read - you should probably switch to prednisone, and it is not a good idea to continue uceris. Also, if flare started a week after...
Hi Catie, You shouldn't probably switch to pred that you know works. Given your current condition and bloody stools, it is not a good idea. In my son's case, we had to up the remi to 7.5 mg/kg and...
Hi, My 15-yr son who has developed acute people anxiety - wants to keep a distance from everyone, including family! This developed slowly over the last 6 months and is now acute such that he doesn't...
Sorry to hear your ordeal, stay positive. Remicade made a big difference for my son. I do want to make you aware that some people can be allergic to Lialda and ASA-5 drugs wherein these drugs cause...
Thanks. MTX pills are 2.5 mg each so 12.5 mg twice weekly - that's about right, adult dose is 25 mg/ week. We are going to give it a try. So you didn't have any other side effects with MTX like...
Hi @notsosicklygirl, What dose of MTX were you having? Are you still taking it? How long after you were on it did you have the infection? Thanks. I am discussing with doc today MTX or 6 MP....
Methotrexate - immunosuppressant. Although it is prescribed for Crohn's disease, an acquiantance GI doc suggested it is effective for UC too to enhance and keep up efficacy of remicade longer....
I know you had nausea issues with Imuran, and you discontinued. Did you ever discuss MTX with your doc?...
My son is in the same boat after 12 months on remicade. Flare led us to a short pred course - started 40 mg for a week, then 30, then tapered over 3 weeks. Then when we got to next infusion he had...
Uceris did not work for my son. Saw no improvement in his flare condition - and he got some side effects like stomach burning. Had to switch to prednisone after a week....
Like Caitie, my son had a flare just under a year on remicade. Bright blood on TP, multiple BMs, urgency. Uceris didn't work, had a quick course of prednisone to bring the flare under control. I...
Hi, One of my wife's friends shared with her that we should get ALCAT test done for our son - it is a private food allergy blood test where they measure anti-bodies based on various food elements....
Thank you all for the valuable input. In my son's case, I think it could be the gluten-free Chex oatmeal that we recently introduced, or the chex rice cereal that he started a few weeks ago. Have to...
My son is starting to get constipated now - previously he would have pretty regular BM. But since start of this year he has had 3 periods of 3+ days constipation, it is becoming the norm after start...
My son tried it for 5 days - it had no impact on his flare, only caused increased burning in gut area. Had to stop and switch to prednisone which addressed the problem in a few days....
Stopped Uceris Saturday as my son was generally feeling unwell, stomach burning off an on, fatigued and just not upbeat. Started prednisone per doc's original advice - hoping for short course....
@UCDad, This disease is so difficult to navigate and my heart goes out to all the young kids that have it. Hope your son feels better and hope that ASAs keep him in remission. I do want to say that...
This flare started while on remicade, I am seeing blood on poop and on toilet paper. Form and freq of BMs has improved after last remicade 4 days back but blood still there. The question is whether...
Today is day 4 after remi infusion and starting Uceris. Flare still not under control. I think Uceris isn't working. There is blood on toilet paper, and a little around stool, stomach burning...
Thanks for the info @mcfarl73...
@mcfarl73, How long did you take uceris? Did you stop abruptly or tapered?...
@mcfarl73, Sorry to hear Immuran is causing you major side effects. You should stop it after doc advice (don't they have on call support over weekend?) Otherwise, please call your primary care...
Having significant burning discomfort, has also complained about nausea feeling though not quite as much. Its been 4 days, thinking of pausing uceris to confirm that this is due to the med. Will...
Having quite a bit of burning in gut area (below navel) after 3 days of uceris. Could be because of the iron coating on it, my son is quite intolerant to iron supplements so possibly that's causing...
@kbrown12, The rash is likely definitely due to mesalamine reaction - both salofalk and mezavant seem to be mesalamines. My son had a rash with sulfasalazine around his face but we detected it the...
@Apples, agree with other posts - you should NOT be upping the prednisone dose. Find another GI doctor this week and switch. That's what I had to do when my care team at Stanford turned out to be not...
This is a great forum indeed. Especially, given the complex nature of this disease, where it affects people different ways, meds affect different ways, we have to learn from collective experience of...
@ktescope - Hope you're feeling better now. Just saw your post. You are very likely allergic to mesalaminee, if so it actually makes your UC worse. You should consider switching to remicade. That's...