Thank you, Skeye. Your post was very helpful. It’s definitely a lot to consider especially the no MRI thing....
Good morning, I’ve posted a few times on your forum. I’ve had CRPS since I was 19 years old following an injury in college. It effects my right foot mostly but can bother my entire right leg at...
I tried the diet about 2 years ago at the request of my GI doc. I'd say my gas decreased after a couple of weeks but it wasn't like I was crazy gassy to begin with. I had similar food results as you...
I wouldn't taper prednisone prior to remicade. Prednisone is a bridge to successful maintenance med. IMHO, wait until you have had the loading doses of remicade and see if you get good results....
Ah, I didn't think to ask your location. Normally I can pick up cues in the writing but I didn't with your post. My apologies for assuming. I'm not sure if the financial assistance programs are...
I'm going to comment on your cost concern for biologics. I have no experience with methotrexate or imuran. The doc that started me on remicade skipped that tier of medication and I never asked him...
In my experience, it is not normal to have a physician refuse to provide medical documentation for FMLA. I'm completely shocked that he expects you to suck it up and manage a flare while working....
I would not accept your current level of management. It wasn't until I went on remicade and had excellent results that I realized how poorly my previous physician had been managing me. I was...
I was on it for 3 months and had other side effects. Discuss it with your doc as you are planning; in my experience one med can be a miracle drug and another not so much. I returned to remicade...
Seems to me your flare is severe enough for prednisone. If I were suffering as you are, I would ask for steroids. The side effects are not always bad. In my earlier years of UC, I had no side effects...
I've had pancreatitis and my diet was clear liquids for about a week. They monitored my lab work and abdominal pain before letting me eat. It was so painful so I get it and hope your recovery is...
I have neuropathy in my feet either from humira or autoimmune trigger while on humira. Your PCP seems flippant regarding your symptoms. If insurance allows, I suggest you see a neurologist for...
You don't necessarily need to hide your illness. You can request an accommodation under the Americans with Disabilities Act. Depending on what type of work you do, you can request an accommodation...
I had remicade infusion while having cdiff due to concurrent flare....
I agree with the others. You need a colonscopy at minimum and a new GI doc, preferably one that specializes in IBD. He's not screening you properly....
I want to preface with this. I know many patients do great with humira and find remission. I don't want my story to overshadow the good humira has done for others. My previous GI doc had me switch to...
I'm currently taking 50,000u for 12 weeks. I didn't know it can take 6 months to get a decent level....
Jane, I identify with eveything your wrote. Thanks for sharing....
Could be how he prefers to treat UC. My doc skipped the immunosuppressives and went from asacol to remicade. We didn't even discuss imuran. I do have a friend that had proctitis that was requiring...
Sounds like to me that your dry heaves/vurps could be from inflammation. You are recovering from serious flare requiring hospitalization. When my flares require a hospital stay, I'm too nauseated to...
Yes, I've experienced the dry heaves or at minimum extreme nausea. Sometimes mine is prior to a BM even before I feel the urge to go. It's basically a warning for me to find a bathroom. If I'm...
C.differently...see if you can find your insurance company's formulary online. I've been able to find several formularies online for my insurance company. If you can find it, it will give you insight...
Thanks OM. I'm with kulinarykidz, I always forget to take it....
Yeah, that's weird and misinformed of your GI to say. Any surgery in the mouth is considered "dirty" and while the surgical team still preps and drapes in a sterile fashion just like any other...
Remicade and nothing more than a headache during the induction phase....
Hi Carly, this forum is a great place to start your UC education especially since you're timid. Never consider that your questions are bothersome. The more you read the forum, the more you'll see all...
If I were flaring as you are, it would take several days for me to see an effect from the steroids. Since your docs have concluded you are steroid refractory, I guess it's a moot point. Good luck...
I'm taking gabapentin for a different reason but I can see why a doc would rx gaba for GI...lots of nerves....
Yeah I was thinking the same as ipoop. Could change your diagnosis to crohn's....
I too responded quickly to remicade. My nemesis was horrible cramping and those went away after the first infusion....
I am so happy that you have what sounds like a great doc, that you were moved out of the flu room and that you are feeling better....
I agree with the others. If your symptoms return while tapering prednisone, your doc needs to know and it's time to add a med or change medication tier....
Curedcolitis, it seems to me that you're waiting for any of us to say YES to trying activated charcoal and then come back and say IT'S THE GREATEST TREATMENT EVER to validate you. It's one thing to...
In the past I would suffer at home like you. My UC has changed over the last 3 years which also changed how I think about it. While I prefer being at home in my own comfortable bed, I can no longer...
Have you considered cdiff? It's possible you were exposed to it during your admission. That is how I contracted cdiff a couple of years ago. The antibiotics are more likely the reason for your D but...
I'm glad you've made a decision and that insurance won't be an obstacle. Let us know how your respond to simponi....
I was on humira for about 3 months in 2014 and soon after the loading dose could barely tolerate walking on my feet. At the end of a work day, I would be in tears walking to my car. I did much...
I agree with the other responders. The scope will not cause a spread of your disease and you most definitely need a surveillance colonoscopy. Once you are 8-10 years into the disease your risk for...
I've been on remicade since 2009 with great results and no side effects. In summer/fall 2014 I was on humira only because of IV access issues. I had some significant side effects from humira and...
It is surgeon dependent. I had an open carpal tunnel surgery last summer and was given oxy. I'm sorry she wasn't managed well. These new regulations are going to give patients PTSD from postop pain...
I think in your case, if your biopsy is confirmed as cancer, meet with a surgeon and ask him/her if that is an option for you. If it's not, ask why....
How far past the effective date are they? I would use them for up to at least 6 months beyond the date....
If you are talking to me, I am talking about an FSA not an HSA. They are two different things. My employer offers both but because I am a high user of health care, it's pointless for me to use an...
I seriously doubt this administration would take away one of the very few good things about Obamacare. Sen. Rand Paul submitted his proposal for replacement and from what I read it looked good. I...
Best remicade story! Hilarious how you handled granny!...
I've wondered that myself. At some point, death would be likely secondary to cardiac dysrhythmia from electrolyte imbalance, anemia, malnutrition etc. Definitely a slow, dreadful, painful death....
I would slow the taper since you were on 40mg for 4 months. I've been on prednisone many times but the last couple of times, I needed to taper by 5 mg once I got down to 20. As ipoop mentioned, it...
Yes, I did about 2 years ago @ the suggestion of my pcp. I had also just been discharged from the hospital and it was winter....
Hi Dikid, I've been having similar issues in the last year. I'm a nurse anesthetist so am also on my feet. My pcp thought I was having some venous insufficiency so I ordered rx strength custom...
I will preface with saying I am a nurse anesthetist and frequently provide anesthesia in the GI lab. Since she's 35, she's fairly fresh out of residency. It's possible she's been working for 2-3...